Posts - PSP Association | HealthUnlocked

PSP Association

9,247 members • 11,346 posts

All posts for November 2022

Symmetric Sleep System

Hello, my husband is bedbound with PSP and is in a foetal position practically all the time. His OT visited a few months ago suggested he may benefit from the...

Hello, my husband is bedbound with PSP and is in a foetal position practically a...

AlliD

•1 year ago

2 Replies

Article in Karger Medical - Neurological Improvement with Medical Cannabis in a Progressive Supranuclear Palsy Patient: A Case Report

Good evening (Friend of a PSP sufferer). https://www.karger.com/Article/FullText/503864 I came across the above report in Karger Medical at the weekend and...

Good evening (Friend of a PSP sufferer). https://www.karger.com/Article/FullT...

Sweenstar

•1 year ago

15 Replies

CONTINUING HEALTH CARE FUNDING

Article by Rachel Mortimer in the Telegraph sunday 27/11/22 re CONTINUING HEALTH CARE Funding well worth a read and worth contacting yourMP. Action is...

Article by Rachel Mortimer in the Telegraph sunday 27/11/22 re CONTINUING HEAL...

knittingannie

•1 year ago

2 Replies

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End stage symptoms

Started typing this many times but never posted it. I always like to make sense of things which is just impossible with this disease. My mother in law was...

Started typing this many times but never posted it. I always like to make sense ...

Jodi999

•1 year ago

11 Replies

My amazing Dad took his last breath yesterday….

My Dad took his last breath yesterday after a death rattle that lasted around 2 hrs. I was near him when he was rattling . The sound was very scary though we...

My Dad took his last breath yesterday after a death rattle that lasted around 2...

Dpriy

•1 year ago

28 Replies

Too much exercise

https://youtu.be/Y9Z3hE_4TEk

Farooqji

•1 year ago

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A beautiful hummingbird

I thought I'd share this beautiful photo of a lovely picture of HM The Queen Consort this afternoon wearing a hummingbird broach. She was delivering some of...

I thought I'd share this beautiful photo of a lovely picture of HM The Queen Con...

AnneandChris

•1 year ago

2 Replies

End of life?

My dad who is in advanced stage of PSP is not taking food not even water for the past three days and full of chest phlegm. Breathing thru mouth. Not sleeping...

My dad who is in advanced stage of PSP is not taking food not even water for the...

Dpriy

•1 year ago

4 Replies

Extra calorie ideas

Hi everyone, My dad has CBD and has over the past 5 months gone from 86kg to 57kg so is a poor soul. He’s been in hospital for most of that time (he’s still...

Hi everyone, My dad has CBD and has over the past 5 months gone from 86kg to 57...

Catski78

•1 year ago

15 Replies

So many obstacles with PSP

Hi friends it's been heartbreaking. Just when you think you have found a solution there comes another obstacle on that path. Because my mum has lost so much...

Hi friends it's been heartbreaking. Just when you think you have found a solutio...

Cinderella80

•1 year ago

16 Replies

sleepy and weak

Hi, my pop has been weak and sleepy for four days straight now. He is still eating and drinking as long he is being fed. He cannot walk even with a walker....

Hi, my pop has been weak and sleepy for four days straight now. He is still eat...

OllieFisher1

•1 year ago

9 Replies

UPDATE on my sweet Momma

I appreciate all of you so very much. The support of this forum over the years has been beyond anything that I ever expected ... deep gratitude for all of......

I appreciate all of you so very much. The support of this forum over the years h...

bazooka111

•1 year ago

45 Replies

Checking in.

Main things others might learn and benefit from my many personal, health, family and money failures is: 1. My diabetes is killing me, literally. Don't be...

Main things others might learn and benefit from my many personal, health, family...

DTBAndy

•1 year ago

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Anticipatory medication

Have you spoken with palliative care team, and district nurses? They may be able to advise on anticipatory medication if you are concerned about him going...

Have you spoken with palliative care team, and district nurses? They may be able...

charlieford

•1 year ago

1 Reply

Body pain

my dad is in advanced stage of PSP and stopped eating almost two days now and he says he is having Body pain. Is this how they feel during end days?

my dad is in advanced stage of PSP and stopped eating almost two days now and he...

Dpriy

•1 year ago

4 Replies

End Stage

my sister is at end stages . Unable to swallow. Lucky to get sparkling water down. No longer can talk. Also she in a lot pain in her hand it seems to be...

my sister is at end stages . Unable to swallow. Lucky to get sparkling water dow...

Antia50

•1 year ago

4 Replies

CHC funding in a nursing home

An unexpected turn of events means that mum had a visit from NHS CHC to complete the checklist and has now triggered for a full assessment. Can anybody...

An unexpected turn of events means that mum had a visit from NHS CHC to complete...

Willowden

•1 year ago

14 Replies

PSP and urinary retention

My husband is experiencing episodes of urinary retention , even though his is drinking plenty of fluids. Seems to be one extreme or the other, complete urinary...

My husband is experiencing episodes of urinary retention , even though his is dr...

ncgardener799

•1 year ago

15 Replies

CBD progressing fast

Hi all . I have coped well with CBD since I was diagnosed 6 years ago . I’ve had it for around 9 years or longer ..since July I have gone down hill rapidly ....

Hi all . I have coped well with CBD since I was diagnosed 6 years ago . I’ve had...

Mariawatters

•1 year ago

21 Replies

Oh my sweet Momma

I have not been on here ... I am just lost. My sweet Momma is fading friends. I am sitting her bedside as I write -- in the quiet. Her swallowing has...

I have not been on here ... I am just lost. My sweet Momma is fading friends....

bazooka111

•1 year ago

58 Replies

shout out to everyone

hello all, I am Daisy from India.After joining this forum three weeks back I learnt so many things as a carer and I just wanted to give hugs and love those...

hello all, I am Daisy from India.After joining this forum three weeks back I l...

Dpriy

•1 year ago

2 Replies

what’s the trouble with my eyes

they water and they are tired

Possum99

•1 year ago

4 Replies

The love of my life has finally succumbed

My wife has finally succumbed to this insidious disease, she was at home where she wanted to be surrounded by our family and very kindly looked after by the...

My wife has finally succumbed to this insidious disease, she was at home where s...

Birdman42

•1 year ago

49 Replies

PSP and chocking

Morning My FIL has PSP, each day is different, difficult and hard for his wife. MIL is coping but think she is also struggling with day to day tasks, getting...

Morning My FIL has PSP, each day is different, difficult and hard for his wife. ...

Happysole

•1 year ago

7 Replies

Aspirated and in hospital with CBD

Hi all, looking for advice please. Mum is in hospital being treated for aspiration pneumonia after a chocking episode in her nursing home where suction had to...

Hi all, looking for advice please. Mum is in hospital being treated for aspirati...

broadie79

•1 year ago

6 Replies

feel like I’m failing

my mum has psp, only properly diagnosed this yr but has been ongoing since 2017 if not before. Today she has fallen and cut the back of her head, paramedics...

my mum has psp, only properly diagnosed this yr but has been ongoing since 2017 ...

Flowersinyouhair

•1 year ago

11 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for November 2022

Symmetric Sleep System

Article in Karger Medical - Neurological Improvement with Medical Cannabis in a Progressive Supranuclear Palsy Patient: A Case Report

CONTINUING HEALTH CARE FUNDING

End stage symptoms

My amazing Dad took his last breath yesterday….

Too much exercise

A beautiful hummingbird

End of life?

Extra calorie ideas

So many obstacles with PSP

sleepy and weak

UPDATE on my sweet Momma

Checking in.

Anticipatory medication

Body pain

End Stage

CHC funding in a nursing home

PSP and urinary retention

CBD progressing fast

Oh my sweet Momma

shout out to everyone

what’s the trouble with my eyes

The love of my life has finally succumbed

PSP and chocking

Aspirated and in hospital with CBD

feel like I’m failing

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive