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PSP Association

9,254 members • 11,351 posts

All posts for June 2015

Jury service

Well I am still waiting for a reply to my request to be excused from Jury service as I am full time carer. Phoned them and was told carers are not exempt but I...

Well I am still waiting for a reply to my request to be excused from Jury servic...

gypsywoman1947

•9 years ago

21 Replies

What's best for mum without upsetting dad.

My mum was wrongly diagnosed with Parkinson's 6 yrs ago and last December the neurologist said it was more likely to be p.s.p. Dad has gone from being a man...

My mum was wrongly diagnosed with Parkinson's 6 yrs ago and last December the ne...

Minniemuffin

•9 years ago

19 Replies

another online party??

just let me know when would be a good time to hold it= what about thursday 16 july afternoon or wha totem would ne best for you all = in USA ?/CANADA/...

just let me know when would be a good time to hold it= what about thursday 16 j...

jillannf6

•9 years ago

15 Replies

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Possible stroke?

The other night I was called up to the nursing home where my mum is. She was unresponsive and didn't acknowledge I was there, which isn't her as she always has...

The other night I was called up to the nursing home where my mum is. She was unr...

steph75

•9 years ago

12 Replies

Amazing!!!!

This is my husband henry and his best friend Pete. Last weekend they cycled from London to Scarborough 270 miles in 19 hours!!! All for research into psp...

This is my husband henry and his best friend Pete. Last weekend they cycled fro...

steph75

•9 years ago

13 Replies

Nana B

My mother has been diagnosed with psp and I look at this website daily. I never have written a post before today. Nana B may I say a big thank you to you as...

My mother has been diagnosed with psp and I look at this website daily. I never ...

york

•9 years ago

27 Replies

My Dad

Forgive my simple post title. My father was diagnosed with this horrible illness a while back after what seems to be the usual misdiagnosis of Parkinson's....

Forgive my simple post title. My father was diagnosed with this horrible illne...

DanRiley

•9 years ago

14 Replies

Other product....

I also found this on the the Staples website as well. I wasn't able to to try neither of these items with my dads but thought it may be helpful for someone...

I also found this on the the Staples website as well. I wasn't able to to try n...

jessybx19

•9 years ago

4 Replies

Wheelchair Leg Rest

Hello beautiful people, I was searching for a personal item when I came across this. It's the: Ableware Soft Touch Tuffet Foot or Leg Rest Item:...

Hello beautiful people, I was searching for a personal item when I came across ...

jessybx19

•9 years ago

1 Reply

PSP onselt after a stroke

I am looking for other PSP patients that were diagnosed after a stroke. My father in law- 72 years old- was 100% independent, did everything on his own. Baby...

I am looking for other PSP patients that were diagnosed after a stroke. My fat...

ahaigwood3

•9 years ago

5 Replies

AMBUSHED !!!!!

Last week our doctor "call me Emma " phoned to say she had been talking with my daughter and she thought we should all meet to discuss a future care plan...

Last week our doctor "call me Emma " phoned to say she had been talking with m...

Georgepa

•9 years ago

12 Replies

FALLING

Last night D got up to use the potty. A little wet on his undies and he took them off in the bathroom. Thought he might have to do more. Went to put on clean...

Last night D got up to use the potty. A little wet on his undies and he took the...

Auddonz

•9 years ago

89 Replies

Hospital

Well we arrived at the hospital they asked us to come earlier so we arrived at 10 o'clock no bed still waiting for a bed it is 3 o'clock George is so tired...

Well we arrived at the hospital they asked us to come earlier so we arrived at 1...

Yvonneandgeorge

•9 years ago

8 Replies

jhon

well today is a very sad one im losing jhon its been a long hard strugle this is so cruel i thanck all of you for thee suport through tis cruel illness

well today is a very sad one im losing jhon its been a long hard strugle this is...

laila123

•9 years ago

21 Replies

Good News

Youth group kids are are building B a wheelchair ramp! 36 feet long (about 11 meters). B does not totally need this but they were ready to build so I just...

Youth group kids are are building B a wheelchair ramp! 36 feet long (about 11 me...

abirke

•9 years ago

5 Replies

HERE IS YOUR BABY YVONNE AND GEORGE

THERE IS NOT MUCH TO SAY BUT HERE YOU ARE

shasha

•9 years ago

6 Replies

Happy Father's Day

Thank you Dad for being the best Dad I could ever wish for. Thank you for being my rock, Thank you for looking after my Mum Thank you for always being there...

Thank you Dad for being the best Dad I could ever wish for. Thank you for being ...

Katet68

•9 years ago

11 Replies

Walking on Toes

Does anyone walk on toes with a walker and look like they are going to fall flat on their face. It is getting worse but sometimes when on a straight run it is...

Does anyone walk on toes with a walker and look like they are going to fall flat...

Folliott

•9 years ago

9 Replies

Unexpected loss

A very sad day as my wife collapsed and passed away early this morning. She had been suffering from PSP for about 2 years but it was steadily getting worse....

A very sad day as my wife collapsed and passed away early this morning. She had ...

Hidden

•9 years ago

28 Replies

Depression

Hi everyone headed over to Fort Bragg again Aunt Bev is so depressed I had to do something to lift her spirts she does not want to live like this anymore God...

Hi everyone headed over to Fort Bragg again Aunt Bev is so depressed I had to do...

kryste

•9 years ago

4 Replies

Feeding tube or not?

Hi everyone, My mother has been diagnosed with PSP since the Fall of 2011 and it's been a real hard journey. I have been reading this site for a few years...

Hi everyone, My mother has been diagnosed with PSP since the Fall of 2011 and i...

maryam

•9 years ago

11 Replies

Nil by mouth

Please can any one help mother has advanced PSP and in a nursing home. She is completely peg fed and allowed nothing by mouth at all she is able to...

Please can any one help mother has advanced PSP and in a nursing home. She is co...

elizalou1710

•9 years ago

10 Replies

Day out

I decided to take Brian for a stroll along clacton sea front today. As we were strolling along Brian happy as can be eating his icecream. i thought to myself...

I decided to take Brian for a stroll along clacton sea front today. As we were s...

jzygirl

•9 years ago

14 Replies

I don't need this!

I have shingles and am feeling very sorry for myself. When I had it in 1973 I was suicidal with the pain but as I have now been given antiviral drugs I'm...

I have shingles and am feeling very sorry for myself. When I had it in 1973 I wa...

NannaB

•9 years ago

38 Replies

little baby

hello yvonne and george i have put your little baby around the right way - he certainly is very cute

hello yvonne and george i have put your little baby around the right way - h...

shasha

•9 years ago

7 Replies

Honeymoon over!!!

Hi, it's 8.00am. Been up for a few hours now! Both my boys have been hosed down, two sets of bedding washed, floor and crate washed, had their breakfasts....

Hi, it's 8.00am. Been up for a few hours now! Both my boys have been hosed dow...

Heady

•9 years ago

13 Replies

My Bank!

I will name names here, HSBC. had a episode With them this week. When S started to have problems communicating, I went to our bank, explained the situation...

I will name names here, HSBC. had a episode With them this week. When S start...

Heady

•9 years ago

21 Replies

My Baby!!!

Hi, sorry photo upside down, for some reason, it's just done this!!! Anyway, survived the first 24 hours! No mishaps. He is very quiet, sleeps a lot, still...

Hi, sorry photo upside down, for some reason, it's just done this!!! Anyway, s...

Heady

•9 years ago

13 Replies

Hospital

Hi all one thing after another, George has to go into hospital tomorrow, had a phone call at 4.45 today, to say that they have not got any beds, so I thought...

Hi all one thing after another, George has to go into hospital tomorrow, had a p...

Yvonneandgeorge

•9 years ago

24 Replies

Father's Day ideas?

Hi All, My sisters and I are looking for ideas on what to do or get for dad for Father's Day. We'll be bringing him to the cottage (one of his favourite...

Hi All, My sisters and I are looking for ideas on what to do or get for dad for ...

4mydad

•9 years ago

12 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2015

Jury service

What's best for mum without upsetting dad.

another online party??

Possible stroke?

Amazing!!!!

Nana B

My Dad

Other product....

Wheelchair Leg Rest

PSP onselt after a stroke

AMBUSHED !!!!!

FALLING

Hospital

jhon

Good News

HERE IS YOUR BABY YVONNE AND GEORGE

Happy Father's Day

Walking on Toes

Unexpected loss

Depression

Feeding tube or not?

Nil by mouth

Day out

I don't need this!

little baby

Honeymoon over!!!

My Bank!

My Baby!!!

Hospital

Father's Day ideas?

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive