Posts - PSP Association | HealthUnlocked

PSP Association

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All posts for December 2020

Mums CBD Struggles - Physio

My mum has been struggling with the symptoms of CBD and now has a diagnosis. Her right hand/arm is now of little use (along with other issues.. speech etc) -...

My mum has been struggling with the symptoms of CBD and now has a diagnosis. Her...

saj12

•4 years ago

15 Replies

Restore Gold can help patient with PSP?

My husband was diagnosed with PSP one year ago. Restore Gold can help to slow down his illness progressing? Or any medication can help? His balance is getting...

My husband was diagnosed with PSP one year ago. Restore Gold can help to slow do...

Fredike89

•4 years ago

2 Replies

is there anything more i can do

Hi im new on here but mom has psp and my dad and i are her main caregivers just this last weekend she quit eating solids she said she cant swallow it no more...

Hi im new on here but mom has psp and my dad and i are her main caregivers just ...

tammylynnbest

•4 years ago

11 Replies

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When is it supposes medication have an effect?

By middle of November 2020 I was diagnosed with a “clinical picture suggestive of PSP”, being freezing of gait (FoG) my claim. This is the end of a long road...

By middle of November 2020 I was diagnosed with a “clinical picture suggestive o...

BluesHealer

•4 years ago

7 Replies

Anti pasychotics

Hi all my husband has CBD age 57 he is confused, unsettled, depressed, agitated, full of angst and worry. Doesnt know me, his son, his home most of the time....

Hi all my husband has CBD age 57 he is confused, unsettled, depressed, agitated,...

Northstar1

•4 years ago

11 Replies

Rigid body

Hi everyone. My mother has PSP late stages. She is in a nursing home and has become rigid in her arms and hands. Can anyone suggest how showering can be done...

Hi everyone. My mother has PSP late stages. She is in a nursing home and has b...

Goroos

•4 years ago

12 Replies

Elf

This is Bill He has CBD amongst other health problems x

fishponds

•4 years ago

8 Replies

Elf’s

This is me and hubby as Christmas Elf’s

fishponds

•4 years ago

13 Replies

Happy Holidays to you all!

I hope everyone is finding slivers of joy through the holidays. Difficult days for many of you I am sure; same here. But, finding joy in the simple things...

I hope everyone is finding slivers of joy through the holidays. Difficult days ...

bazooka111

•4 years ago

17 Replies

Extreme changes in short time

My husband has PSP and dementia, diagnosed 7-8 years ago initially with NPH. He had many falls however in the past week he has fallen 2-3 times a day and...

My husband has PSP and dementia, diagnosed 7-8 years ago initially with NPH. He...

mmardesm

•4 years ago

13 Replies

A Christmas message from the PSPA CEO

As we countdown the last few days before Christmas, everyone at PSPA would like to thank you for your support during 2020. It has been a very difficult year...

As we countdown the last few days before Christmas, everyone at PSPA would like ...

HelenPSPA

Administrator•4 years ago

1 Reply

The Solstice and Quarantine Christmas

Hey, friends. How are you all doing? Please let me know. I'd love to hear from you. I am following the news from the UK - scary mutation, Brexit...

Hey, friends. How are you all doing? Please let me know. I'd love to hear fro...

easterncedar

•4 years ago

23 Replies

PSPA Christmas Opening Times

We will be taking a break over the festive period and closing our office from 24 December to 4 January. Support will still be available during this time if you...

We will be taking a break over the festive period and closing our office from 24...

HelenPSPA

Administrator•4 years ago

Be the first to reply

How bad do visual difficulties get?

My dad has recently been diagnosed with CBD and we are devastated! I honestly thought he had PSP because his symptoms started with visual problems and this...

My dad has recently been diagnosed with CBD and we are devastated! I honestly t...

georgiemoon

•4 years ago

5 Replies

Living with PSP or CBD Guides

If you've recently been diagnosed with PSP or CBD and you're not sure what to expect from your care, get in touch. Our handy 'Living with PSP or CBD' guides...

If you've recently been diagnosed with PSP or CBD and you're not sure what to ex...

HelenPSPA

Administrator•4 years ago

Be the first to reply

Research identifies genetic variant which determines speed of PSP progression

New research has identified a genetic variant which determines how quickly the neurodegenerative condition Progressive Supranuclear Palsy (PSP) progresses,...

New research has identified a genetic variant which determines how quickly the n...

HelenPSPA

Administrator•4 years ago

2 Replies

Right side stiffness

Hi can someone tell me if this is normal? My husband can hardly move his right leg, his right side doesn’t have much movement. He seems to be gritting his...

Hi can someone tell me if this is normal? My husband can hardly move his right l...

Hidden

•4 years ago

16 Replies

Curled in legs?

Hello all, I hope you’re all doing well :) My dad (who has PSP, if you don’t remember my previous posts) has been in a care home for the last few months. Some...

Hello all, I hope you’re all doing well :) My dad (who has PSP, if you don’t rem...

Kellsbelles

•4 years ago

8 Replies

It’s that time of year again

I just thought I would pop in as I haven’t been around for quite a while. I go through spells where it all gets on to of me, so I disappear for a bit, or just...

I just thought I would pop in as I haven’t been around for quite a while. I go ...

Ratcliffe

•4 years ago

15 Replies

PSP & CBD Alert Cards

Last December, we launched our handy Alert Cards which not only contain useful information about your PSP or CBD symptoms, they also have space for you to...

Last December, we launched our handy Alert Cards which not only contain useful i...

HelenPSPA

Administrator•4 years ago

2 Replies

Confession

Some of you have reached out to me and have asked after hubby so I thought I would start a new post. Thank you for asking and for your concern. It’s been...

Some of you have reached out to me and have asked after hubby so I thought I wou...

SewBears

•4 years ago

20 Replies

Can tracheostomy stop aspirating the formula?

Hi, My dad had an aspiration pneumonia a few times due to aspirating the formula that goes through his PEG-J. He is having a tracheostomy op tomorrow to help...

Hi, My dad had an aspiration pneumonia a few times due to aspirating the formula...

Aslin

•4 years ago

2 Replies

Care options uk

Has anyone been referred to a parkinsons nurse for advice or care, fed up by given the run around by my dads gp, who just keeps saying, its a specialist...

Has anyone been referred to a parkinsons nurse for advice or care, fed up by giv...

Planthead

•4 years ago

20 Replies

Running in the Houston Half Marathon

Hi Friends, A quick post to let you know that I will be running the Houston Half Marathon in January in honor of wife and in support of the Alzheimer’s...

Hi Friends, A quick post to let you know that I will be running the Houston Hal...

Beads0122

•4 years ago

3 Replies

My Sister's Brave Decision

I have been part of this group for a few years now and find comfort here...My sister who was diagnosed with CBD 4 years ago is now in Long Term Care and has...

I have been part of this group for a few years now and find comfort here...My si...

Skye04

•4 years ago

14 Replies

I hate CBD

Hi i haven't wrote on here for a long time. My mum was diagnosed with CBD 4 years. For 3 years I was her carer until she had a fall n had to move into a care...

Hi i haven't wrote on here for a long time. My mum was diagnosed with CBD 4 year...

Bobbiejo21

•4 years ago

8 Replies

CBD hallucinations and confusion

Hello my husband has cortico basal degeneration. He is in his 5/6 year and is confused does not know me, his son, our home. He wants to 'go home'. He wants to...

Hello my husband has cortico basal degeneration. He is in his 5/6 year and is co...

Northstar1

•4 years ago

13 Replies

PSPA Trustee wins CurePSP Award

Congratulations to PSPA Trustee, Professor James Rowe, for the Standout Achievement Award he received at the Cure PSP, Inc. 30th Anniversary celebrations on...

Congratulations to PSPA Trustee, Professor James Rowe, for the Standout Achievem...

HelenPSPA

Administrator•4 years ago

2 Replies

My Visitor Yesterday

We saw this yesterday looking out our patio door. It made both of us smile. Hope it is a bright spot in your day.

We saw this yesterday looking out our patio door. It made both of us smile. Ho...

Sebuly14

•4 years ago

4 Replies

Thank you Heady

Dear Heady. I just want to say thank you again for your post of a year ago. I was able to use the poem I wrote about it for one of the carers in the Carers...

Dear Heady. I just want to say thank you again for your post of a year ago. I wa...

AliBee1

•4 years ago

7 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for December 2020

Mums CBD Struggles - Physio

Restore Gold can help patient with PSP?

is there anything more i can do

When is it supposes medication have an effect?

Anti pasychotics

Rigid body

Elf

Elf’s

Happy Holidays to you all!

Extreme changes in short time

A Christmas message from the PSPA CEO

The Solstice and Quarantine Christmas

PSPA Christmas Opening Times

How bad do visual difficulties get?

Living with PSP or CBD Guides

Research identifies genetic variant which determines speed of PSP progression

Right side stiffness

Curled in legs?

It’s that time of year again

PSP & CBD Alert Cards

Confession

Can tracheostomy stop aspirating the formula?

Care options uk

Running in the Houston Half Marathon

My Sister's Brave Decision

I hate CBD

CBD hallucinations and confusion

PSPA Trustee wins CurePSP Award

My Visitor Yesterday

Thank you Heady

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive