Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2013

Medication - 'Requip'

Has anyone with PSP tried this medication or something similar? Medication and its side effects has always been a concern of mine and it is 'yet' another...

Has anyone with PSP tried this medication or something similar? Medication and ...

•11 years ago

Re: Happy days

I thought it might be of interest to some to see the difference a year can make, the photo I'm including this time is of mums birthday last year when she was...

I thought it might be of interest to some to see the difference a year can make,...

•11 years ago

What is (or could be) the role and responsibility of a social worker for someone with PSP?

I find there are quite a number of 'allied' medical services that may (or may not) be of value for the care of someone who has PSP. Most are self explanatory...

I find there are quite a number of 'allied' medical services that may (or may n...

•11 years ago

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What has caused My psp

Diagnosed in March this year

Diagnosed in March this year

•11 years ago

Newly diagnosed

I recently had a fall (june 12th) whllst on holiday. It was backwards down some stairs. Afterwards I felt ok for a whole week but then I started...

I recently had a fall (june 12th) whllst on holiday. It was backwards ...

•11 years ago

Happy Day !!!

We celebrated mums 75th birthday last weekend. She had such a lovely day. As she is on a textured liquidized diet and can no longer eat solids, breads, cakes...

We celebrated mums 75th birthday last weekend. She had such a lovely day. As she...

•11 years ago

Playing catch up

Hi everyone, I've had problems the last few weeks receiving notifications, think I have it sorted. Just wanted to catch up and see how everyone is doing. Just...

Hi everyone, I've had problems the last few weeks receiving notifications, think...

•11 years ago

Help Help

My Father in Law had a fall while in respite care and has fractured his right elbow! he is due home next friday. Any hints and tips on getting him into the car...

My Father in Law had a fall while in respite care and has fractured his right el...

•11 years ago

Finally - Just Good News

My husband's trip to the Emergency Room turned out to not be anything associated with his heart. It is a severe inflammation of his esophagus caused by an...

My husband's trip to the Emergency Room turned out to not be anything associated...

carolinesimmons

•11 years ago

Respite Care

I am considering putting my husband with late stage PSP in respite care for about 3 or 4 days so I can go on a short vacation trip & to reboot my batteries....

I am considering putting my husband with late stage PSP in respite care for abou...

•11 years ago

Does any one else have a shakeing rigid type of fit

At times I shake vialantly and go rigid often for about 3 minuets

At times I shake vialantly and go rigid often for about 3 minuets

•11 years ago

Asking for prayers up for my Lovely, Katy.

My smart-as-a-whip, old-soul, gracious, intuitive, daughter is having surgery this morning. Not because of an emergency or illness, but she has a mouthful...

My smart-as-a-whip, old-soul, gracious, intuitive, daughter is having surgery th...

•11 years ago

Good News - Bad News

My son has turned the corner and is improving. Will come home soon but be on IV antibiotics for several weeks. My husband was transported by Rescue Squad to...

My son has turned the corner and is improving. Will come home soon but be on IV ...

carolinesimmons

•11 years ago

The Raining Has Stopped!

Well, this time a little time passing has been a positive thing. Yes, my son-in-law's father died yesterday. It was a blessing as he was very aggressively...

Well, this time a little time passing has been a positive thing. Yes, my son-in-...

carolinesimmons

•11 years ago

Final stage PSP

My sister age 79 was diagnosed about 2 years ago with Parkinsons plus syndrome,but now seems to be showing signs of psp.Slurred speech,confusion, agitation,and...

My sister age 79 was diagnosed about 2 years ago with Parkinsons plus syndrome,b...

•11 years ago

When It Rains It Pours

I keep looking for that black cloud that surely must be following me around. I am the sole caregiver for my husband who has PSP. I am four weeks past major...

I keep looking for that black cloud that surely must be following me around. I a...

carolinesimmons

•11 years ago

My husband's right hand is very stiff and he cannot open his fingers. It started off with just one finger, sort of like 'trigger' finger

but now all his fingers, apart from his thumb and index finger, are affected and he cannot use his right hand. He is right handed and has had to...

but now all his fingers, apart from his thumb and index finger, are affected and...

dorothy-thompson

•11 years ago

Every exhale is a moan.

Hi There, I stumbled across this site while looking at Psp pages. I am always interested in hearing others stories about loved ones with Psp. Sometimes you...

Hi There, I stumbled across this site while looking at Psp pages. I am always i...

•11 years ago

ann

sorry I haven't ben on here for such a long time I lost my steve feb 2012 his mother has suffered for the last nine years from parkinson they lost their son...

sorry I haven't ben on here for such a long time I lost my steve feb 2012 his mo...

•11 years ago

My dad is having problems with choking...I feel some liquid had got in his lungs..can clearly hear the glurrryyy noise from his chest.

He's trying to cough it out...but in vain...frankly he's 1 of not-wanting-to-live-life types...I get hardly any support from him wyl doing his job. Observed...

He's trying to cough it out...but in vain...frankly he's 1 of not-wanting-to-liv...

•11 years ago

how much coq10 is suggested to start?

•11 years ago

Radon Gas Exposure & PSP?

As most of you know, I've been blogging about the ongoing renovations to my former house since last October. My house was just recently put on the market...

As most of you know, I've been blogging about the ongoing renovations to my form...

•11 years ago

Clinical Rating Scale for PSP

Hello everyone I'm not sure whether the following (6 year old) article has been discussed on this forum, but I know some of you like to ask questions about...

Hello everyone I'm not sure whether the following (6 year old) article has b...

•11 years ago

Yakult and wind.

My MIL had terrible cramping wind from the start after having the PEG fitted and we tried everything to help. Someone suggested putting a Yakult down her tube...

My MIL had terrible cramping wind from the start after having the PEG fitted and...

•11 years ago

Which symptoms occur when?

My husband seems to have a strange progression of symptoms. He cannot swallow at all since he had elective surgery for hip replacement a year and a half ago....

My husband seems to have a strange progression of symptoms. He cannot swallow at...

carolinesimmons

•11 years ago

DISCUSSION OF MRI OF BRAIN AS DIAGNOSTIC TOOL FOR PSP DETERMINATION

Some time back, no to far, we had a discussion on the use of MRI or other brain scan to diagnose PSP. I was just sent this article relating to that...

Some time back, no to far, we had a discussion on the use of MRI or other brain ...

•11 years ago

Little trick to get my hubby 'unfrozen'.

Hi everyone, I just wanted to share a little trick we've started using. Hubby's finding it more difficult to walk these days. He often gets 'stuck' or...

Hi everyone, I just wanted to share a little trick we've started using. Hub...

•11 years ago

Has anyone heard of or know anything about the drug Quetiapine? The Falls clinic nurse has suggested that my GP prescribe it for my

husband's aggressive behavior. I loooked it up on the net and see it is prescribed for Alkzeimer's amongst other things.

husband's aggressive behavior. I loooked it up on the net and see it is prescr...

dorothy-thompson

•11 years ago

should we be getting a lift before we need. there is just my husband and myself

•11 years ago

is there a psp assoction michigan

•11 years ago

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