Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for January 2014

My husband has PSP. I called in Hospice in early Dec. They have been very helpful except my husband does not complain of pain but I feel

he has pain but won't tell me. They prescribed a cherry flavor liquid of acetaminophen He developed severe diarrhea. when I stopped giving him this liquid,...

he has pain but won't tell me. They prescribed a cherry flavor liquid of acetam...

•11 years ago

Dizziness? My wife has no help for that and its the biggest problem.

Has anyone had any positive results in trying to help dizziness? My wife has no help for that and its the biggest problem.

Has anyone had any positive results in trying to help dizziness? My wife has no ...

•11 years ago

MY TRIP TO THE NERO.

My neck has been a real pain. So he says What I need is a couple of shots of Botox in my neck. After getting home my neck is better but my dizziness is now...

My neck has been a real pain. So he says What I need is a couple of shots of Bot...

•11 years ago

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My wife has PSP. She always wanted to take a river cruise in France. We did that three years ago when balance was her only problem with PSP early stages. I...

My wife has PSP. She always wanted to take a river cruise in France. We did tha...

•11 years ago

My dad has psp,ive been at the hospital all day with him,his jaw locked and hé couldnt open his mouth,has this happened to anyone.

•11 years ago

Wet Floors or Slippery Surfaces. How did that affect PSP in the early stages?

I hope I'm not asking too many questions. I promise not to abuse this site. I want to ask all of you about the early PSP and how flooring affected your PSP...

I hope I'm not asking too many questions. I promise not to abuse this site. I wa...

•11 years ago

Not sure what is happening?

Within the last 3 weeks since my husbands neurologist told him to stop taking cordoba/ lopadopa (not sure how to spell it) he seems to be more spacey and weak....

Within the last 3 weeks since my husbands neurologist told him to stop taking co...

•11 years ago

How to get a wet room in bungalow after a stroke from council when I pay full rent not housing benefit

•11 years ago

Has anyone any advice on a PEG? My husband is aspirating on all food and drink and has been for the last 18 months and 4 chest infections.

He has been told he would not be having any food at all. He is not losing weight as he eats well, albeit coughing during eating and drinking. A big decision...

He has been told he would not be having any food at all. He is not losing weigh...

•11 years ago

thank you all for your condulances

I would like to thank all of you for your kind condulances over this forum All through my wifes illness I found this forum a great help it kept us going until...

I would like to thank all of you for your kind condulances over this forum All t...

•11 years ago

How do keep our sanity when the poor person who has PSP is so obsessional about everything. How do we keep our sanity after the 10th time

Of taking that person to the toilet fails to get results despite every trick in the book to help with constipation. How do we keep our sanity when for the...

Of taking that person to the toilet fails to get results despite every trick in...

dorothy-thompson

•11 years ago

Thankful for a Hoyer lift.

Three months ago Hospice dropped off a Hoyer lift and said "eventually you will need it". First time was last week and I called our "sitter" for Sharyn for...

Three months ago Hospice dropped off a Hoyer lift and said "eventually you will ...

•11 years ago

Can a person with PSP be near a kid with Chickenpox?

Hi, Does anyone known if a person with PSP can be near a child who has chickenpox. The person with PSP has had chickenpox in the past. It's my dad who has PSP...

Hi, Does anyone known if a person with PSP can be near a child who has chickenpo...

•11 years ago

Rigidity of neck and limbs, any treatment?

Until recently my wife's neck was so stiff that her chin seemed permanently pinned to her chest. Fortunately she had no pain. A weak dose of botox on each side...

Until recently my wife's neck was so stiff that her chin seemed permanently pinn...

•11 years ago

Need to vent

My husband has had PSP for probably around 5 years now. I am 60 and he is 74. He recently had a Foley catheter put in as his bladder wouldn't empty completely....

My husband has had PSP for probably around 5 years now. I am 60 and he is 74. He...

•11 years ago

Rapid change

Mum getting worse by the day last week she could shuffle to the toilet with a frame and now she can't stand , hasn't been to toilet for four days for bowel...

Mum getting worse by the day last week she could shuffle to the toilet with a fr...

•11 years ago

Sadly my wife passed away at 7pm tonight 17th Jan

She died peacefully in her sleep she has now got rid of her horrible disease CBD for the last few days she could only have ice cream mixed with cream but even...

She died peacefully in her sleep she has now got rid of her horrible disease CBD...

•11 years ago

Hi, My mom was diagnosed with PSP a few months ago, but due to previous clinical depression and extreme anxiety it likely went undiagnosed..

for quite a while. Over the past couple months she would make a smacking motion with her mouth which seemed to indicate dry mouth. She also would sometime...

for quite a while. Over the past couple months she would make a smacking motion...

•11 years ago

SebCoe - Francis Crick Institute response

Have today received a reply about sending everyone's comments: " Dear Mo " I work closely with Seb Coe and am also a trustee of his Foundation. I just...

Have today received a reply about sending everyone's comments: " Dear Mo " I ...

•11 years ago

What are the results" Lahey Clinic in Massachusetts" .

I currently take coQ10 Aprox. 600- 1200 mg. per day. it seems to help cause its terrible the next day if you don't take any.

I currently take coQ10 Aprox. 600- 1200 mg. per day. it seems to help cause its ...

•11 years ago

Good morning, can anyone share insight regarding their vision? My moms eyesight is so bad - she cannot identify food on her dinner plate.

•11 years ago

How long does the ability for a PSP patient stand on their legs last?

My wife being able to stand although she can't walk is a huge help in moving her. I dread the day she can no longer help by standing. At what point does that...

My wife being able to stand although she can't walk is a huge help in moving her...

•11 years ago

Clothing for PSP patients

My wife has PSP and currently wears "normal" clothes (pants, t-shirts, female tops, house dresses. She is using Depends. I can see the day coming when I will...

My wife has PSP and currently wears "normal" clothes (pants, t-shirts, female to...

•11 years ago

Is fatigue a major issue for your PSP patient?

I'm finding more and more that fatigue is a major, major issue with my wife who has PSP. We had tickets to a concert at 2pm today. That is normally her nap...

I'm finding more and more that fatigue is a major, major issue with my wife who ...

•11 years ago

Panic attacks

My mum has just started to have panick attacks now during the night it's easier to get her out of bed and put her in the chair she gets in a right state is...

My mum has just started to have panick attacks now during the night it's easier ...

•11 years ago

No more meds for my husband!!!

I usually don't respond, I just read everyones posts but I would like to say a big Thank You to all that have talked about the medication Dr's put patients on....

I usually don't respond, I just read everyones posts but I would like to say a b...

•11 years ago

DOES ANYONE KNOW IF THERE IS ANYTHING THAT CAN BE DONE TO ALLEVEATE DOUBLE VISION

ITS DRIVING ME MAD = I SIT AND WATCH THE TELE WITH A PATCH OVER ONE EYE BUT IT IS RATHER UNCOMOIRTABLE !!!

ITS DRIVING ME MAD = I SIT AND WATCH THE TELE WITH A PATCH OVER ONE EYE BUT IT I...

•11 years ago

Is am searching online for a bathing robe for my husband after his shower. I did see one once, it was sort of like a cape but went over

Head and could be fixed from behind and it was about £32 UK. It looked a much better alternative to bath towels. Does anyone know of it or something...

Head and could be fixed from behind and it was about £32 UK. It looked a much ...

dorothy-thompson

•11 years ago

Knowing the symptoms of PSP, what do you find interesting about these symptoms of clinical depression?

This is a description of clinical depression from the Mayo Clinic's literature. If someone was diagnosed with PSP, would they assume they had depression from...

This is a description of clinical depression from the Mayo Clinic's literature. ...

•11 years ago

hi guys I hope i`m not speaking to soon ,my husband is in the last stages of psp was diagnosed in 2010. he is high care,and one of the many

symptoms he has is he groans all most every day and night,I was reading about the benefit of onions and the flu , so I put an onion cut at both ends in his...

symptoms he has is he groans all most every day and night,I was reading about th...

•11 years ago

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