Hospice: Rog going into hospice today, wise... - PSP Association

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Hospice

Julieandrog profile image
17 Replies

Rog going into hospice today, wise daughter with me. I needed someone to take over the care i need to be his wife not his nurse, i owe him that.

We need to be able just to hold each other and let other people do the worrying.

Julie

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Julieandrog profile image
Julieandrog
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17 Replies
Satt2015 profile image
Satt2015

Bless you all Julie! I’m sure you’ve made the right decision! Thinking of you and sending much love 💕 x

easterncedar profile image
easterncedar

Wise daughter, wise mother. I am glad to know you will be able to cherish your time with your dear Rog. I know it's hard, but you are surely doing the right thing. Big hugs, sending love, Sarah

Kevin_1 profile image
Kevin_1

Hi Julie

It's a difficult decision, but Liz and I are now back to relating as a couple. Its hard wiping bottoms and whilst being husband and wife too.

We found it a massive improvement.

Wishing you both all of the hugs and kisses you can handle.

Warmly

Kevin

doglington profile image
doglington

Sounds the best in the circumstances.

Big hug from Jean xx

EC and Kevin could not of said it better.

Take care of yourself as well

Dee

Yvonneandgeorge profile image
Yvonneandgeorge

Julie you take care of yourself, sounds like the right thing to do, luck you have a wise daughter. Big hug Yvonne xxxx

Careenh profile image
Careenh

I can't imagine how you must be feeling😢 this way you can have some quality time with rog and let someone else take the strain. Sending love to you both. God bless. ❤

Ratcliffe profile image
Ratcliffe

It's a horrid trade off.... Wanting to be friends, family or partners again and let others do the work, versus desperately wanting to stay at home and as normal as possible, but the workload is incredible.

I considered hospice with David, but only very briefly as i knew what it meant to him to be at home. It took more than was healthy out of me but we managed it, however we didn't really get much quality time.

I take comfort in that he was more happy here, but it nigh on did me in!

Given the things that you have had to go through, some of which has been much more serious than myself and David went through, I think you have made the right decision, and you will be an,e to be partners again.

Big hugs from me, enjoy the time to just be yourselves.

Heady profile image
Heady

Oh Julie, I am so sorry it has come to this. BUT you are definitely 100% right. Rog needs his wife now, that's all. Someone to hold his hand, cuddle him, tell him they love him. Anybody can do the other stuff, but only you can be his wife. I only had three days at the end, but I will always treasure them. Don't waste your precious time feeling guilty, enjoy loving your man again and let him hold his woman.

Sending big hug and much love.

Lots of love

Anne

Marie_14 profile image
Marie_14

Dear Julie, you are doing the right thing, hard as it is. None of us want to go through this. The consolation you will have is that Rog will be made to feel loved again, and have his wife back. When he goes you will have some good memories. That will help you through the next stage.

I am so glad your daughter is supporting you. God bless you all. I will say a prayer for you all.

Hugs and much love to you.

Marie x

catherine_h profile image
catherine_h

Julie, u are doing and following the path that works best for all of you. Yourself and Rog will get to experience the pure pleasure of each other's presence, smell, touch, sounds as man and wife, breathe them in as they will become precious memories. Sending you strength and calmness at this time. Xx

abirke profile image
abirke

Good decision, Julie. I support both you and Roger. Give him a wonderful hug from me and well even Bruce as his memory and the wonderful thoughts of hugging him are still with me!

I believe your daughter to be very wise and supportive and loving of her parents....well done mom and dad creating a child who has this strength and love

((HUGS))

Andrea

I am sure you made the best decision for your situation. I made a similar one in Sept. It was becoming very hard to juggle dad's increasing needs and my duties as a husband/father. In the end after many talks we decided to put dad in nursing home and go back to a father/son relationship instead of patient / caregiver.

Ron

Tippyleaf profile image
Tippyleaf

So hard feel for you. But the Hospice staff are experts and you can simply be together now. Take care as you enter another era of PSP.

Sending love and hugs

Tippy

Spiralsparkle profile image
Spiralsparkle

Thinking of you all.

May you both find love and peace in this time together again as husband and wife.

Xxx

41273416a profile image
41273416a

I am so sorry you will undoubtedly be moving into a quite stressful time for everyone. I also feel, and agree with you 200%, that it is time for you to be his wife, and not the caregiver, too. Thinking of and praying for you all, but especialy you two, Rog and Julie. Love, Mary B.

Katiebow profile image
Katiebow

Enjoy being a wife Julie, you deserve it. Wish our hospice did respite but they stopped a while ago, I would feel so much more comfortable leaving him in a place get knows and trusts.

Hold Rog tight and have a little time out.

Love and hugs

Kate xxx

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