Posts - PSP Association | HealthUnlocked

PSP Association

9,252 members • 11,348 posts

All posts for October 2020

MEDICAL BED - FREE TO GOOD HOME

Hello all. Have followed this site for the last 3 years (sadly dad had a very agressive and swift battle with PSP - he died last year after 18 months from...

Hello all. Have followed this site for the last 3 years (sadly dad had a very ag...

Cazash

•3 years ago

3 Replies

PSP Success - Complementary Therapies Rock!

My PSP was diagnosed 2018. No advice received from the medics, but I have a good GP. Immediately I started on personal research and a regime of complementary...

My PSP was diagnosed 2018. No advice received from the medics, but I have a goo...

timbowPSP

•3 years ago

41 Replies

Anyone near me

Hi guys.. I’m just wondering if there is anyone in here that is close by to me? We’re market Drayton Shropshire. I am in the process of trying to find ways...

Hi guys.. I’m just wondering if there is anyone in here that is close by to me?...

MumwithCBD

•3 years ago

3 Replies

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2020 PSPA Hummingbird Ornaments

* Limited Stock! * The Christmas item you have all been waiting for! Our beautiful hummingbird hanging ornament is now available from our website shop! Snap up...

* Limited Stock! * The Christmas item you have all been waiting for! Our beautif...

HelenPSPA

Administrator•3 years ago

2 Replies

This journey is a terrible one

We placed our mother in a nursing home when we could no longer care for her. It has been our first experience with a care facility. The staff on the floor are...

We placed our mother in a nursing home when we could no longer care for her. It ...

Goroos

•3 years ago

17 Replies

Hurting teeth when sneezing or Yawning for PSPs

Hello everyone, My mother has recently been struggling with her teeth when sneezing or yawning , Yesterday she keeps asking for some cotton to be put in her...

Hello everyone, My mother has recently been struggling with her teeth when sneez...

Adamxd

•3 years ago

1 Reply

PSPA Hummingbird Notelet

We have a really limited supply of these beautiful hummingbird notelets. Great as a Christmas stocking filler or just as a treat for yourself, the notelets...

We have a really limited supply of these beautiful hummingbird notelets. Great a...

HelenPSPA

Administrator•3 years ago

1 Reply

Confused

Good morning it’s me again. Rick has been getting up at night lately. He got up saying the kids fell out of bed, then this morning he fell getting out of his...

Good morning it’s me again. Rick has been getting up at night lately. He got up ...

Hidden

•3 years ago

5 Replies

Any useful device for communication?

Hi everyone, I am wondering if anybody has a good experience with a communication device. I have been recommended Tobii technology but not sure whether it’s...

Hi everyone, I am wondering if anybody has a good experience with a communicatio...

Aslin

•3 years ago

6 Replies

Communication to loved ones in care homes

All through lockdown at home mum was communicating with family through a WhatsApp call with several members taking part. I had to be there to help but in the...

All through lockdown at home mum was communicating with family through a WhatsAp...

Freddie-dog

•3 years ago

11 Replies

Locked fingers

Has anyone experienced fingers locking up,unable to open and close hand? It presents like trigger finger.Ring and middle finger.If so has anything helped?

Has anyone experienced fingers locking up,unable to open and close hand? It pres...

Sandiegk

•3 years ago

9 Replies

Jitteriness and Cupping hands with PSP

My first time posting. My husband was diagnosed in July at age of 57. Problems for two years and diagnosed with everything from despression, bi-polar, MS,...

My first time posting. My husband was diagnosed in July at age of 57. Problems...

Yardworker

•3 years ago

5 Replies

Prism Glasses

How can I get prism glasses for my dad? He has PSP and can't look down.

addygray

•4 years ago

5 Replies

Gift ideas

Hello all! My dad’s birthday is coming up and I’m trying to think of gifts he will like (especially as I can’t visit / see him in his care home due to Covid)...

Hello all! My dad’s birthday is coming up and I’m trying to think of gifts he wi...

Kellsbelles

•4 years ago

24 Replies

PSPA Christmas Cards now available!

Our 2020 Christmas Card range is now available to purchase from our website shop! The cards come in packs of ten for just £4 each, enabling you to share...

Our 2020 Christmas Card range is now available to purchase from our website shop...

HelenPSPA

Administrator•4 years ago

2 Replies

Headaches

My brother has ben complaining for some time of "pain in my head". When asked where this is he points to the frontal lobe area in the centre of his...

My brother has ben complaining for some time of "pain in my head". When asked...

redkilt

•4 years ago

5 Replies

Shower Seat

My Husband has PSP for 5 years and is still able to shower himself standing up. Lately he has been experiencing more dizziness than usual and he asked me about...

My Husband has PSP for 5 years and is still able to shower himself standing up. ...

ncgardener799

•4 years ago

13 Replies

Has anyone tried Cymbalta ( duloxetine)?

Has anyone tried Cymbalta (duloxetine) for numbness and nerve pain? Already on Lyrica have been for over 5 years, but doctor said my husband can also take this...

Has anyone tried Cymbalta (duloxetine) for numbness and nerve pain? Already on L...

yellowmarlene

•4 years ago

6 Replies

PSPA Support Networks

We've got a range of #SupportNetworks meetings regularly via Zoom. Meetings include: 28 October @11am Newly Diagnosed Group 29 October @2pm Hertfordshire Local...

We've got a range of #SupportNetworks meetings regularly via Zoom. Meetings incl...

HelenPSPA

Administrator•4 years ago

6 Replies

CBD OIL IN UK

Hi everyone we’re in Australia luckily we can access cbd oil Is this available in UK if so where do you get it or import it ? I have a friend there that...

Hi everyone we’re in Australia luckily we can access cbd oil Is this available...

Dance1955

•4 years ago

5 Replies

Leaving body to research

I'm new here after my husbands diagnosis. He has asked if it's possible to leave his brain/body to science, preferably for PSP research. We are well away from...

I'm new here after my husbands diagnosis. He has asked if it's possible to leave...

Dazzle1659

•4 years ago

6 Replies

Tasigna Nilotilib - does it really slow down PSP? Is it worth the investment?

Hi, I just seen a post below that was made by Andyniem 2 years ago referring to Tasigna Nilotilib potentially slow down PSP: My wife has PSP and there may not...

Hi, I just seen a post below that was made by Andyniem 2 years ago referring to ...

Aslin

•4 years ago

11 Replies

A marathon milestone for Bill O'Connor

Our #MondayMotivation is Bill O'Connor, who completed his 40th London Marathon on 4 October. Despite it being a very cold and wet day, Bill completed his...

Our #MondayMotivation is Bill O'Connor, who completed his 40th London Marathon o...

HelenPSPA

Administrator•4 years ago

Be the first to reply

Sediments/Crystals in Urine

My mother was diagnosed with PSP in 2016 and has been bedridden since the last year. We feed her through BRT (PEG tube) and she passes urine through a...

My mother was diagnosed with PSP in 2016 and has been bedridden since the last y...

pankaj911

•4 years ago

10 Replies

100% US Veterans Disability for PSP

My husband has received a rating of 100% disability from the US Veterans Administration for PSP. It is for agent orange exposure while in a Navy Ship in...

My husband has received a rating of 100% disability from the US Veterans Adminis...

Karynleitner

•4 years ago

4 Replies

Grumpy, sorry for rant.

Good morning; Rick has been getting grumpy the last couple of days. On the 14th the doctor and I were talking and Rick over heard me say that he is very child...

Good morning; Rick has been getting grumpy the last couple of days. On the 14th ...

Hidden

•4 years ago

12 Replies

Strengthening the lungs, opening airways

Hi everyone, I am looking to buy a device that will help dad to strength his lungs and clear his airways. There are quite a few products on amazon which is...

Hi everyone, I am looking to buy a device that will help dad to strength his lun...

Aslin

•4 years ago

4 Replies

PSPA Matters - audio files

Calling all PSPA Matters subscribers! We would like to find out if you would be interested in receiving an audio copy of the magazine, if it was available....

Calling all PSPA Matters subscribers! We would like to find out if you would be ...

HelenPSPA

Administrator•4 years ago

4 Replies

Goodbye my dear husband

Hello to all! I’ve been following this site for a couple of years now and have gained so much valuable knowledge from all of you. My very wonderful, Bob,...

Hello to all! I’ve been following this site for a couple of years now and have g...

Bettina545

•4 years ago

30 Replies

Aspiration pneumonia for the first time

Hello everyone. My SIL is in his 6th year with PSP. There has been a lot of progression this year. He is now suffering with his first bout of aspiration...

Hello everyone. My SIL is in his 6th year with PSP. There has been a lot of pr...

forourcarlo

•4 years ago

5 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for October 2020

MEDICAL BED - FREE TO GOOD HOME

PSP Success - Complementary Therapies Rock!

Anyone near me

2020 PSPA Hummingbird Ornaments

This journey is a terrible one

Hurting teeth when sneezing or Yawning for PSPs

PSPA Hummingbird Notelet

Confused

Any useful device for communication?

Communication to loved ones in care homes

Locked fingers

Jitteriness and Cupping hands with PSP

Prism Glasses

Gift ideas

PSPA Christmas Cards now available!

Headaches

Shower Seat

Has anyone tried Cymbalta ( duloxetine)?

PSPA Support Networks

CBD OIL IN UK

Leaving body to research

Tasigna Nilotilib - does it really slow down PSP? Is it worth the investment?

A marathon milestone for Bill O'Connor

Sediments/Crystals in Urine

100% US Veterans Disability for PSP

Grumpy, sorry for rant.

Strengthening the lungs, opening airways

PSPA Matters - audio files

Goodbye my dear husband

Aspiration pneumonia for the first time

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive