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PSP Association

9,243 members • 11,343 posts

All posts for December 2013

To all the brave souls…

I wish you all a good New Year or a year with more advancements in the world of PSP. Although my mother completed her journey this summer in a peaceful and...

I wish you all a good New Year or a year with more advancements in the world of ...

Sugardart

•10 years ago

8 Replies

Happy New Year Everyone! especially ....

Hope everyone has a peaceful new year and able enjoy some sort of party! I especially hope the researchers are having a relaxing time, you all have a great...

Hope everyone has a peaceful new year and able enjoy some sort of party! I espe...

Heady

•10 years ago

6 Replies

Will a u,step walker help me"?"

Imam buying Ustep walker as I'm fed u p!with waiting for,the NHs to,get me an Electric wheelchair Will,it,help,me reduce my falls inside,and out and give me...

Imam buying Ustep walker as I'm fed u p!with waiting for,the NHs to,get me an El...

jillannf6

•10 years ago

4 Replies

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my mom screams a lot and she is very restless , is she in pain .what should we do to comfort her .

bhawnapandey

•10 years ago

5 Replies

Swallowing problems...what can I do to help?

Hi everyone, We've encountered a new problem. Bob has been on a feeding tube for almost 10 months now. It was mostly an inability to chew his food, more than...

Hi everyone, We've encountered a new problem. Bob has been on a feeding tube fo...

laroux

•10 years ago

24 Replies

Hi all my dad passed away peacefully in oldham hospice Lovely place on the 20 December no more suffering anymore for my wonderful Dad

Baddie

•10 years ago

18 Replies

Chritmas Day Crash

Not realy a question more like a mishap, The first of my Girls arrived with Children and partners as they all do every year,My Wife went out to greet them as...

Not realy a question more like a mishap, The first of my Girls arrived with Chil...

stalbans

•10 years ago

6 Replies

UPDATE on my daughter, Missy; a Christmas miracle, for sure.

First, thank you, everyone, for your prayers for Melissa. You touch my heart. She's home from the hospital now, but not quite out of the woods. So, please keep...

First, thank you, everyone, for your prayers for Melissa. You touch my heart. Sh...

JudyJ

•10 years ago

12 Replies

Merry Christmas to All!

It is now 25 December and one minute past midnight. Santa visited all dressed in woollen garb. Dropped off a couple of items. Sure am lucky he did as he was...

It is now 25 December and one minute past midnight. Santa visited all dressed ...

SharonAB

•10 years ago

6 Replies

Asking for prayers for my daughter, Missy, age 21, who had hip surgery today and developed a serious complication.

Those who've read my posts know the backstory of why she needs these surgeries. This was her 5th and went better than expected. When her surgeon was actually...

Those who've read my posts know the backstory of why she needs these surgeries. ...

JudyJ

•10 years ago

15 Replies

The New Year

I would like to wish for everyone here strength, love and peace in the New Year. And thanks for all the good advice and support. I'm so glad I found this...

I would like to wish for everyone here strength, love and peace in the New Year....

easterncedar

•10 years ago

4 Replies

Why I find PSP to be so horrendous. The side hidden from public eye...

The most enjoyable memories and experiences in my life I associate with the senses of smell and touch. That stopped when my husband developed PSP. Instead of...

The most enjoyable memories and experiences in my life I associate with the sens...

SharonAB

•10 years ago

25 Replies

Hi everyone I am new to this x

Hello there my mum has got psp and has had it 4 about 4 yrs, she kept s falling over, and her speech is going, will it go all together x

Hello there my mum has got psp and has had it 4 about 4 yrs, she kept s falling ...

Cazzawazza

•10 years ago

5 Replies

Hi guys my husband was diagnosed with psp three and a half years ago, about four or five years earlier he was showing symptoms. his legs

weak,he no swing in his arms his hand writing became very small,he took everything seriously.I found living with him difficult and at times I wanted to leave...

weak,he no swing in his arms his hand writing became very small,he took everythi...

oops54

•10 years ago

12 Replies

A Christmas Gift? One Plateau!

This time last year my wife was in a brace (for 3 months) due to a fall that broke her T12 vertebra. It's a common experience that PSP progresses faster when a...

This time last year my wife was in a brace (for 3 months) due to a fall that bro...

Hidden

•10 years ago

13 Replies

Wishing you all a Happy Christmas

As another year draws to an end, I find myself thinking of the last 12 months. Many sad changes for a lot of us this year, my heart goes out to those of us who...

As another year draws to an end, I find myself thinking of the last 12 months. M...

JoJo-K

•10 years ago

13 Replies

Christmas Lights a No Go

My husband is being cared for in a private care home. He is the only patient currently. The home is a split foyer (meaning you enter halfway between floors....

My husband is being cared for in a private care home. He is the only patient cur...

carolinesimmons

•10 years ago

8 Replies

Christmas Greetings from the South West UK.

To you all coping with PSP, caring for a loved one or maybe have cared for someone with psp may I wish you a peaceful and happy Christmas. This time of the...

To you all coping with PSP, caring for a loved one or maybe have cared for someo...

Peter3

•10 years ago

8 Replies

Just found coconut oil, now what?

Hi All, I have just found coconut oil in our local supermarket. How much should I give S? Also, in what form, just neat or should it be with his cereals in...

Hi All, I have just found coconut oil in our local supermarket. How much should...

Heady

•10 years ago

3 Replies

Christmas Greetings

Wishing you all a peaceful Christmas season, especially those of you who are facing the holidays without a loved one for the first time. I do hope memories of...

Wishing you all a peaceful Christmas season, especially those of you who are fac...

hmfsli

•10 years ago

6 Replies

My 59yr old mother has been diagnosed with PSP. Has extreme anxiety, along with other symptoms. Has anyone in a state legal to do so--

looked into the use of cannabinoids?

jrock777

•10 years ago

11 Replies

How about a walker? ( Maybe you'd call it a zimmer frame?)

My sweetheart has agreed to try using a walker. The cane doesn't seem to be enough - although we forget to bring it along quite a bit, so perhaps it could...

My sweetheart has agreed to try using a walker. The cane doesn't seem to be eno...

easterncedar

•10 years ago

23 Replies

My Sister 80 yrs. old has had PSP for about 3 years, rapid progression.Was suggested she could try speech therapy, as she hardly speaks now

when you ask her a question or speak to her you get no responce.How could speech therapy help? Anyone know?

when you ask her a question or speak to her you get no responce.How could speech...

nannygoon

•10 years ago

9 Replies

I am having difficulty with my speech - both thinking of words and forming them - what are other people experiencing in this regard?

I am afraid that I am going to have increasing problems with speech and swallowing before the end. I don't yet have problems with swallowing but I am afraid I...

I am afraid that I am going to have increasing problems with speech and swallowi...

LyndaEllis

•10 years ago

16 Replies

I have another question, has anyone been referred to a pyschogeriatrician? My GP has referred my husband to one to try to help with

Controlling his moods and aggressive behaviour towards me. Dorothy thompson

dorothy-thompson

•10 years ago

1 Reply

My dad has psp, until 2 months ago he had been quiet & disinterested, now he shouts constantly like he has dementia, is this still psp?

Hidden

•10 years ago

4 Replies

Hello ... I am new to this forum. I am 57 yrs. old and recently diagnosed with psp. How much Co.q 10 are you supposed to take?

Lynda57

•10 years ago

14 Replies

Can someone,anyone, please please help me with the vexed question of constipation. I know it goes with the territory of PSP but my husband

can go for days without "going" so to speak. I have tried Prunes and prune juice He has porridge and fruit every day He has as much fluids as he will accept...

can go for days without "going" so to speak. I have tried Prunes and prune jui...

dorothy-thompson

•10 years ago

12 Replies

My sister has had PSP now for about 3 years,can't speak much now, just stares blankly.Can she be aware of what we are saying to her?

nannygoon

•10 years ago

26 Replies

Lord (Sebastion) Coe building new research centre

You may find this interesting: http://www.telegraph.co.uk/health/healthnews/10376092/Sebastian-Coes-going-for-gold-again-2-million-to-be-precise.html...

You may find this interesting: http://www.telegraph.co.uk/health/healthnews/10...

wifemo

•10 years ago

15 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for December 2013

To all the brave souls…

Happy New Year Everyone! especially ....

Will a u,step walker help me"?"

my mom screams a lot and she is very restless , is she in pain .what should we do to comfort her .

Swallowing problems...what can I do to help?

Hi all my dad passed away peacefully in oldham hospice Lovely place on the 20 December no more suffering anymore for my wonderful Dad

Chritmas Day Crash

UPDATE on my daughter, Missy; a Christmas miracle, for sure.

Merry Christmas to All!

Asking for prayers for my daughter, Missy, age 21, who had hip surgery today and developed a serious complication.

The New Year

Why I find PSP to be so horrendous. The side hidden from public eye...

Hi everyone I am new to this x

Hi guys my husband was diagnosed with psp three and a half years ago, about four or five years earlier he was showing symptoms. his legs

A Christmas Gift? One Plateau!

Wishing you all a Happy Christmas

Christmas Lights a No Go

Christmas Greetings from the South West UK.

Just found coconut oil, now what?

Christmas Greetings

My 59yr old mother has been diagnosed with PSP. Has extreme anxiety, along with other symptoms. Has anyone in a state legal to do so--

How about a walker? ( Maybe you'd call it a zimmer frame?)

My Sister 80 yrs. old has had PSP for about 3 years, rapid progression.Was suggested she could try speech therapy, as she hardly speaks now

I am having difficulty with my speech - both thinking of words and forming them - what are other people experiencing in this regard?

I have another question, has anyone been referred to a pyschogeriatrician? My GP has referred my husband to one to try to help with

My dad has psp, until 2 months ago he had been quiet & disinterested, now he shouts constantly like he has dementia, is this still psp?

Hello ... I am new to this forum. I am 57 yrs. old and recently diagnosed with psp. How much Co.q 10 are you supposed to take?

Can someone,anyone, please please help me with the vexed question of constipation. I know it goes with the territory of PSP but my husband

My sister has had PSP now for about 3 years,can't speak much now, just stares blankly.Can she be aware of what we are saying to her?

Lord (Sebastion) Coe building new research centre

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Latest poll

What are your main concerns as a carer?

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