Posts - PSP Association | HealthUnlocked

PSP Association

9,232 members • 11,335 posts

All posts for November 2014

Not eating

Has anyone any ideas how I can get my husband to eat. I have tried all sorts but he just shuts his teeth and I can't get a spoon in and he his drinking through...

Has anyone any ideas how I can get my husband to eat. I have tried all sorts but...

•9 years ago

Colin won!

We went to church this morning. It was an all age service so the children stayed in with us throughout. It is a very informal Baptist church and the children...

We went to church this morning. It was an all age service so the children staye...

•9 years ago

Can anyone see the letter I posted

Please let me know I am about to pull my hair out getting it over here for others

Please let me know I am about to pull my hair out getting it over here for other...

•9 years ago

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letter

ToGeorge Nov 28 at 10:29 AM Nov 26 at 9:14 AM CurePSP Needs Your Help to Educate the FDA The US Food and Drug Administration (FDA) needs to be educated...

ToGeorge Nov 28 at 10:29 AM Nov 26 at 9:14 AM CurePSP Needs Your Help to Educ...

•9 years ago

cars

Chris was diagnosed a year ago and I have been focusing on practical changes [downstairs wet room, grab rails ] etc. He hasn't driven for a year and we still...

Chris was diagnosed a year ago and I have been focusing on practical changes [do...

•9 years ago

Saturday night

How do you spend your Saturday night. I settle down with a glass of wine and try and catch up with the programmes that I recorded during the week. Funny how...

How do you spend your Saturday night. I settle down with a glass of wine and try...

•9 years ago

FDA

could someone help me post a letter on this site it is from the PSP foundation asking for cargivers family anyone who as taken part in being or taking care of...

could someone help me post a letter on this site it is from the PSP foundation ...

•9 years ago

Not again

Do I swear and stamp my feet or do I say at least we lasted five weeks without antibiotics. Yes you've guessed it Brian has got another chest infection. ....

Do I swear and stamp my feet or do I say at least we lasted five weeks without a...

•9 years ago

USA Thanksgiving..Horrible horrible horrible

I really don't want to go to this Thanksgiving dinner thing. My husband (PSP) Bob is having a toilet crisis today which means, mess, confusion, no clothes,...

I really don't want to go to this Thanksgiving dinner thing. My husband (PSP) Bo...

•9 years ago

Operation Georgepa

Hernia today gone tomorrow - sorry bad joke .Seems very odd to be on the opposite side of the caring fence . People keep asking if you are alright - very...

Hernia today gone tomorrow - sorry bad joke .Seems very odd to be on the opposit...

•9 years ago

Saliva

Aunt Bev wants me to ask if anyones saliva get ropey and thick by ropey I think she mean stringy she has been coughing a lot to day on her own saliva

Aunt Bev wants me to ask if anyones saliva get ropey and thick by ropey I think ...

•9 years ago

FDA

I need some help I have and old computer and I just got a letter that asked me to write a letter to explain the OK STOP KRYSTE. Can someone send me their...

I need some help I have and old computer and I just got a letter that asked me t...

•9 years ago

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UTI

Just got Aunt Bev out of the hospital with another UTI does anyone else get them and if so what is suggested to you , besides cranberry juice I hope everyone...

Just got Aunt Bev out of the hospital with another UTI does anyone else get them...

•9 years ago

online party for dec 6th( sat) pm at 3pm

plz put the date on your calendars aND jusT log in at about 3 pm on that date! lol jILLL :-)

plz put the date on your calendars aND jusT log in at about 3 pm on that date!...

•9 years ago

The house move..the saga..the second one in my married life, the decluttering, argggg

Well, I've been up in the loft and an unbelievable amount of memories, rubbish, paperwork, it's all to be sorted, can you all come over to help, I'll supply...

Well, I've been up in the loft and an unbelievable amount of memories, rubbish, ...

•9 years ago

On Nov. 16th

My husband died last week after a 10 year battle with PSP. It is bittersweet to say good bye to a handsome gentle kind man , my mate of 46 years. He is in...

My husband died last week after a 10 year battle with PSP. It is bittersweet to...

•9 years ago

First frost

I woke this morning and looked out over our sugar dusted garden . Across the road the blind white windows of the parked cars stared back impassively .As the...

I woke this morning and looked out over our sugar dusted garden . Across the roa...

•9 years ago

"Is there anything we can do to help" they asked.

On Saturday evening I invited 3 couples round for a takeaway Indian meal. Every Saturday evening is the same. I sit here with my darling husband who rarely...

On Saturday evening I invited 3 couples round for a takeaway Indian meal. Every...

•9 years ago

Does anyone recover?

Has anyone ever heard of anyone who has recovered from PSP?

Has anyone ever heard of anyone who has recovered from PSP?

•9 years ago

NEW SYMPTOM

First thing I would like to say is that I have a very stiff my neck Now on my right side my shoulder feels like a million ants are crawling on my shoulder then...

First thing I would like to say is that I have a very stiff my neck Now on my ri...

•9 years ago

To be trained or not

Why do people think that I'm lucky because I'm trained carer when I'm looking after Brian. Ok yes I can spot problems as they arise but I can also see things...

Why do people think that I'm lucky because I'm trained carer when I'm looking af...

•9 years ago

What a weekend. Chris birthday. Off to visit sister. Nightmare journey. He said he didn't need Loo. Then [ traffic jam M25] desperate to go.

Said would I stop whilst he "hopped out" and peed at the roadside ! He hasn't hopped out for ages!! So I gave him a bottle and he is clumsy so the car was very...

Said would I stop whilst he "hopped out" and peed at the roadside ! He hasn't ho...

•9 years ago

And so the denial continues..

Morning All. Last month it was a trip to the Antartica, today I hear Dad has applied for a job. He's sent me the advert and apparently has been offered an...

Morning All. Last month it was a trip to the Antartica, today I hear Dad has app...

•9 years ago

Cheer up Georgepa

This might help, The Pocklington PSP Support Group having a scream last Saturday. Peter.

This might help, The Pocklington PSP Support Group having a scream last Saturday...

•9 years ago

What a day

Hideous day-urrrgh !!!!!!!!!!

Hideous day-urrrgh !!!!!!!!!!

•9 years ago

No communication

My sister 81 has had PSP for about 5 years can't walk or feed herself doubly incontinent and eyes closed most of the time, so difficult with no communication...

My sister 81 has had PSP for about 5 years can't walk or feed herself doubly inc...

•9 years ago

Please look after Georgepa

Lovely people, I am lucky enough to be going away for a break with my husband so I am entrusting you with keeping my Dad, Georgepa sane. If he needs to scream,...

Lovely people, I am lucky enough to be going away for a break with my husband so...

•9 years ago

Difficulty breathing. Scans and tests leave doctors clueless. Antibiotics/steroids don't help

My friend had been in the hospital for some time now having difficulty breathing (needs oxygen mask). He started coughing a month or so ago. He does not smoke,...

My friend had been in the hospital for some time now having difficulty breathing...

•9 years ago

Bliss

What bliss -on my back in the dentist for half an hour having root canal treatment-no beck and call no responsibility - next week I am having a hernia...

What bliss -on my back in the dentist for half an hour having root canal treatme...

•9 years ago

Thank you!

Thank you to all you lovely people who took the time to reply in your very busy and stressful lives. I take on board all you say. I will continue to visit my...

Thank you to all you lovely people who took the time to reply in your very busy ...

•9 years ago

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