Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for March 2017

Catheter

Thank you all very much for the advice. Nurse coming next week to show us. It will mean Pat has a bit of dignity again and I get a proper nights sleep.

Thank you all very much for the advice. Nurse coming next week to show us. It wi...

•8 years ago

Breathing issues and shutting down

Charles is having severe breathing issues. Morphine at night and so tired. Too tired to eat as well. Shutting down and I'm terrified. I want to be with him...

Charles is having severe breathing issues. Morphine at night and so tired. Too...

•8 years ago

A little light in the darkness

Amidst all the darkness and anxiety there can always be a little light to raise the spirits can't there ? Today I was driving down one of our Devon...

Amidst all the darkness and anxiety there can always be a little light to rai...

•8 years ago

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My husband was diagnosed with PSP in Nov.

I live in the US, but yours is the first group I've found that allowed me to post in conversations and that's what I need. I am hyper vigilant with him....

I live in the US, but yours is the first group I've found that allowed me to pos...

•8 years ago

Catheter

Not posted for a while. Hubbys eyesight so bad cannot see to p in the toilet. Feel so guilty, gave him an ultimatum - sit down to p or get a catheter. Poor...

Not posted for a while. Hubbys eyesight so bad cannot see to p in the toilet. Fe...

•8 years ago

Tracheotomy?

Hello, My mom has PSP stage 4, with peg installed nov 2016. Last Wednesday she was hospitalized with aspirated pneumonia. They ventilated her and removed...

Hello, My mom has PSP stage 4, with peg installed nov 2016. Last Wednesday she ...

•8 years ago

To all sons & daughters of PSP sufferers

As you will know from my Dad, Georgepa's post we have had an exceptionally horrible couple of weeks as my wonderful Mum V enters what appears to be the final...

As you will know from my Dad, Georgepa's post we have had an exceptionally horri...

•8 years ago

40th Day

Tomorrow marks the 40th day since my mom left this place due to PSP. I've posted here 7 months ago asking for help on how not to worsen her condition and I am...

Tomorrow marks the 40th day since my mom left this place due to PSP. I've poste...

•8 years ago

Diagnosis

Could this be misdiagnosed as multi infart dementia which late mother had severely after/with polymyalgia rheumatica [ GCA?} I too have similar symptons...

Could this be misdiagnosed as multi infart dementia which late mother had severe...

•8 years ago

Securing PEG tube

One of the health professionals showed me how to secure my husband's PEG tube securely by looping it back on itself and securing it in that position by using...

One of the health professionals showed me how to secure my husband's PEG tube se...

•8 years ago

Is PSP usually initially diagnosed as Parkinson's Disease?

My husband was diagnosed with Parkinson's 8 yrs ago and with PSP 1 yr ago.My question is-was it PSP all along or did the Parkinsons evolve into PSP. Do most...

My husband was diagnosed with Parkinson's 8 yrs ago and with PSP 1 yr ago.My que...

•8 years ago

Looking after Dad

Hi, I've just joined this forum, my Dad has recently been diagnosed with PSP. It's all new to me (us) & as his full-time carer I'm guessing it's going to have...

Hi, I've just joined this forum, my Dad has recently been diagnosed with PSP. It...

•8 years ago

Home at last

Gosh what a mad 24 hours. Got a phone call yesterday from the carers (didn't know we had any) to say DC was coming home! Hospital didn't bother to let me...

Gosh what a mad 24 hours. Got a phone call yesterday from the carers (didn't kno...

•8 years ago

Roller coaster

Well it's been a while since I last posted , V was in the hospice a couple of weeks ago and stayed a week . We had a very difficult weekend with swallowing...

Well it's been a while since I last posted , V was in the hospice a couple of we...

•8 years ago

Everything good at this end

Just thought to write to say... Spring gardening is in full swing... Liz came out and sat in the sun whilst I worked away... She waits until I finish a job...

Just thought to write to say... Spring gardening is in full swing... Liz came ou...

•8 years ago

Husband Recently diagnosed with PSP aged 41!

Hi everyone. I came across the PSP Association online. I have never written on any kind of forum before so this is very new to me. I wanted to share that my...

Hi everyone. I came across the PSP Association online. I have never written on a...

•8 years ago

Sad News regarding a Great Friend

Hi there everyone but especially ec!!!! Well I have just got off the phone with Stella, peterjones's " wife, who has advised me that very sadly, pj or Reg has...

Hi there everyone but especially ec!!!! Well I have just got off the phone with ...

•8 years ago

Repeat Aspiration Pneumonia

Although I realize every case is different my question is if the timing of the second bout is affected by the severity of the first? I have had PSP for three...

Although I realize every case is different my question is if the timing of the s...

•8 years ago

New to a PEG

I follow this community and am very impressed by the support you all give to each other. It inspired me to push for a community especially for Multiple...

I follow this community and am very impressed by the support you all give to eac...

•8 years ago

Breathing issues

Hi. My dad is in the early stages of PSP and over recent months he has had breathing issues. He can be sat watching TV relaxing and the difficulty starts. He...

Hi. My dad is in the early stages of PSP and over recent months he has had breat...

•8 years ago

Good and bad

Good news yesterday we have been granted CHC for DC, the bad news is the chap came today minus the hoist arrh none in stock! The alarm they sent wasn't...

Good news yesterday we have been granted CHC for DC, the bad news is the chap ca...

•8 years ago

Spa

Thank you all so much for your kind messages. I had a lovely few hours "me time". Ready to take on my caring roll again. Hugs to you all. Tillyhugs x🤗

Thank you all so much for your kind messages. I had a lovely few hours "me time"...

•8 years ago

HERE in the UK

WELL IN CASE ANYONE THINKS I HAVE DIED I HAVE not !!! WE ARRIVED BACK IN THE UK ON 13 JAN AAND ENT TO WORCESTER TO SPEND A WEEK WITHMY COUSIN MARL AS...

WELL IN CASE ANYONE THINKS I HAVE DIED I HAVE not !!! WE ARRIVED BACK IN TH...

•8 years ago

Spa

Well today I am being treated to a spa day in Chester it is a gift from my best friend's son and daughter in law for both of us. How sweet people are. It is...

Well today I am being treated to a spa day in Chester it is a gift from my best ...

•8 years ago

Angel...

Mom gained her wings Monday evening...March 20th the first day of Spring. A day of rebirth. All I know is that I miss her and I'm selfish and I just want her...

Mom gained her wings Monday evening...March 20th the first day of Spring. A day ...

•8 years ago

George

Well today started off ok, but this afternoon George was lifting himself nearly out of the chair in terrible pain, just like the pain he had a couple of weeks...

Well today started off ok, but this afternoon George was lifting himself nearly ...

Yvonneandgeorge

•8 years ago

CHC DST Meeting tomorrow

Hi all I am feeling quite anxious about this meeting tomorrow. I have printed out the forms and also the PSPAssociation support forms for this but I am anxious...

Hi all I am feeling quite anxious about this meeting tomorrow. I have printed ou...

•8 years ago

Bash

Poor Dc got himself out of bed in hospital and went crashing to the floor. He now has a brilliant "egg" on his head and a smashing bruise. Still waiting for...

Poor Dc got himself out of bed in hospital and went crashing to the floor. He no...

•8 years ago

Mom's final journey has begun...

I hate saying these words...my Mom is dying. Wednesday she was fine (her fine) hospice nurse had been here for regular visit and all was normal. Friday morning...

I hate saying these words...my Mom is dying. Wednesday she was fine (her fine) h...

•8 years ago

Only tube feedings

For those who have been following my family's journey...yes, my father is still in the facility (despite my mom's guilt of keeping him there). For the last...

For those who have been following my family's journey...yes, my father is still ...

•8 years ago

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