Posts - PSP Association | HealthUnlocked

PSP Association

9,247 members • 11,346 posts

All posts for October 2011

maeve

Has anybody out there got any suggestions for dealing with apathy and generally not wanting to co-operate. My sister had a peg fitted a month ago and since...

Has anybody out there got any suggestions for dealing with apathy and generally ...

maeve

•12 years ago

6 Replies

Brentwood today

Dear Kathy It was lovely meeting you this afternoon and were so sorry to hear of all your problems with care for your mum. Keep your chin up ......

Dear Kathy It was lovely meeting you this afternoon and were so sorry to h...

LizPeel

•12 years ago

6 Replies

Has anyone found a solution to the problems caused by conveen sheathes pulling hairs and causing pain?

I tried trimming the hair, would prefer not to shave my husband, partly for fear of cutting him and partly for his comfort, but have to change bedding 6 days...

I tried trimming the hair, would prefer not to shave my husband, partly for fear...

SheilaN

•13 years ago

12 Replies

Want to take advantage of all our features? Just log in!

Can anyone point me to a fairly recent medical paper that contains survival and other statistics for PSP. Thanks.

nigelvaughan

•13 years ago

7 Replies

skydive sponsor link Event: tandem skydivehttp://www.justgiving.com/Shirley-Goodwin0

hi evey one some people has asked how they can donate so here is they link thank you all so much i am doing this for all of us and our famillys x thanks again...

hi evey one some people has asked how they can donate so here is they link thank...

curlly

•13 years ago

Be the first to reply

My lovely Mum

Not long after Mum was diagnosed with PSP I wrote this poem I want to be 7 years old again To lie, curled, With my head in my Mother's lap. To have...

Not long after Mum was diagnosed with PSP I wrote this poem I want to be 7 ...

Kathy

•13 years ago

12 Replies

How many times do other people that have PSP fall?

My dad has PSP and this week he has fell nearly everyday if not a couple of times in one day, to get around the house he holds onto parts of the furniture. I...

My dad has PSP and this week he has fell nearly everyday if not a couple of time...

Sue20045

•13 years ago

24 Replies

Loss of appetite

Mum's appetite has gone from being really good to being virtually non-existant in the space of approx 10 days. We have to really encourage her and , more often...

Mum's appetite has gone from being really good to being virtually non-existant i...

Kathy

•13 years ago

5 Replies

whaat can i do to pevent this horrible choking whilst coughing?

i have had a cold and cough and have twice in recent weeks had problems with coughing and choking = impossibel to get my breath adn wheezing very badly- I...

i have had a cold and cough and have twice in recent weeks had problems with c...

jillannf6

•13 years ago

9 Replies

Mirapex and PSP

Hi again all, So yesterday we took Dad for his appointment with the neurologist, he sure noticed some major changes in my Dad. I hate this disease....

Hi again all, So yesterday we took Dad for his appointment with the neuro...

MJ-Mark

•13 years ago

3 Replies

Speech and the written word!

Hi I am a Senior Occupational Therapist at Abingdon Community Hospital , UK . I have recently met my first patient with progressive Supra Nuclear Palsy....

Hi I am a Senior Occupational Therapist at Abingdon Community Hospital , UK ....

RobPadwick

•13 years ago

9 Replies

mum in so much pain with her arms :(

hi everyone ,mum strated complaing on her right arm being sore few months ago she said not sore to touch just when she moves ie now her left arm is the exact...

hi everyone ,mum strated complaing on her right arm being sore few months ago sh...

curlly

•13 years ago

9 Replies

Has anyone ever tried chinese medicine? - I have recently spoken with our local chinese herbalist and he is the only person who has heard

of PSP outside of the hospital neurology departments, no other doctors, nurses or very few other health professionals we have met along the way....

of PSP outside of the hospital neurology departments, no other doctors, nurses o...

dorothy-thompson

•13 years ago

6 Replies

Is anyone going to the Queens Square, London Support Group on Monday 24th October?

This will be my first support group with my mum Rosemary, and I wondered whether any of you who are regulars here will be there?

This will be my first support group with my mum Rosemary, and I wondered whether...

clara

•13 years ago

2 Replies

A very stressful day!

The day started well then Tony tried to go upstairs. Then it was all change. I was having a shower and heard several thuds, baning and then a shout. I called...

The day started well then Tony tried to go upstairs. Then it was all change. I w...

SuzieQ

•13 years ago

16 Replies

My mum was diagnosed with PSP in August 2011. She was being treated for parkinsons for over four years.

It was a big shock and the family are still trying to get used to it. Mum has asked me to join her up to the PSP association in Ireland. Does anybody know...

It was a big shock and the family are still trying to get used to it. Mum has a...

alibaba

•13 years ago

3 Replies

MY DAD

My dad has had psp for 3 years, looking back I think the symptoms were there much earlier than that. He has deteriorated so quickly. 3 years ago he had a full...

My dad has had psp for 3 years, looking back I think the symptoms were there muc...

rachel34

•13 years ago

14 Replies

mum was told august this year she has psp

hi every one i am shirley i care for mum who is 68 and has psp .i first noticed changes in my mum 3 years ago but she still worked fulltime so we thought was...

hi every one i am shirley i care for mum who is 68 and has psp .i first noticed...

curlly

•13 years ago

17 Replies

"Magic Cocktail" for PSP?

What does everybody think of the "Magic Cocktail" recommendations put forward by WinterKelly on the PSP forum, here:...

What does everybody think of the "Magic Cocktail" recommendations put forward by...

timrawsthorne

•13 years ago

2 Replies

Little PSP cards

I know I dont live in the UK, but was wondering if someone could help me get some of the little psp cards. They would be soooooooooo helpful. Explaining the...

I know I dont live in the UK, but was wondering if someone could help me get som...

MJ-Mark

•13 years ago

4 Replies

PSP - a rare disease in the family

Hurrah! I did it! I was anxious and there were tears, but it's done. I did a talk for nurses and other health professionals at a training event on rare...

Hurrah! I did it! I was anxious and there were tears, but it's done. I did a tal...

Fiona_McL

•13 years ago

13 Replies

Making the right decision.

My mother was diagnosed with PSP 2 years ago iam living in New Zealand, mum is in a nursing home but i feel so torn, as to go back and care for her, she has...

My mother was diagnosed with PSP 2 years ago iam living in New Zealand, mum is i...

gary

•13 years ago

4 Replies

The Little PSP cards

I have avoided reading and writing blogs for the last couple of weeks, in part due to quite a large amount of building work going on at home in order to make...

I have avoided reading and writing blogs for the last couple of weeks, in part d...

Peter2

•13 years ago

20 Replies

My darling Husband is free of the illness now

My darling slipped away peacefully last Friday, he became very ill last Wednesday and although he had hoped to stay at home he agreed to go to the Hospice, it...

My darling slipped away peacefully last Friday, he became very ill last Wednesda...

Gwendolyn

•13 years ago

21 Replies

High days, low days and holidays

We are all used to the games of swings and roundabouts that PSP plays with us and our loved ones and it is never more starkly brought in to focus than on the...

We are all used to the games of swings and roundabouts that PSP plays with us an...

hmfsli

•13 years ago

3 Replies

How do i cope when Frank loses his temper with frustration?

Several times now Frank has tried so hard to get words out, I am unable to understand all the time, then he loses his temper and shouts in sheer frustration...

Several times now Frank has tried so hard to get words out, I am unable to under...

kay1

•13 years ago

7 Replies

still rambling on

Hi everybody, it's been months since I posted here. That's partly because I've found it difficult to be here too much, and partly because I'm not sure that...

Hi everybody, it's been months since I posted here. That's partly because I've f...

Fiona_McL

•13 years ago

6 Replies

Brentwood Support Group Ocober

Just to let everyone know that we will hve Anita Cage, Benefits Advisor from Essex Benefits Plus at our next meeting. Hope to see lots of you at the...

Just to let everyone know that we will hve Anita Cage, Benefits Advisor from Ess...

jennifer-nind

•13 years ago

5 Replies

North East Support Group

Hello everyone, The North East Support Group had a very positive and useful meeting in Stannington, Northumberland...

Hello everyone, The North East Support Group had a very positive and usef...

timrawsthorne

•13 years ago

6 Replies

Search posts

Latest poll

See all polls

What are your main concerns as a carer?

Vote

Topics

All posts(134)

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - PSP Association | HealthUnlocked

PSP Association

All posts for October 2011

maeve

Brentwood today

Has anyone found a solution to the problems caused by conveen sheathes pulling hairs and causing pain?

Can anyone point me to a fairly recent medical paper that contains survival and other statistics for PSP. Thanks.

skydive sponsor link Event: tandem skydivehttp://www.justgiving.com/Shirley-Goodwin0

My lovely Mum

How many times do other people that have PSP fall?

sponsored sky dive in january for psp !!

Loss of appetite

whaat can i do to pevent this horrible choking whilst coughing?

Mirapex and PSP

Speech and the written word!

mum in so much pain with her arms :(

Has anyone ever tried chinese medicine? - I have recently spoken with our local chinese herbalist and he is the only person who has heard

Is anyone going to the Queens Square, London Support Group on Monday 24th October?

A very stressful day!

My mum was diagnosed with PSP in August 2011. She was being treated for parkinsons for over four years.

MY DAD

mum was told august this year she has psp

"Magic Cocktail" for PSP?

Little PSP cards

PSP - a rare disease in the family

Making the right decision.

The Little PSP cards

My darling Husband is free of the illness now

High days, low days and holidays

How do i cope when Frank loses his temper with frustration?

still rambling on

Brentwood Support Group Ocober

North East Support Group

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive