Posts - PSP Association | HealthUnlocked

PSP Association

9,252 members • 11,348 posts

All posts for August 2018

First severe choking incedent

Hi everyone. I was overwhelmed with the support you all gave me with my first post, and here I am again for advice. Chris has had lots of coughing fits...

Hi everyone. I was overwhelmed with the support you all gave me with my first po...

•6 years ago

Follow up on drinking cups

I hope this gets to everyone who has replied so far to my question about drinking cups....THANKS for your answers. Big help. Also wanted to mention a plastic...

I hope this gets to everyone who has replied so far to my question about drinkin...

Greenkerrycounty

•6 years ago

Another holiday booked.............

Hi all, It is sometime since I posted and good things have happened. My youngest son got married, it was a great day with about 80 guests. My sister came over...

Hi all, It is sometime since I posted and good things have happened. My youngest...

•6 years ago

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Little update on dad - Pregabalin

Well, this is a nice update, for a change. I finally pushed harder about my suspicions that his shoulder pain was related to nerve damage, and the doctor...

Well, this is a nice update, for a change. I finally pushed harder about my susp...

•6 years ago

horrified at the stories of lack of Medical staff's understanding

just joined today. My first thought after reading the frustration felt at the lack of knowledge/understanding, is to print these pages off & hand them to your...

just joined today. My first thought after reading the frustration felt at the la...

•6 years ago

CBD Pops

My FIL (diagnosed with CBD) yesterday decided he wanted to hang a rather heavy picture in his bungalow. So I duly arrived with drill a little apprehensive. But...

My FIL (diagnosed with CBD) yesterday decided he wanted to hang a rather heavy p...

•6 years ago

Drinking cups

Does anyone have a suggestion for a cup for water that my husband could use at night when we are in bed? He cannot suck on a straw or on one of those...

Does anyone have a suggestion for a cup for water that my husband could use at n...

Greenkerrycounty

•6 years ago

The last puzzle piece.

Haven't written in weeks but feel the need to share with you. I received the final puzzle piece so much earlier than I was told. It was suggested that brain...

Haven't written in weeks but feel the need to share with you. I received the fin...

•6 years ago

The last puzzle piece.

Haven't written in weeks but feel the need to share with you. I received the final puzzle piece so much earlier than I was told. It was suggested that brain...

Haven't written in weeks but feel the need to share with you. I received the fin...

•6 years ago

The last puzzle piece.

Haven't written in weeks but feel the need to share with you. I received the final puzzle piece so much earlier than I was told. It was suggested that brain...

Haven't written in weeks but feel the need to share with you. I received the fin...

•6 years ago

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Hiring a caregiver is more about luck than anything else; let me prove it.

You want to hire a caregiver, but you have only communicated a few times and you expect that caregiver to know how to care for your loved one who has PSP. I...

You want to hire a caregiver, but you have only communicated a few times and you...

•6 years ago

Be the first to reply

Surgery questions

Last night was our 3rd ER trip this month from falls. First two only bruises ( hip and back) last night was a hand injury. He's transitioning to using his...

Last night was our 3rd ER trip this month from falls. First two only bruises ( h...

•6 years ago

First anniversary

First anniversary of being on this site today. Joined a year ago after some lurking. So glad I did. Nice to have a place to come to where everyone knows what...

First anniversary of being on this site today. Joined a year ago after some lurk...

•6 years ago

PEG questions

Hopefully after my last few posts many of you will be aware of my mums situation. The consultant is due to visit between 9-11 Clearly I want to know about the...

Hopefully after my last few posts many of you will be aware of my mums situation...

•6 years ago

Life after mum.....

Hello all you lovely people. It's been nearly 7 weeks since my beautiful momma passed away from PSP. I have been reading all your posts. Day to day life is...

Hello all you lovely people. It's been nearly 7 weeks since my beautiful momma ...

•6 years ago

CRYPTOCURRENCY

Hi Crypto 14 I too am interested in crypto currencies. Iam trying to leave my grand kids and Son and daughter in law money for university and living. I live in...

Hi Crypto 14 I too am interested in crypto currencies. Iam trying to leave my gr...

•6 years ago

Incontinent

Hi to all carers,my Kathy has bowel problems where her bowel movements are bogged up she's had a x-ray which shows a blockage ,she has movement which is messy...

Hi to all carers,my Kathy has bowel problems where her bowel movements are bogge...

•6 years ago

Susie, time line for PSP and CoQ10

My primary physician was concerned about my balance issues. She ordered an MRI in Nov 2017. I met with a neurologist in Dec 2017 and was told I had...

My primary physician was concerned about my balance issues. She ordered an MRI i...

•6 years ago

Urgent advice on fitting a PEG

Mum has just been given the news that she will need to have a PEG Fitted any advice or information would be greatly appreciated thank you for your time...

Mum has just been given the news that she will need to have a PEG Fitted any adv...

•6 years ago

Advice for renovating a bathroom

Hi, this is my first post but I've reading and learning from all of you since the beginning of this year. I was going to do a full intro and background but now...

Hi, this is my first post but I've reading and learning from all of you since th...

•6 years ago

Body temperature

Hi all, I remember reading a few times where patients have a temperature but it does need t read as such. Mum currently in hospital and she is reporting she...

Hi all, I remember reading a few times where patients have a temperature but it ...

•6 years ago

Disabled Facilities Grants UK

This is a grant for home alterations. I think its been mentioned here before. https://www.gov.uk/disabled-facilities-grants

This is a grant for home alterations. I think its been mentioned here before. ...

•6 years ago

Nose tube for feeding

Mum just had one fitted and really uncomfortable. Can anyone share their experience of this please x

Mum just had one fitted and really uncomfortable. Can anyone share their experie...

•6 years ago

Day didn't go as planned

This afternoon didn't go to plan! Ended up sitting in minor injuries in Cirencester hospital waiting for Chris to have his left eye stitched/steristripped...

This afternoon didn't go to plan! Ended up sitting in minor injuries in Cirences...

•6 years ago

Automatic Social Security Disability Benefits For Those With PSP

If your loved one has PSP they are eligible to get disability, automatically from the Social Security Administration. Normal approval takes less than 6 weeks;...

If your loved one has PSP they are eligible to get disability, automatically fro...

•6 years ago

Trying for chc any advice please

My partner was diagnosed with cbd 4years ago after 3years of going back and forth to the doctors.He has no mobility at all and has an alien hand.He also has...

My partner was diagnosed with cbd 4years ago after 3years of going back and for...

•6 years ago

My mum recently diagnosed with cbd/cbs after being misdiagnosed with parkinsons 2 years ago.

Hi my name is amanda my mum was misdiagnosed and treated for parkinsons 2 years ago..initially they said she had a mini stroke and vertigo after her sister...

Hi my name is amanda my mum was misdiagnosed and treated for parkinsons 2 years ...

•6 years ago

New here and need some advice

My husband Chris, who is 68, was officially diagnosed with PSP in summer 2017. Looking back, though, I now realize that I first began noticing symptoms in...

My husband Chris, who is 68, was officially diagnosed with PSP in summer 2017. L...

•6 years ago

Burnout and Hiring an Outside Caregiver

As a caregiver for my wife with PSP, I understand burnout. Being a caregiver isn’t easy, and caring for a loved one with PSP also isn’t easy. At some point you...

As a caregiver for my wife with PSP, I understand burnout. Being a caregiver isn...

•6 years ago

Sudden deterioration or illness

Hi everyone, not been around for a while but wanted to ask a question. Mum had fall this morning and bumped her head. She seemed fine originally but half hour...

Hi everyone, not been around for a while but wanted to ask a question. Mum had ...

•6 years ago

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