Posts - PSP Association | HealthUnlocked

PSP Association

9,249 members • 11,346 posts

All posts for January 2012

Davunetide - How's it going?

I was just wondering if anyone had any feedback as to how they felt the davunetide study was going? It's the last bit of hope!!!

I was just wondering if anyone had any feedback as to how they felt the davuneti...

•12 years ago

Cambridge Support Group Meeting Sat. 4th.

The Cambridge Support Group will be meeting this Sat. 4th. at Trumpington Village Hall 2.30 to 5pm. Samantha Pavey, specialist PSP Nurse will be there and...

The Cambridge Support Group will be meeting this Sat. 4th. at Trumpington Villag...

•12 years ago

Urine infections - Dad is getting them more regularly now - anyone else experiencing this?

He has a catheter and its been happening since he had that fitted - is it just another symptom of PSP?

He has a catheter and its been happening since he had that fitted - is it just a...

•12 years ago

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Being the voice for Mum this morning

I wrote on here a few weeks ago about the frustration of trying to get my mums neurologist to listen and make the obvious diagnosis. I am currently waiting to...

I wrote on here a few weeks ago about the frustration of trying to get my mums n...

•12 years ago

Does anyone with psp have small writing?

•12 years ago

The Brenwood Support Group. Saturday 28th January, 2.30pm at the Marillac, Eagle Drive, Brentwood, CM13 3BL

The Brentwood Support Group meets on the last Saturday of every month at The Marillac, Brentwood, CM13 3BL. Tomorrows meeting (28th January) will be...

The Brentwood Support Group meets on the last Saturday of every month at The Mar...

•12 years ago

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Wantage support Group Tuesday 31st January, from 11.00 to 13.00

This meeting is open to all whether you are living with PSP or CBD, cares and family members, healthcare professionals or anyone who supports PSPA. Come along,...

This meeting is open to all whether you are living with PSP or CBD, cares and fa...

•12 years ago

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Thank you everyone who responded to my question.

I have also read that this condition cannot be detected from an MRI scan, however on our very first visit to Tony's PSP specialist he produced a model of a...

I have also read that this condition cannot be detected from an MRI scan, howeve...

•12 years ago

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Wantage support Group Tuesday 31st January, from 11.00 to 13.00

This meeting is open to all whether you are living with PSP or CBD, cares and family members, healthcare professionals or anyone who supports PSPA. Come...

This meeting is open to all whether you are living with PSP or CBD, cares and fa...

•12 years ago

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stress and psp

hi i am sure that the stress aggravates some of hte Psp symptoms in my ca s e my balacne and fallign my partner had to have an emergency op for a detached...

hi i am sure that the stress aggravates some of hte Psp symptoms in my ca s e m...

•12 years ago

My husband has started with fever and high blood pressure in the evenigs. Is anyone else having this problem. My husband is 4 yrs into PSP.

•12 years ago

Tilting to the left!

My mother was diagnosed with PSP a year ago and we were told hat she is around 3 years into the disease. She has all the typical PSP symptoms like speech...

My mother was diagnosed with PSP a year ago and we were told hat she is around 3...

•12 years ago

Cracking up and need some help!

Hi everyone I've just found this site and I'm hoping it's going to be a great comfort to me. Looking through some of the other blogs on here, I'm already...

Hi everyone I've just found this site and I'm hoping it's going to be a great...

•12 years ago

This is my first time participating on this site although I have been a keen reader for the last 12 months.

My husband was diagnosed with PSP in December 2010, but like a lot of what I have read of your experiences he also had the symptoms for at least 2 years before...

My husband was diagnosed with PSP in December 2010, but like a lot of what I hav...

•12 years ago

what a day!!!

steve has been in hospital since 17th december2011, today i ve been told by the doctor that there is nothing else they can do for steve and will be sending him...

steve has been in hospital since 17th december2011, today i ve been told by the ...

•12 years ago

Camberley Support Group - Thursday 26th January from 10.30 until 12.30.

The group is for people affected by PSP or CBD, their families, friends and carers to meet and give support and have the opportunity to chat informally, make...

The group is for people affected by PSP or CBD, their families, friends and care...

•12 years ago

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Fund Raising

Hi everyone I had a race night planned for this Friday but for some reason no matter what I have done on this one it has been difficult to get people to buy...

Hi everyone I had a race night planned for this Friday but for some reason no...

•12 years ago

What is CBD and what are the symptons.

•12 years ago

can psp lead a person to end a relationship?

my husband has psp and he decided to end our marriage & go back to his family abroad? we also have a 7 mth old baby? im confused and worried?its been over 6...

my husband has psp and he decided to end our marriage & go back to his family ab...

•12 years ago

There's that guilty feeling again

Hi all. I have that horrible feeling of guilt again. Mum is not very well, I think she has the horrible bug that's going round. So, we have had to put Dad...

Hi all. I have that horrible feeling of guilt again. Mum is not very well, I th...

•12 years ago

Pocklington Support Group Saturday 21st January 2012

Come and join in at our Support Group from 10.30 to 12.30 at Burnby Hall Rooms (next to Burnby Hall), The Balk, Pocklington, YO42 2QF. All are welcome, for...

Come and join in at our Support Group from 10.30 to 12.30 at Burnby Hall Rooms (...

•12 years ago

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Knowing your rights & benefits

One of our members forwarded us an interesting article which Carers' UK has published about carers' rights and benefits, which we thought you might find of...

One of our members forwarded us an interesting article which Carers' UK has publ...

Partner•12 years ago

Dad's Farewell

I read lots of very moving posts on this forum and am particularly moved by people who have just lost a loved one to the dreadful disease that is PSP. I lost...

I read lots of very moving posts on this forum and am particularly moved by peop...

•12 years ago

Wow - I didn't realise there are TWO types of PSP. What is the difference between PSP-R and PSP-P?

•12 years ago

PSP Matters

The latest issue of PSP Matters is now available on our website and can be downloaded from http://www.pspeur.org/user/docs/PSP%20matters%20-%20Winter%20web.pdf...

The latest issue of PSP Matters is now available on our website and can be downl...

Partner•12 years ago

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What medication does anybody take for PSP?

•12 years ago

After a fall my father in law tends to be completely out of it, he goes blank and does not respond right away. Has anyone experienced this?

Hello I am new to this support group, my father inlaw has just been diagnosed with psp. We are in the learning stages as to what to expect with psp. After my...

Hello I am new to this support group, my father inlaw has just been diagnosed wi...

•12 years ago

Brentwood Support Group Meeting

Just a quick message, the first support group meeting of the new year for the Brentwood Group is Saturday 28 January 2012 at the Marrialac in Brentwood, our...

Just a quick message, the first support group meeting of the new year for the Br...

•12 years ago

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Northamptonshire Support Group - tomorrow ( Saturday, 14th January) 10.30 - 12.30

The Northamptonshire Support Group takes place tomorrow at Grangefield Residential Care Home, 60 Northampton Road, Earls Barton. As with all PSPA Support...

The Northamptonshire Support Group takes place tomorrow at Grangefield Residenti...

•12 years ago

joke to end the day

if any of you log on to the PARKINSONS SITE u will know it is quite a laugh at itmes so i wanted to share acouple fo jokes i posted on the site today...

if any of you log on to the PARKINSONS SITE u will know it is quite a laugh at ...

•12 years ago

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