Posts - PSP Association | HealthUnlocked

PSP Association

9,254 members • 11,349 posts

All posts for June 2016

Sleepover

School holidays started today. I'm at my daughter's house tonight then tomorrow I will be bringing our 2 grandchildren - girl aged 5 and a half and boy aged 3...

School holidays started today. I'm at my daughter's house tonight then tomorrow...

•8 years ago

A new pub in town!

A new pub? (for the U.S. folk Pub = bar) The hydro therapist asked me what the beer was like in the, "Carer's Arms"... she added we must have had a good...

A new pub? (for the U.S. folk Pub = bar) The hydro therapist asked me what the...

•8 years ago

Hospital

I am sitting on Bristol Royal infirmary waiting for been to be taken to theatre for partial hip replacement. He decided he would try to get up from the chair...

I am sitting on Bristol Royal infirmary waiting for been to be taken to theatre ...

•8 years ago

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Mum

Mum finally lost her battle with psp yesterday morning at 12.05. Mum had not ate or drank for 5 days and in the end her heart could not take any more. My Mum...

Mum finally lost her battle with psp yesterday morning at 12.05. Mum had not ate...

•8 years ago

CBD thoughts

Hello pippin123. This my first post, so very scary, my man was previously diagnosed with MSA, then 6 years down the road he was re assessed and told it was...

Hello pippin123. This my first post, so very scary, my man was previously diagno...

•8 years ago

CBD - getting off the rollercoaster

Hi all you wonderful people who contribute to this site! My lovely man found his way off the rollercoaster today and lost his battle with CBD or whatever brain...

Hi all you wonderful people who contribute to this site! My lovely man found his...

•8 years ago

Flouxiti e

Flouxitine to making m feeling as im loosing it in happy sort of way making noises laughing just being silly in general any advicr plz help thanks in advance

Flouxitine to making m feeling as im loosing it in happy sort of way making nois...

•8 years ago

I'm new here. Where do I start...? Help!

Discovered this site 2 days ago, wow! its fantastic. I have been on it for hours! My head is spinning with information most of which is totally new to me. My...

Discovered this site 2 days ago, wow! its fantastic. I have been on it for hours...

•8 years ago

For the new people

I would like to suggest to the people to this sight please when you go to a doc do not tell them at first what you or your love one has just say PSP see if...

I would like to suggest to the people to this sight please when you go to a doc ...

•8 years ago

hello

i am a new member here, i have read and read and ant beleive i finally found somwhere i can relate. im actually scared to start a post because it will be so...

i am a new member here, i have read and read and ant beleive i finally found so...

•8 years ago

Women Diagnosed with PSP

Hi there, my new found friends!!!!!!! I was curious to know how many women on this site have PSP (besides me!!). I suspect most of the Carers are female with...

Hi there, my new found friends!!!!!!! I was curious to know how many women on t...

•8 years ago

Sorry, but I did it.

A friend came yesterday and saw the wasp nest. She was horrified so said she would sit with C while I went to the garden centre 5 minutes away. She recommended...

A friend came yesterday and saw the wasp nest. She was horrified so said she wou...

•8 years ago

Treatment trials in the US - article

This was sent to me by CurePSP, the US variant of the PSP Association. Hope-giving article saying that tau-antibody human trials have started....

This was sent to me by CurePSP, the US variant of the PSP Association. Hope-givi...

•8 years ago

PEG Tube

Well it if official. My man has to make a decision on whether to do a peg tube or die. The urologist told me this morning that he is dehydrated. If he will not...

Well it if official. My man has to make a decision on whether to do a peg tube o...

•8 years ago

Farther newly diagnosed with PSP

My father has recently been diagnosed with PSP. The one thing that is bothering him is his eyelids. They can close in the evenings and he struggles to open...

My father has recently been diagnosed with PSP. The one thing that is bothering ...

•8 years ago

Good While it lasted

hi everyone, well it was shortlived and now Des is back to -1 I think.He cannot say a word uses thumbs with lots of prompting and has not had solid food for...

hi everyone, well it was shortlived and now Des is back to -1 I think.He cannot ...

•8 years ago

An idyllic afternoon...

Well there are laughs too... We had a decent bit of sun today... a break from the wet summer. An idyllic afternoon. So we had lunch on the middle level of...

Well there are laughs too... We had a decent bit of sun today... a break from th...

•8 years ago

Just another little thing to deal with.

This is beautifully constructed but when I open our French doors, the door touches it. These doors are the only exit for the wheelchair and the doors are in...

This is beautifully constructed but when I open our French doors, the door touch...

•8 years ago

Help

Mum at end of life care in hospital. for three days Mum has had no food or drink and they are refusing to give her any iv fluids. Mum is very dehydrated and...

Mum at end of life care in hospital. for three days Mum has had no food or drink...

•8 years ago

Hi Shasha

How you doing Shasha? Nice to see you are still reading our posts. Sending big hug and lots of love Heady

How you doing Shasha? Nice to see you are still reading our posts. Sending big ...

•8 years ago

Newbie

I have been reading the posts for a little while but not posted before. My husband was diagnosed in March (3 years after symptoms started). My whole life has...

I have been reading the posts for a little while but not posted before. My husba...

•8 years ago

We did it (in 1770's) and look at US.....

Seceding may not be as bad as you think. I mean now you get to have your very own Independence Day....She says with a nervous laughter...uhm surely there's...

Seceding may not be as bad as you think. I mean now you get to have your very ow...

•8 years ago

Political posturing and the votes thereof

Good luck my brothers and sisters of the UK. I hope your vote wins! AVB of the US :)

Good luck my brothers and sisters of the UK. I hope your vote wins! AVB of the U...

•8 years ago

Psp hereditary

So lost my partners nana her sister and brother all had Parkinson his uncle had psp now his mum has psp/dementia we got told it was not hereditary now I'm...

So lost my partners nana her sister and brother all had Parkinson his uncle had ...

•8 years ago

Family Wedding

Felt very sad at the weekend as my nephew was married at the weekend and Ben didn't want to attend it was 200 miles away and meant an overnight stay, wedding...

Felt very sad at the weekend as my nephew was married at the weekend and Ben did...

•8 years ago

Constipation

Hello, my mum is constantly constipated. Any possible treatment? Thank you.

Hello, my mum is constantly constipated. Any possible treatment? Thank you.

•8 years ago

Sending you prayers

I am so sorry to hear what you have been going through. My husband constantly is looking for things or asking me when we are going home (we are home) or when...

I am so sorry to hear what you have been going through. My husband constantly ...

•8 years ago

I AM IN HELL

I AM IN HELL. IT TOOK ME 3 HOURS TO GET HIM OUT OF BED AND DRESSED AND I HURT ALL OVER. A REALLY ROTTEN DAY. IT SEEMS LIKE HE GETTING WORSE ONE DAY AND THEN...

I AM IN HELL. IT TOOK ME 3 HOURS TO GET HIM OUT OF BED AND DRESSED AND I HURT AL...

•8 years ago

Dad with CBD living alone with stairs , when to move him ?

So my dad recently got diagnosed with CBD , he already can't write shakey right hand , a bit slow and wobbly on legs , short term memory and confusion no sense...

So my dad recently got diagnosed with CBD , he already can't write shakey right ...

•8 years ago

Question about eye movement in PSP

This is my first post, not just on this forum, but on any forum, ever.. I've been following the PSP community posts for ages because I'm convinced that my...

This is my first post, not just on this forum, but on any forum, ever.. I've be...

•8 years ago

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