Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for December 2017

Hoping you have a good Christmas

Want to wish you all near and far a Wonderful Christmas. I also want you all to know that you all have been my savior in this journey. Love and hugs Deidre...

Want to wish you all near and far a Wonderful Christmas. I also want you all to...

•6 years ago

Waiting for an ambulance

I can’t believe this is happening, George’s chest is bubbling, very agitated phoned 111 they are going to send an ambulance, told the doctor I didn’t want to...

I can’t believe this is happening, George’s chest is bubbling, very agitated pho...

Yvonneandgeorge

•6 years ago

Triple Whammy!!!

Well here I go, into my triple whammy. Birthday tomorrow, first Christmas, then the anniversary of Steve dying. Thank goodness for my family. I have been...

Well here I go, into my triple whammy. Birthday tomorrow, first Christmas, then ...

•6 years ago

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Difficulty swallowing pills

My father has great diffulty swallowing his Stalevo pills! Does anyone have have any tips on this? Don’t know why we don’t have this drug in liquid form?!,!...

My father has great diffulty swallowing his Stalevo pills! Does anyone have have...

•6 years ago

A "Newby" Checks In

Merry Christmas, Everybody!🎄 My name is Kat. My husband, David, was diagnosed w/Atypical Parkinsonism in May 2013, then w/PSP in Dec 2015. He is 61. What a...

Merry Christmas, Everybody!🎄 My name is Kat. My husband, David, was diagnosed w...

•6 years ago

Missing Him!

I finally had my husbands Memorial Service last Sunday. He passed on November 25th. Christmas Day will be one month and I still feel like I'm in shock, I keep...

I finally had my husbands Memorial Service last Sunday. He passed on November 25...

•6 years ago

A wheelchair is inevitable

Today was a hard day. We have had a ramp built for the house in town. But we must paint. Well that means I must paint it. The ramp is in 4 modules and was...

Today was a hard day. We have had a ramp built for the house in town. But we mu...

•6 years ago

Update on Prof Morris appointment

I apologise for not writing sooner. We've had a mad week. Phil had his appointment with Prof Morris last monday. We went armed with lots of questions and were...

I apologise for not writing sooner. We've had a mad week. Phil had his appointme...

•6 years ago

does having a PEG really mean less quality of life

Hey guys hope you all are coping ok so dads swallowing is getting real bad, its come to that time where we are thinking about a PEG, so I came on here to see...

Hey guys hope you all are coping ok so dads swallowing is getting real bad, its ...

•6 years ago

Diazepam

Has anyone been prescribed valium/diazepam for stiffness/rigidity in arm/hand? Levidopa did nothing but I am concerned about potential side effects. I'm open...

Has anyone been prescribed valium/diazepam for stiffness/rigidity in arm/hand? ...

•6 years ago

Season greetings

Kathy and i would like to wish all the carers and patients a merry Christmas and a great New year,hang in there,give plenty of love and support to your love...

Kathy and i would like to wish all the carers and patients a merry Christmas and...

•6 years ago

Season greetings

Kathy and i would like to wish all the carers and patients a merry Christmas and a great New year,hang in there,give plenty of love and support to your love...

Kathy and i would like to wish all the carers and patients a merry Christmas and...

•6 years ago

Another star in the sky

Rog decided yesterday morning at 0230 to let go, i had been sleeping on a bed by his bed for the week, i fell asleep and the nurse woke me gently " he's gone...

Rog decided yesterday morning at 0230 to let go, i had been sleeping on a bed by...

•6 years ago

Were still here

Hope all my friends well are doing I've been locked out for months. Aunt Bev is well and says Merry Christmas to all.

Hope all my friends well are doing I've been locked out for months. Aunt Bev is...

•6 years ago

Dad’s funeral

We held Dad’s Funeral this Tuesday 19th December 2017, he had died on the 4th and he was 84. Dad had been suffering badly the last few weeks, speech almost...

We held Dad’s Funeral this Tuesday 19th December 2017, he had died on the 4th an...

•6 years ago

Sleepless Night and Day, the Plight of Progressive Supranuclear Palsy

I came across this article/abstract. It helped me understand my brother a little more. I hope it will do the same for you and your loved-one. Peace and Merry...

I came across this article/abstract. It helped me understand my brother a little...

•6 years ago

So sad

John went into the hospice 10 days ago to see if they could help with his excessive saliva. I had a break away. When I went to pick him up on Monday he’d had a...

John went into the hospice 10 days ago to see if they could help with his excess...

•6 years ago

I need advice

How can I help my 60 yr. old beloved sister cope with PSP? She desperately wants me to tell her that she can get better with diet, herbal medicines, etc. She...

How can I help my 60 yr. old beloved sister cope with PSP? She desperately want...

•6 years ago

Holidays

Unfortunately my MIL lives in a different state than I do. Her degeneration has reached the point where she can no longer move on her own nor even talk. Food...

Unfortunately my MIL lives in a different state than I do. Her degeneration has ...

•6 years ago

Need advice

Wanting to get a hospital bed for my dad with PSP. Any suggestions on type? He is having hard time getting out of his double bed. Thinking hospital bed will...

Wanting to get a hospital bed for my dad with PSP. Any suggestions on type? He i...

•6 years ago

Goodbye to my darling husband George

I have never posted much on here but feel that everyone here will understand me,after my last post where George was very sleepy he gradually got worse,doctors...

I have never posted much on here but feel that everyone here will understand me,...

•6 years ago

New symptom

Terry is having problems with his legs tonight, cannot stand to have the duvet on him, says it puts pressure on them! is this something that happens with psp?...

Terry is having problems with his legs tonight, cannot stand to have the duvet o...

•6 years ago

Death Certificate

Progressive Supranuclea Palsy was today recorded on my hubby’s Death Certificate. The Registra had never heard of such an illness let alone record it. She...

Progressive Supranuclea Palsy was today recorded on my hubby’s Death Certificate...

•6 years ago

Life without PSP

My wife/partner/love of my life, slipped away on 18 November 2017. Four weeks ago last Saturday. To say I am devastated/lost/upset in an understatement. I feel...

My wife/partner/love of my life, slipped away on 18 November 2017. Four weeks ag...

•6 years ago

Not scared anymore

Rog came into the hospice 5 days ago, my aim was to keep him at home but i needed to be his wife not his nurse. I have a bed by his side and all have to do his...

Rog came into the hospice 5 days ago, my aim was to keep him at home but i neede...

•6 years ago

Mirrors to help with PSP

Good day Out of interest are there mirrors that help someone to see EXACTLY what they need to see who have PSP? Instead of seeing the reverse? Thanks

Good day Out of interest are there mirrors that help someone to see EXACTLY what...

•6 years ago

First time user

Hi everyone, I am a newbie at this.... my Mother was diagnosed with CBD in June this year and is now living with me in a granny annex I have created for her. I...

Hi everyone, I am a newbie at this.... my Mother was diagnosed with CBD in June ...

•6 years ago

My wonderful husband

Hi, sorry folks, I am losing my mind. I buried Les on Friday not Led. Love Pat x

Hi, sorry folks, I am losing my mind. I buried Les on Friday not Led. Love Pat ...

•6 years ago

Not much longer

My husband was hospitalized on Tuesday after a 3 month follow up with his neurologist. She could see that I was burned out too. After two days of not much...

My husband was hospitalized on Tuesday after a 3 month follow up with his neurol...

•6 years ago

Amantidine for PSP tremors

Hi everyone Thought I would share some good news. this may not work for everyone but here goes. Geoff had bad tremors in legs and arms. He was on Madopar,...

Hi everyone Thought I would share some good news. this may not work for everyone...

•6 years ago

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