Posts - PSP Association | HealthUnlocked

PSP Association

9,255 members • 11,351 posts

All posts for November 2020

Diagnosis in Switzerland

My sister age 67 who lives in Switzerland, has just been diagnosed with psp. Had a few falls in the last couple of years since retiring and had a finger tremor...

My sister age 67 who lives in Switzerland, has just been diagnosed with psp. Had...

schnauzerlover

•3 years ago

4 Replies

PSP starts how?

Shannon27

•3 years ago

11 Replies

"Grandma's PSP has inspired my interest in research"

“Even though I was young, I knew my grandmother had been showing signs that something wasn’t quite right a few years before she received her diagnosis of PSP....

“Even though I was young, I knew my grandmother had been showing signs that some...

HelenPSPA

Administrator•3 years ago

5 Replies

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Speech difficulties

Has anyone any experience using AAC software with PSP sufferers? My wife gets very frustrated now that her speech has degraded to the extent that she finds it...

Has anyone any experience using AAC software with PSP sufferers? My wife gets v...

Scottoppy

•3 years ago

5 Replies

Rifton tram lift for CBD

Does anyone have a rifton tram in the states they would donate or lend? My dad has CBD & getting to the point where he needs a lift. Apparently Medicare...

Does anyone have a rifton tram in the states they would donate or lend? My dad ...

Palmtree31

•3 years ago

1 Reply

Winterized Willy

Thought I'd share a picture of Willy (my walker). Old man Winter... bring it on. Tim

Thought I'd share a picture of Willy (my walker). Old man Winter... bring it on....

daddyt

•3 years ago

27 Replies

PSPA Network Meetings

We have a number of Network Meetings coming up on Zoom between now and Christmas. These include: Northern Ireland Local Group Meeting, 11am 24 November...

We have a number of Network Meetings coming up on Zoom between now and Christmas...

HelenPSPA

Administrator•3 years ago

2 Replies

Looking for Qualified Physio

Looking for Qualified Physio and speech therapist Gippsland

Michael011

•3 years ago

1 Reply

Mum just been diagnosed with psp

My mum has been treated for Parkinson's for the past 5 years, but now is in hospital virtually paralysed and we have been told she doesn't have Parkinson's she...

My mum has been treated for Parkinson's for the past 5 years, but now is in hosp...

ukcountryside

•3 years ago

10 Replies

Aspirating the formula

Hi, I am Looking for some advice My dad has PSP and had a Peg tube for a month which was then replaced with Peg-j as he had a bad reflux and started aspirating...

Hi, I am Looking for some advice My dad has PSP and had a Peg tube for a month w...

Aslin

•3 years ago

1 Reply

Youth Support Group

Our second Youth Support Group Meeting is scheduled to take place on Zoom at 7pm on Thursday 26 November. The group brings together young people aged between...

Our second Youth Support Group Meeting is scheduled to take place on Zoom at 7pm...

HelenPSPA

Administrator•3 years ago

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Partnering in PSP Research

If you are a caregiver or a patient with PSP living in the US and Canada - UK soon, you may want to consider checking out https://www.allstripes.com/. It will...

If you are a caregiver or a patient with PSP living in the US and Canada - UK so...

daddyt

•3 years ago

2 Replies

Participants wanted for study looking into mechanisms of PSP

Participants are being sort for a research study looking into the mechanisms of PSP and to suggest potential novel targets to slow or stop the progression of...

Participants are being sort for a research study looking into the mechanisms of ...

HelenPSPA

Administrator•3 years ago

3 Replies

Tens machine

Anyone used a tens machine for easing the arm and hand that is clenched in CBD.. How did it go. I am goi g to try an entry level machine on my dads arm this...

Anyone used a tens machine for easing the arm and hand that is clenched in CBD.....

Planthead

•3 years ago

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Nominate PSPA for a £1000 donation

Please nominate PSPA for the Movement for Good 12 days of Giving. Each week, between 7 and 22 December, Movement for Good will draw ten charities from those...

Please nominate PSPA for the Movement for Good 12 days of Giving. Each week, bet...

HelenPSPA

Administrator•3 years ago

4 Replies

Not so alone

Thought you’d like to see my little companions

Aprilfool20

•3 years ago

11 Replies

PSP carer available

Good evening , Im a self employed live in carer , with nursing background, looked after a client with PSP for 7years. I have 2 weeks free (from this...

Good evening , Im a self employed live in carer , with nursing background, look...

janette1105

•3 years ago

5 Replies

Final stage

My wife passed last week...thought i would tell her last stage * bed bound for last month (October) * loss control of bowels (3 weeks ago) * right arm & hand...

My wife passed last week...thought i would tell her last stage * bed bound for...

vecon

•3 years ago

24 Replies

Surgery

Does cataract surgery help with PSP And does it work

Pattyd104

•3 years ago

14 Replies

Smiles

My daughter's Girl Guide unit set them a challenge of decorating pebbles to leave around the neighbourhood and cheer people up. Thought this virtual PSP...

My daughter's Girl Guide unit set them a challenge of decorating pebbles to leav...

Doublereeder

•3 years ago

14 Replies

Up date

Hi everyone just wanted you to know Rick is feeling better. Getting hard for him to control his C walker but he try’s and that is all we can ask for.

Hi everyone just wanted you to know Rick is feeling better. Getting hard for him...

Hidden

•3 years ago

2 Replies

Swollen Arms & fingers

Is urine retention and swollen arms/fingers a symptom of moving from advanced to end stage PSP and kidney failure? With an ADRT in place, except for reversible...

Is urine retention and swollen arms/fingers a symptom of moving from advanced to...

susanbennett100

•3 years ago

5 Replies

Sharing experiences of PSP & CBD

Sharing your experience of PSP & CBD not only helps other people, it enables PSPA to raise awareness of the conditions on our website, social media, PSPA...

Sharing your experience of PSP & CBD not only helps other people, it enables PSP...

HelenPSPA

Administrator•3 years ago

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It’s that time

I was not looking forward to the stage my mum is entering. She has just had her first bronchitis infection, is on antibodics and improving. The nursing home...

I was not looking forward to the stage my mum is entering. She has just had her ...

Goroos

•3 years ago

2 Replies

New report highlights challenges people with Rare Neurological Diseases face

Following nine months of consultation, the rare neurological disease report, titled ‘Out of the Shadows’, has been launched by the Neurological Alliance......

Following nine months of consultation, the rare neurological disease report, tit...

HelenPSPA

Administrator•3 years ago

2 Replies

Pain relief advice for CBD the pain is getting unbearable at times.

I'm 58 and struggling. The pain gets unbearable. I wish I knew why. My GP prescriped high level cocodamol. But it didn't help. Does anyone have any advice. I...

I'm 58 and struggling. The pain gets unbearable. I wish I knew why. My GP prescr...

Upturned

•3 years ago

11 Replies

Feeling Included

I cannot say enough how happy I am that we made this purchase!! Being able to move mom around the house, and include her in the daily activities of the house...

I cannot say enough how happy I am that we made this purchase!! Being able to mo...

bazooka111

•3 years ago

54 Replies

Copper IUD- could this cause Parkinson Plus/Parkinson

I am a 37 y/o female with a lot of symptoms that suggest PSP- convergence insufficiency, gastroparesis, rigid back. I have been to several neurologists and...

I am a 37 y/o female with a lot of symptoms that suggest PSP- convergence insuff...

Pamhill

•3 years ago

5 Replies

Newly Diagnosed Group meeting, 25 November at 11am

Our second Newly Diagnosed Group Zoom meeting is taking place at 11am on 25 November. The group brings together people who have been diagnosed with PSP & CBD...

Our second Newly Diagnosed Group Zoom meeting is taking place at 11am on 25 Nove...

HelenPSPA

Administrator•3 years ago

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Hummingbird

Could I purchase a hummingbird please? Alfie

alfie08

•3 years ago

1 Reply

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for November 2020

Diagnosis in Switzerland

PSP starts how?

"Grandma's PSP has inspired my interest in research"

Speech difficulties

Rifton tram lift for CBD

Winterized Willy

PSPA Network Meetings

Looking for Qualified Physio

Mum just been diagnosed with psp

Aspirating the formula

Youth Support Group

Partnering in PSP Research

Participants wanted for study looking into mechanisms of PSP

Tens machine

Nominate PSPA for a £1000 donation

Not so alone

PSP carer available

Final stage

Surgery

Smiles

Up date

Swollen Arms & fingers

Sharing experiences of PSP & CBD

It’s that time

New report highlights challenges people with Rare Neurological Diseases face

Pain relief advice for CBD the pain is getting unbearable at times.

Feeling Included

Copper IUD- could this cause Parkinson Plus/Parkinson

Newly Diagnosed Group meeting, 25 November at 11am

Hummingbird

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive