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PSP Association

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All posts for March 2014

Turmeric and Q10

I have just started my wife on Q10 and Turmeric tablets. The dosage is: Turmeric 10,000mg (500mg of extract) supplied by Natures Best, one tablet per day Q10...

I have just started my wife on Q10 and Turmeric tablets. The dosage is: Turmeric...

SWISS_MISS

•10 years ago

42 Replies

Morphine patches

The last 3 days my mum is smiling and laughing alot it's a lovely change the last week she hasn't been shouting and crying with pain through the night, we've...

The last 3 days my mum is smiling and laughing alot it's a lovely change the las...

blackcushion

•10 years ago

10 Replies

Hi Everyone, I cannot believe the crap we've been dealt and where it has got us. In February, we were promised a room in a care facility for

my husband. The day before the pre-admission meeting they called and said they coould not take him...at all, ever. He was more "work" than their staff were...

my husband. The day before the pre-admission meeting they called and said they c...

laroux

•10 years ago

12 Replies

Want to take advantage of all our features? Just log in!

Can anybody tell me how you no someone is in final stages of life

Mother in law yesterday put to bed after lunch carers got her up at 11am today she was asleep so put her back to bed at 1pm today sleeping most of day and...

Mother in law yesterday put to bed after lunch carers got her up at 11am today s...

82wendy

•10 years ago

17 Replies

My husband is coming out of hospital today and I am scared I will not cope.

My husband fell 11 days ago breaking the top of his right leg. He had surgery last Thursday but then Saturday night climbed out of bed over the sides and was...

My husband fell 11 days ago breaking the top of his right leg. He had surgery la...

suziewong

•10 years ago

27 Replies

I don't know what to do

Hi everyone, my mum has PSP and has just moved in with my sister who is not coping with the situaton. Mum is very negative, constantly criticising and...

Hi everyone, my mum has PSP and has just moved in with my sister who is not copi...

teej

•10 years ago

30 Replies

Explaining.....

How do you explain this blasted disease to friends and family?? No-one has heard of PSP so what's an easy explanation for all of those kind people who keep...

How do you explain this blasted disease to friends and family?? No-one has heard...

Fiddle

•10 years ago

28 Replies

PSP Virgin

Hi, my Dad got his PSP diagnosis yesterday, we're all in a bit of shock still. We'd never even heard of this until this week. Dad's in the relatively yearly...

Hi, my Dad got his PSP diagnosis yesterday, we're all in a bit of shock still. ...

Fiddle

•10 years ago

15 Replies

PSP Bladder infections and UTI's, bladder stopped working. The and overuse of antibiotics.

My mother has PSP and has had so many UTI's over the past 3 years, too numerous to count. She has been on a profolactic antibiotic for a few years. Her...

My mother has PSP and has had so many UTI's over the past 3 years, too numerous ...

cawbird59

•10 years ago

7 Replies

Does anyone's loved one make unreasonable financial requests?

My husband (Gerry) was misdiagnosed in Jan 07 with Parkinson's and in March of 08 was diagnosed with PSP. He has been in a care home since this past June. He...

My husband (Gerry) was misdiagnosed in Jan 07 with Parkinson's and in March of 0...

summergirlx476

•10 years ago

11 Replies

AN AGONIZING PLATEAU

My husband Bill is at a really bad (from my point of view) place in this disease as he can do nothing for himself except hold a cup. He has help for everything...

My husband Bill is at a really bad (from my point of view) place in this disease...

carolinesimmons

•10 years ago

12 Replies

My dad has started grinding of his teeth really hard while he is awake - does anyone have experience of this and any way of stopping it?

I can't distract him from doing it and as nearly all his teeth have crowns and I am worried that he will destroy them all.

I can't distract him from doing it and as nearly all his teeth have crowns and I...

MoragR

•10 years ago

5 Replies

Scared....

My dad is now eating less and choking alot. I posted a few weeks ago about his constant choking and doctors are puzzled as what to do, how to treat it or even...

My dad is now eating less and choking alot. I posted a few weeks ago about his c...

jessybx19

•10 years ago

20 Replies

Dale Shorts (1943-2014)

My heart is broken over the passing of my beloved husband, Dale, this past Tuesday. He was such a gentle soul, and devoted many hours to soothing my savage...

My heart is broken over the passing of my beloved husband, Dale, this past Tuesd...

CarlaL48

•10 years ago

38 Replies

Hi all.my dad's had his peg fitted,all is well.just having a problem,mostly in a morning he has mucos in his throat,

Sometimes I manage to pull it out.he has a build of mucus on his tongue,which I brush gently 3 times a day with a soft baby toothbrush.any ideas on helping...

Sometimes I manage to pull it out.he has a build of mucus on his tongue,which I ...

Robin20

•10 years ago

8 Replies

Is this Silent Migraine's?

Hello, I have alot of eye problems in the last 18 months from bouts of very bad double vision accompanied with blurred and unable to do anything for bouts of...

Hello, I have alot of eye problems in the last 18 months from bouts of very bad ...

Hidden

•10 years ago

5 Replies

CONSTIPATION : THAT OLD CHESTNUT

hi I am suffeirign from terribly constipation and have not been o the toilet for 5 days now am tkaign movicol and lactulsoe adn eat lot sfo fibre it si prob...

hi I am suffeirign from terribly constipation and have not been o the toilet fo...

jillannf6

•10 years ago

19 Replies

Happy St. Pat's Day all! (All Irish on my mom's side:). Question for any/all on Sinemet

My PSP guy takes his Sinemet in the morning & afternoon. I realized that is when he is most agitated and out of control. And unfortunately, usually, it is in...

My PSP guy takes his Sinemet in the morning & afternoon. I realized that is when...

goldcap

•10 years ago

21 Replies

ST PATRICKS DAY

HI TO YOU ALL IT IS ST PATRICKS DAY TODAY AND THO I DO NOT HAVE ANY IRISH BLOOD IN EM AT ALL (i AM FROM YORKSHIRE AFTER ALL) IT SI SOMETHING TO CELEBRATE AS...

HI TO YOU ALL IT IS ST PATRICKS DAY TODAY AND THO I DO NOT HAVE ANY IRISH BLOOD...

jillannf6

•10 years ago

11 Replies

Hi Jill my dad has good and bad days, he has been to the hospital today so is very tired but ok. He had a fall yesterday :( but didn't hurt

Himself thankfully. How are you today? X

Joannebale43

•10 years ago

6 Replies

Where do we go from here

Mum lost all mobile in January sit in chair all day hoisted onto commode onto bed several times a day , declined from having peg where we go from here I really...

Mum lost all mobile in January sit in chair all day hoisted onto commode onto be...

blackcushion

•10 years ago

12 Replies

Pain

Hope you are all bearing up under the strain I know how hard and frustrating it all is. My mum is in alot of pain with her legs now they have prescribed...

Hope you are all bearing up under the strain I know how hard and frustrating it ...

blackcushion

•10 years ago

7 Replies

Does anybody no why PSP suffers display this bad behaviour grabbing people , kicking, spitting, throwing themselves on the floor.

Also is there anything we can do to help control it other than drugs…

82wendy

•10 years ago

23 Replies

Joanne bale

I just want to say how much I get from this forum, everyone's input in inspiring. My dad has psp and this forum is helping us no end - thank you x

I just want to say how much I get from this forum, everyone's input in inspiring...

Joannebale43

•10 years ago

36 Replies

A Poem For Mum:

'Hello, Gorgeous', you uttered two words. Two words which were music to my ears. It's been so many weeks since I heard your voice. So many weeks since I saw...

'Hello, Gorgeous', you uttered two words. Two words which were music to my ears...

hooperhyde

•10 years ago

36 Replies

How many years did you have symptoms for before you where diagnosed with psp please

I have had many tests, first thoughts where small strokes due to having AF, then MS and having gone through tests this all negative. Left now with...

I have had many tests, first thoughts where small strokes due to having AF, then...

Hidden

•10 years ago

12 Replies

Why do the doctors say there's no cure when after researching for 30 minutes I have found all sorts of potential help

Also do any of these groups ever collate what the sufferers eat, what there jobs were, what vaccinations they have been given, whether there tap water is hard...

Also do any of these groups ever collate what the sufferers eat, what there jobs...

Truthjuice

•10 years ago

18 Replies

Should J get a shingles jab?

The doctors has asked her to have a shingles inoculation. I know that any jabs like this can sometimes make people feel unwell and with J that could mean...

The doctors has asked her to have a shingles inoculation. I know that any jabs l...

Rockfly

•10 years ago

15 Replies

Results of the CoQ10 study

Good morning, all. For anyone who was anxious to know about the results of the CoQ10 study that was concluded at the end of last year, I apologize for my...

Good morning, all. For anyone who was anxious to know about the results of the ...

easterncedar

•10 years ago

7 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for March 2014

Turmeric and Q10

Morphine patches

Hi Everyone, I cannot believe the crap we've been dealt and where it has got us. In February, we were promised a room in a care facility for

Can anybody tell me how you no someone is in final stages of life

My husband is coming out of hospital today and I am scared I will not cope.

I don't know what to do

Explaining.....

PSP Virgin

PSP Bladder infections and UTI's, bladder stopped working. The and overuse of antibiotics.

Does anyone's loved one make unreasonable financial requests?

AN AGONIZING PLATEAU

My dad has started grinding of his teeth really hard while he is awake - does anyone have experience of this and any way of stopping it?

Scared....

Dale Shorts (1943-2014)

Hi all.my dad's had his peg fitted,all is well.just having a problem,mostly in a morning he has mucos in his throat,

Is this Silent Migraine's?

CONSTIPATION : THAT OLD CHESTNUT

Happy St. Pat's Day all! (All Irish on my mom's side:). Question for any/all on Sinemet

ST PATRICKS DAY

Hi Jill my dad has good and bad days, he has been to the hospital today so is very tired but ok. He had a fall yesterday :( but didn't hurt

Where do we go from here

Pain

Does anybody no why PSP suffers display this bad behaviour grabbing people , kicking, spitting, throwing themselves on the floor.

Joanne bale

A Poem For Mum:

How many years did you have symptoms for before you where diagnosed with psp please

Why do the doctors say there's no cure when after researching for 30 minutes I have found all sorts of potential help

Should J get a shingles jab?

Results of the CoQ10 study

Sponsored Warrior Run for the PSP Association - Lots of mud and obstacles!

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive