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PSP Association

9,266 members • 11,356 posts

All posts for January 2019

Hiatus - A song for those gone and for those who wait

This is for all of us, but especially for those who are temporarily seperated form their loved one. A Hiatus You have gone. Leaving gifts, images, for...

This is for all of us, but especially for those who are temporarily seperated f...

Kevin_1

•5 years ago

28 Replies

How to challenge Social Services

I am writing this post following discussions with number of Solicitors who specialise in Adult Care Law. Quite a few mentioned in passing that Social Services...

I am writing this post following discussions with number of Solicitors who spec...

Kevin_1

•5 years ago

22 Replies

Valentine's Day

Looking for gifts that'll last long after the flowers and chocolates are gone. Tim x

Looking for gifts that'll last long after the flowers and chocolates are gone. T...

daddyt

•5 years ago

15 Replies

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In need of Peace....😢

I find myself in such anxiety this morning....it has been a hard week, seems like my husband has dramatically taken a turn for the worse, so incredibly...

I find myself in such anxiety this morning....it has been a hard week, seems lik...

JubileeRanch

•5 years ago

9 Replies

Effect of Progressive supranuclear palsy on heart

Hi, is there any effect on the heart rate or heart functioning due to psp.

Hemantkh

•5 years ago

6 Replies

Dan’s brother passed away. Do I tell him?

Dans brother passed away from cancer yesterday. I took a Dan to see him twice last month in a care van. Dan’s brother lived a few hours away and we usually...

Dans brother passed away from cancer yesterday. I took a Dan to see him twice l...

Karynleitner

•5 years ago

20 Replies

TRATAMENTO AYURVÉDICO PARA A PARALISIA SUPRANUCLEAR PROGRESSIVA

Dear friends! I have a friend with Progressive Supranuclear Palsy whom I am helping to overcome. In my investigations other than the CBS and THC oils, here are...

Dear friends! I have a friend with Progressive Supranuclear Palsy whom I am help...

Almor957

•5 years ago

6 Replies

Issues resolved at last!

Hi Folks I am sorry for the long absence. Essentially Liz sustained some bruises and accused a member of staff of harming her. That was five months ago. The...

Hi Folks I am sorry for the long absence. Essentially Liz sustained some bruises...

Kevin_1

•5 years ago

52 Replies

Snowy North West England

The bird feeder is proving very popular this morning. Hoping to get out to do a snow angel later !

The bird feeder is proving very popular this morning. Hoping to get out to do a ...

AJK2001

•5 years ago

18 Replies

Another Downturn for my sister

It's 3am and I'm just back from the hospital after my sister was admitted tonight after another fall..this time she has broken her 'good' arm...Her left arm...

It's 3am and I'm just back from the hospital after my sister was admitted tonigh...

Skye04

•5 years ago

23 Replies

Watch this space....

As UK expats who have been happily settled in Spain for 13 years now, I was rather taken aback last night at reading the news on Brexit. The article said...

As UK expats who have been happily settled in Spain for 13 years now, I was rat...

JCRy

•5 years ago

4 Replies

How long has/was your LO on hospice for PSP?

I'm wondering how long your loved ones have been on or were on hospice? Thank you for your help!

I'm wondering how long your loved ones have been on or were on hospice? Thank yo...

Ammie0809

•5 years ago

14 Replies

Cbd

Partner just been diagnosed with Cbd after 2 year of hospitals and doc appointments .my concern is that I work all week and worry about partner being alone at...

Partner just been diagnosed with Cbd after 2 year of hospitals and doc appointme...

Goldfish43

•5 years ago

20 Replies

Morning quote

Slowly losing the person you once knew is so cruel....

JubileeRanch

•5 years ago

5 Replies

Toothbrush

Hi All, My father is not able to use toothbrush...And he stop using toothbrush from 2-3 months ago and now he has pain in teeth. Is any Good option to clean...

Hi All, My father is not able to use toothbrush...And he stop using toothbrush f...

sonikaKharb

•5 years ago

9 Replies

Smart walking stick

Hello everyone Someone forwarded this link to me. https://www.walktobeat.co.uk/shop Has anyone tried this? Is this in any way good or helpful for PSP...

Hello everyone Someone forwarded this link to me. https://www.walktobeat.co.u...

PSPCarer

•5 years ago

11 Replies

GUILT?

What is this? One definition is the fear of breaking a moral standard. If that's the case, what on earth are we all doing wasting our time feeling this...

What is this? One definition is the fear of breaking a moral standard. If that'...

Heady

•5 years ago

37 Replies

To have a peg or not

Hi , Kathy has got worse with psp cannot speak ,squeezes my hand for yes and no Leans to the right when sitting in a chair,does not look at the tv much......

Hi , Kathy has got worse with psp cannot speak ,squeezes my hand for yes and no ...

Birdman34265

•5 years ago

23 Replies

Wow. What a response to Grey January Day

I went onto the forum as I do most days as I needed to feel 'not alone'. What an amazing number or responses to WesternGirl and what support and love poured...

I went onto the forum as I do most days as I needed to feel 'not alone'. What an...

AliBee1

•5 years ago

26 Replies

To the caregivers

Hello all I am wondering if any of your loved ones are having hallucinations my Charlie has to see things that are just not there. He has had MSA for ten...

Hello all I am wondering if any of your loved ones are having hallucinations my ...

Marg52

•5 years ago

13 Replies

Long Post... again

Okay my PSP fam-jam, let me first say thank you for all the supportive comments in response to the post below. I've picked myself up and dusted myself off. All...

Okay my PSP fam-jam, let me first say thank you for all the supportive comments ...

daddyt

•5 years ago

29 Replies

Possibly a missing link

Hello to everyone, well it has been 4 months since I lost my sweet momma to psp! I still follow this sight often, it just amazes me how many have now gone and...

Hello to everyone, well it has been 4 months since I lost my sweet momma to psp!...

Reidallison

•5 years ago

2 Replies

Gum/Teeth relationship to Alzheimer's and hope for cure

Gum disease linked to Alzheimer's (and maybe PSP) - please take care good of your teeth and gums...

Gum disease linked to Alzheimer's (and maybe PSP) - please take care good of you...

sammy90210

•5 years ago

7 Replies

Wrong and rights

Found this quote...all who know me know I collect them.....I am having up and down days....yesterday I felt particularly down. Talked to my eldest son, he...

Found this quote...all who know me know I collect them.....I am having up and do...

JubileeRanch

•5 years ago

12 Replies

To the recently bereaved

The 18th marked two weeks since my sweetheart succumbed to the illnesses that held him hostage. I didn't mark it with any dainty little tears, but...

The 18th marked two weeks since my sweetheart succumbed to the illnesses that he...

greelycat

•5 years ago

20 Replies

Save your stamps to raise funds for PSPA

Did you know you can send your used postage stamps to the PSPA and they can make money from them? Trim stamps so no more than 1cm of envelope around them,...

Did you know you can send your used postage stamps to the PSPA and they can make...

AJK2001

•5 years ago

4 Replies

N H S help

Hi has anyone in the uk experience of applying for N H S continuing healthcare. I understand it's a strict criteria,and help is needed to fill in any forms. My...

Hi has anyone in the uk experience of applying for N H S continuing healthcare. ...

Upword

•5 years ago

16 Replies

Disagree with consultant's discharge for dad.

Hi all, I'm new here so apologies if this post gets too long. Here goes, my dad has psp and his swallowing difficulties have started. Was admitted to hospital...

Hi all, I'm new here so apologies if this post gets too long. Here goes, my dad ...

NCISfan

•5 years ago

31 Replies

Hi Jillian

Hi Jillian - wonderful to see you're still visiting the group. Big hugs coming your way. Tim XXXXX

Hi Jillian - wonderful to see you're still visiting the group. Big hugs coming y...

daddyt

•5 years ago

7 Replies

cbd oil

Hi , Is anyone giving Cbd oil to PSP patients? and any benefit from this. We just started to give cbd oil to my father.... Please let me know if u are aware of...

Hi , Is anyone giving Cbd oil to PSP patients? and any benefit from this. We jus...

sonikaKharb

•5 years ago

16 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for January 2019

Hiatus - A song for those gone and for those who wait

How to challenge Social Services

Valentine's Day

In need of Peace....😢

Effect of Progressive supranuclear palsy on heart

Dan’s brother passed away. Do I tell him?

TRATAMENTO AYURVÉDICO PARA A PARALISIA SUPRANUCLEAR PROGRESSIVA

Issues resolved at last!

Snowy North West England

Another Downturn for my sister

Watch this space....

How long has/was your LO on hospice for PSP?

Cbd

Morning quote

Toothbrush

Smart walking stick

GUILT?

To have a peg or not

Wow. What a response to Grey January Day

To the caregivers

Long Post... again

Possibly a missing link

Gum/Teeth relationship to Alzheimer's and hope for cure

Wrong and rights

To the recently bereaved

Save your stamps to raise funds for PSPA

N H S help

Disagree with consultant's discharge for dad.

Hi Jillian

cbd oil

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive