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PSP Association

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Onset of severe tremor

My wife was diagnosed with PSP late 2021.She broke her hip in early February whilst taking part in a PD Warriors exercise class. She has been transferred to a...

My wife was diagnosed with PSP late 2021.She broke her hip in early February whi...

•1 month ago

CBD decline

Hi, Don’t often post as time gets away with me, but coming on hear to vent a bit ;-) So mum has CBD diagnosed 2020 so has probably had symptoms for 4+ years....

Hi, Don’t often post as time gets away with me, but coming on hear to vent a bit...

•1 month ago

Diagnosis received yesterday.

My lovely mum finally got a diagnosis yesterday after approximately 5 years of us noticing symptoms. Her consultant was amazing and I could have cried when he...

My lovely mum finally got a diagnosis yesterday after approximately 5 years of u...

•3 months ago

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PEG Feeding

Hi....my step mum has PSP, she is bed bound and has carers come into her home 3 times a day to help my dad who is her full time carer. She is still able to eat...

Hi....my step mum has PSP, she is bed bound and has carers come into her home 3 ...

•6 months ago

Phlegm with blood

Adoey here, I haven't written in a while. I'm having a problem with Phlegm. Lately, I'm coughing phlegm with blood. Has anyone had this happen to them?...

Adoey here, I haven't written in a while. I'm having a problem with Phlegm. La...

•9 months ago

Progression

It is 2:00 am and I am sitting here wide awake . My sleep cycle is all messed up, some nights I don't sleep at all but most nights I can get sleep around 4:00...

It is 2:00 am and I am sitting here wide awake . My sleep cycle is all messed up...

•10 months ago

Our CBD Journey With Dad

I would like to start this off with a brief insight to our CBD journey. I know we all have had to go through very similar caring procedures! But, I need to...

I would like to start this off with a brief insight to our CBD journey. I know w...

•10 months ago

behaviour and PSP

hi there, I am new to this group ..and looking for help in understanding this disease.. My husband was diagnosed October 2022.. He has the typical symptoms...

hi there, I am new to this group ..and looking for help in understanding this di...

•11 months ago

End stages of PSP

Because it took so long for Mom to get a diagnosis of PSP, we can only guess how long she has suffered with it. Her symptoms of visual problems and feeling...

Because it took so long for Mom to get a diagnosis of PSP, we can only guess how...

•1 year ago

recently diagnosed with PSP

I’m hoping to connect with others who have this disease. I want to learn more about PSP and what it does to my body and functioning how it will affect me...

I’m hoping to connect with others who have this disease. I want to learn more a...

•1 year ago

Nursing home- what to look for in making a choice?

Hi all, Dad (81) has been diagnosed with PSP. We now realise he has had this for some years, but was misdiagnosed. Common theme, I know. It of background......

Hi all, Dad (81) has been diagnosed with PSP. We now realise he has had this for...

•1 year ago

Preparing for end of life care - what to discuss and where to get help

Hi, As my Mum approaches the end of journey with PSP she wants to prepare her end of life care while she can just about communicate. What did you discuss...

Hi, As my Mum approaches the end of journey with PSP she wants to prepare her e...

•1 year ago

BBC Article Sept 2021. - https://www.bbc.co.uk/news/uk-england-hampshire-58641372.amp

Afternoon Further to the trial mentioned in the above BBC news link, I was wondering if anybody had heard any brief update on the initial observations or...

Afternoon Further to the trial mentioned in the above BBC news link, I was wond...

•1 year ago

Article in Karger Medical - Neurological Improvement with Medical Cannabis in a Progressive Supranuclear Palsy Patient: A Case Report

Good evening (Friend of a PSP sufferer). https://www.karger.com/Article/FullText/503864 I came across the above report in Karger Medical at the weekend and...

Good evening (Friend of a PSP sufferer). https://www.karger.com/Article/FullT...

•1 year ago

Rates of PSP in Maghull, Liverpool

hi, My father had PSP , at the time of his diagnosis two other people who lived in neighbouring roads - also got diagnosed with PSP (similar age ) I’ve...

hi, My father had PSP , at the time of his diagnosis two other people who live...

•2 years ago

PSP Pain

My husband was diagnosed with PSP in Jan. 2019. He had an MRI after complaining about headaches. The pain has not lessened, and now includes his jaw. He...

My husband was diagnosed with PSP in Jan. 2019. He had an MRI after complaining...

•2 years ago

Coming Soon - New HealthUnlocked

Hi Everyone We know how important HealthUnlocked is to the PSP on line community so we just wanted to let you all know that HealthUnlocked will be launching...

Hi Everyone We know how important HealthUnlocked is to the PSP on line commun...

•11 years ago

Northamptonshire Local Group Meeting. Saturday 30th March at 2.30

The Northamptonshire Local Group meet on Saturday 30th March, 2.30 at Grangefield Residential Care Home in Earls Barton. As always this will be a friendly and...

The Northamptonshire Local Group meet on Saturday 30th March, 2.30 at Grangefiel...

•11 years ago

PSPA Regional Open Meeting in Preston - 28th March, 12.30 - 4pm

The 2nd North West Open Meeting takes place next Thursday at the Barton Grange Hotel, Barton near Preston. The aim of the meeting is to provide an...

The 2nd North West Open Meeting takes place next Thursday at the Barton Grange H...

•11 years ago

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PSP Fact Cards

We are getting a lot of queries about the PSP Fact Cards. If anyone is interested in getting some, please send me an email at...

We are getting a lot of queries about the PSP Fact Cards. If anyone is interest...

Partner•11 years ago

Medicine and Me Conference

Monday 22 April 2013 – from 1pm to 6pm Make the most of this chance to learn from one another and leading experts, at this exciting conference where the...

Monday 22 April 2013 – from 1pm to 6pm Make the most of this chance to learn ...

Partner•11 years ago

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Dublin Support Group

The Dublin Support Group will take place on Tuesday 6th November 2012 from 12.00 hours to 14.00 hours in Mater Misericordiae University Hospital, Centre for...

The Dublin Support Group will take place on Tuesday 6th November 2012 from 12.00...

Partner•11 years ago

Carlisle Support Group

The next Carlisle Support Group meeting will take place on Monday 5th November 2012 from 1.30pm – 3.30pm at Day Hospice, Eden Valley Hospice, Durdar Road,...

The next Carlisle Support Group meeting will take place on Monday 5th November 2...

Partner•11 years ago

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Glasgow Support Group

The next Glasgow Support Group meeting will take place on Monday 5th November 2012 from 13.30 – 15.30 at The Beardmore Hotel and Conference Centre, Beardmore...

The next Glasgow Support Group meeting will take place on Monday 5th November 20...

Partner•11 years ago

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Norwich Support Group

The next Norwich PSPA Support Group meetings will take place from 11.00 to 13.00 at Stoke Mill Restaurant, Mill Road, Stoke Holy Cross, Norwich, Norfolk, NR14...

The next Norwich PSPA Support Group meetings will take place from 11.00 to 13.00...

Partner•11 years ago

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Brentwood Support Group

The next Brentwood meetings will be from 2.30pm at The Marillac, Eagle Way, Warley, Brentwood, Essex, CM13 3BL. (http://goo.gl/maps/P3Eu), on Saturday 27th...

The next Brentwood meetings will be from 2.30pm at The Marillac, Eagle Way, Warl...

Partner•11 years ago

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Antrim Support Group

Doris Mason and Fiona McLaughlin, will be facilitating at a new PSPA Support Group in North Antrim on Wednesday, 24th October 2012 from 1pm – 3pm in The Tweed...

Doris Mason and Fiona McLaughlin, will be facilitating at a new PSPA Support Gro...

Partner•11 years ago

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Warrington Support Group - CANCELLED

PLEASE NOTE: The Warrington Support Group on Thursday 8th November 2012 at Fairfield and Howley Neighbourhood Project, Fairfield Street, Warrington, WA1 3AJ...

PLEASE NOTE: The Warrington Support Group on Thursday 8th November 2012 at Fairf...

Partner•12 years ago

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PSPA Family and Friends Day - 17th November 2012

We are delighted to announce the first of our new regional events for people with PSP and CBD, family carers and friends. This takes place on Saturday 17...

We are delighted to announce the first of our new regional events for people wit...

Partner•12 years ago

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Camberley Support Group

The Camberley Support Group meeting will take place on Thursday, 18th October 2012 from 10.30am to 12.30pm at Corrina Lodge, 79 The Avenue, Camberley, Surrey,...

The Camberley Support Group meeting will take place on Thursday, 18th October 20...

Partner•12 years ago

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All things PSP Association(133)

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