Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for December 2018

Caring for a PSP patient.

I care for a PSP patient, when should we stop MAKING him get up into a wheel chair? He is getting more and more stiff. He can still communicate via hand...

I care for a PSP patient, when should we stop MAKING him get up into a wheel cha...

JayneRogers

•6 years ago

15 Replies

2018 ~ 2019

As I read so often on this site the heartbreaking news of a loss it is with immense gratitude I come here for solace and understanding. I have customarily...

As I read so often on this site the heartbreaking news of a loss it is with imme...

JubileeRanch

•6 years ago

28 Replies

Update on Sudden Decline

Several weeks ago, I wrote about my husband's sudden decline-losing his clarity of speech and his inclination to speak, loss of appetite, even worse balance...

Several weeks ago, I wrote about my husband's sudden decline-losing his clarity ...

Baytalon

•6 years ago

13 Replies

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Christmas Lesson

My husband though very supportive of me looking after Mum is more of a back room boy, so he will run our house & cook dinner so I can spend time with Mum, fix...

My husband though very supportive of me looking after Mum is more of a back room...

AJK2001

•6 years ago

8 Replies

Communication apps?

Hi there. Im visiting my good friend has PSP. She lives 10 hours of travel away and I haven’t been able to visit for over a year. Over this time she has...

Hi there. Im visiting my good friend has PSP. She lives 10 hours of travel away ...

Pam_NZ

•6 years ago

3 Replies

Coughing / Public / Judgement

So, I try to stay positive on the daily - looking for the good in every situation ... oh, but I’m so very human! (rant warning, because you folks are the...

So, I try to stay positive on the daily - looking for the good in every situatio...

bazooka111

•6 years ago

6 Replies

PSP at 63

I’ve just been diagnosed with PSP and I’m only 63 years old. My dear dad had it as well. Is there any advice anyone can give me to get over this dreadful...

I’ve just been diagnosed with PSP and I’m only 63 years old. My dear dad had it ...

Mags061155

•6 years ago

23 Replies

Carers and self-health maintenance

Just a brief summery of events. I had out-patient surgery yesterday to remove a ganglion cyst near my ankle bone. It had been there about 3 yrs and I...

Just a brief summery of events. I had out-patient surgery yesterday to remove a...

Dadshelper

•6 years ago

5 Replies

PSP Symptom

One of my husband’s symptom, as I mentioned in the past, is flailing as he doses off on his chair, followed with drooling, incoherency, weakness in his legs...

One of my husband’s symptom, as I mentioned in the past, is flailing as he doses...

Bipa

•6 years ago

16 Replies

Progressive supranuclear palsy disease (PSP)

Someone with Progressive supranuclear palsy disease, experienced cannabis oil (CBD oil or THC oil)?

Someone with Progressive supranuclear palsy disease, experienced cannabis oil (C...

Almor957

•6 years ago

10 Replies

Tearful morning

Nigel would not eat yesterday and his lean to the right was worse and then he had awful diarrhoea in the night. After nothing but grunts and ramblings and...

Nigel would not eat yesterday and his lean to the right was worse and then he ha...

AliBee1

•6 years ago

24 Replies

Medical cannabis

Does anyone have any experience with using cannabis for muscle cramps in the arm. My G P has referred me to the pain management clinic with the suggestion that...

Does anyone have any experience with using cannabis for muscle cramps in the arm...

Val4521

•6 years ago

2 Replies

Christmas Baking a success!

I thoroughly enjoyed making cookies with my Momma this year! We made Russian Tea Cakes, and she was very successful in making small balls for baking!!! She...

I thoroughly enjoyed making cookies with my Momma this year! We made Russian Te...

bazooka111

•6 years ago

4 Replies

Seasons Greetings

Happy holiday season and Happy New Year to all! May the spirit of Christmas bring hope, joy and peace to all of us. To those who have just lost their loved...

Happy holiday season and Happy New Year to all! May the spirit of Christmas bri...

Aryanti

•6 years ago

2 Replies

Searching for the best wheelchair ...

Merry Christmas & Happy New Year to everyone. I am trying to anticipate the need of a wheelchair for my Momma. While we were on our last two travel...

Merry Christmas & Happy New Year to everyone. I am trying to anticipate the nee...

bazooka111

•6 years ago

9 Replies

My beautiful husband has become another star in the sky

My darling husband of only 2 months lost his battle with PSP this evening. I had managed to get him home on 17th Dec after nearly 5 months in hospital....

My darling husband of only 2 months lost his battle with PSP this evening. I had...

Hiking13

•6 years ago

58 Replies

Christmas morning with PSP and COPD

PSP and COPD have certainly changed how we celebrate holidays. Just after midnight I woke up to an alarm sounding on my husbands' concentrator (oxygen). At 2...

PSP and COPD have certainly changed how we celebrate holidays. Just after midni...

greelycat

•6 years ago

1 Reply

PSP and severe COPD combines

Does anyone else share this combined diagnosis? My husband just came out of the hospital and was prescribed 2 litres per hour of oxygen but I have had to turn...

Does anyone else share this combined diagnosis? My husband just came out of the...

greelycat

•6 years ago

4 Replies

PSP problem in swallowing..

Hi , MY father has PSP from 3 years ...and now he can't eat the food ...he has problem in swallowing..can anyone suggest any medicine or doctor for this.

Hi , MY father has PSP from 3 years ...and now he can't eat the food ...he has p...

sonikaKharb

•6 years ago

14 Replies

PSP

Hi , Can anyone suggest me best doctor for PSP treatment in delhi..My father has PSP from 3 years.....

Hi , Can anyone suggest me best doctor for PSP treatment in delhi..My father has...

sonikaKharb

•6 years ago

6 Replies

My Christmas Blues...

This year Christmas was a bit more difficult. My dad died 3 years ago from complications of PSP but this illness had taken my dad long before. I often get...

This year Christmas was a bit more difficult. My dad died 3 years ago from compl...

jessybx19

•6 years ago

3 Replies

Merry Christmas, Happy Holidays and Seasons Greetings

Wishing my PSP family a Merry Christmas. I know this can be and is for many a difficult time of year. Holding you and everyone of you in my thoughts and...

Wishing my PSP family a Merry Christmas. I know this can be and is for many a di...

daddyt

•6 years ago

6 Replies

Surprise.

This made me laugh.

Hidden

•6 years ago

8 Replies

Merry Christmas

Thank you all for your support and kindnesses this year . May this season of Hope strengthen and bring joy to us all even in the most difficult of...

Thank you all for your support and kindnesses this year . May this season of Hop...

JCRy

•6 years ago

2 Replies

Jillannf6

Thanks for liking my post. Wishing you a blessed and peaceful Christmas. We miss you and the parties you arranged for us. Thinking of you and take care. Lots...

Thanks for liking my post. Wishing you a blessed and peaceful Christmas. We mis...

Nanny857

•6 years ago

9 Replies

Beautiful

My beautiful wife passed away on the 15th December I am heartbroken she died in our local hospice where she use to work and this was where she wanted to be. I...

My beautiful wife passed away on the 15th December I am heartbroken she died in ...

Evertonian

•6 years ago

22 Replies

Seasons greetings

Seasons Greetings to this rare bunch of people who are the only ones that know the true story of PSP! It has likely been a tough year for most, if not all of...

Seasons Greetings to this rare bunch of people who are the only ones that know t...

D0ttieL0ttie

•6 years ago

4 Replies

Michel passed away

He had aspiration pneumonia caused by PSP. We had 57 happy years together before this terrible disease which is unknown by most people who do not understand...

He had aspiration pneumonia caused by PSP. We had 57 happy years together befor...

SuzanneA

•6 years ago

30 Replies

Merry Christmas and Happy Holidays

If you've already purchased or are considering buying either one, or both of these books please consider leaving a review. Book reviews are incredibly...

If you've already purchased or are considering buying either one, or both of the...

daddyt

•6 years ago

2 Replies

Happy Christmas ...

dear PSP family! May we all have a peaceful and blessed Christmas. Thank you for your love and support throughout this year! Love and light, Mx

dear PSP family! May we all have a peaceful and blessed Christmas. Thank you fo...

Megabrew88

•6 years ago

5 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for December 2018

Caring for a PSP patient.

2018 ~ 2019

Update on Sudden Decline

Christmas Lesson

Communication apps?

Coughing / Public / Judgement

PSP at 63

Carers and self-health maintenance

PSP Symptom

Progressive supranuclear palsy disease (PSP)

Tearful morning

Medical cannabis

Christmas Baking a success!

Seasons Greetings

Searching for the best wheelchair ...

My beautiful husband has become another star in the sky

Christmas morning with PSP and COPD

PSP and severe COPD combines

PSP problem in swallowing..

PSP

My Christmas Blues...

Merry Christmas, Happy Holidays and Seasons Greetings

Surprise.

Merry Christmas

Jillannf6

Beautiful

Seasons greetings

Michel passed away

Merry Christmas and Happy Holidays

Happy Christmas ...

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive