Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for August 2020

Dysphagia

We enter new territory. Since Ian's total colectomy 3 weeks ago, he has been having real problems swallowing, and chokes on water etc. I am about to collect...

We enter new territory. Since Ian's total colectomy 3 weeks ago, he has been ha...

•4 years ago

lapse of contretion

today ive had a lapse of concentration for the first time since being diagnosed with corticobasal degeneration recently and it feels like so horrible. I...

today ive had a lapse of concentration for the first time since being diagnosed ...

•4 years ago

a new book

Saw this in the book reviews in 'The Times' today. It is 'The Wild Silence' which is a follow up to 'The Salt Path' which both follow the adventures of the...

Saw this in the book reviews in 'The Times' today. It is 'The Wild Silence' whic...

•4 years ago

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He is gone...

Sometime over night my beloved husband slipped from his frail body to a better place where he would not fall, could speak clearly once again, and his body...

Sometime over night my beloved husband slipped from his frail body to a better p...

•4 years ago

"Going all inclusive made our trip a lot easier"

"Despite my reservations about my CBD at the start, our South Africa safari trip was everything we wanted. "The holiday was all inclusive and included...

"Despite my reservations about my CBD at the start, our South Africa safari trip...

Administrator•4 years ago

Butterfly

Wishing you all kind regards with a lovely peacock butterfly in the garden

Wishing you all kind regards with a lovely peacock butterfly in the garden

•4 years ago

Mum has been in hospital for 10 weeks recent diagnosis of PSP

My mum is 84 years old and has recently been diagnosed with PSP after the humming bird image was found on a SPECT scan , all other scans came back clear. My...

My mum is 84 years old and has recently been diagnosed with PSP after the hummin...

•4 years ago

PSPA Youth Support Group

We are pleased to be launching a new Youth Support Group for young people who care for or have a loved one living with PSP or CBD, thanks to the support of...

We are pleased to be launching a new Youth Support Group for young people who ca...

Administrator•4 years ago

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Falls

My oh has recently had a number of falls about 7 in 3 weeks, sometimes in the past I have had to call the paramedics but often I just deal with it myself, I...

My oh has recently had a number of falls about 7 in 3 weeks, sometimes in the p...

•4 years ago

FDA ACCEPTS BIOGEN’S ADUCANUMAB BIOLOGICS LICENSE APPLICATION FOR ALZHEIMER'S DISEASE

https://investors.biogen.com/news-releases/news-release-details/fda-accepts-biogens-aducanumab-biologics-license-application - Priority Review accelerates FDA...

https://investors.biogen.com/news-releases/news-release-details/fda-accepts-biog...

•4 years ago

Help others by sharing your experience of CBD

We'd love to share more personal experiences from people living with CBD. If you or a loved one has CBD and you would be willing to share details with us on...

We'd love to share more personal experiences from people living with CBD. If you...

Administrator•4 years ago

UK Holidays

For those who find the thought of travelling abroad all a bit too much at the moment there are plenty of options in the UK from hotels that particularly cater...

For those who find the thought of travelling abroad all a bit too much at the mo...

•4 years ago

“Dad loved his holidays and had a real sense of wanderlust."

“Dad loved his holidays and had a real sense of wanderlust. People worry if they can still go abroad with PSP, with some planning it is possible. "We...

“Dad loved his holidays and had a real sense of wanderlust. People worry if they...

Administrator•4 years ago

Woking Local Group's Virtual Tea Party for PSPA

Woking Local Group started a Bake Off competition amongst members in 2017 to raise funds for their room hire. The event was really successful. Family and...

Woking Local Group started a Bake Off competition amongst members in 2017 to rai...

Administrator•4 years ago

PSPA Support Grants now available

Following the fantastic response to our Coronavirus Emergency Appeal, we are pleased to be launching a brand new service - PSPA Support Grants. The PSPA...

Following the fantastic response to our Coronavirus Emergency Appeal, we are ple...

Administrator•4 years ago

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Wet room advice.

Looking to have a wet room installed and wondered if anyone on here had experience of either Mobility Plus or Age UK/Handicare. Or if anyone had a positive...

Looking to have a wet room installed and wondered if anyone on here had experien...

•4 years ago

A triple challenge for PSPA

Our #MondayMotivation is Sam Blanchard. In honour of his dad, who has been diagnosed with PSP, Sam is taking on a unique challenge this summer: The TRIsle of...

Our #MondayMotivation is Sam Blanchard. In honour of his dad, who has been diagn...

Administrator•4 years ago

Finding Carers

Hi all I am in the UK. Has anyone beard of or used a company called Super Carers. I was researching carers who have training in caring for people with brain...

Hi all I am in the UK. Has anyone beard of or used a company called Super Carers...

•4 years ago

Life

I seem to be writing a lot this week, I’m sorry if I’m bothering anyone. My husband has started breathing really hard and fast when ever he does anything. He...

I seem to be writing a lot this week, I’m sorry if I’m bothering anyone. My hus...

•4 years ago

Brushing teeth

Good morning, I have started brushing my husband teeth because he seems to only brush the bottom ones. He can’t seem to brush the top ones he doesn’t seem to...

Good morning, I have started brushing my husband teeth because he seems to only ...

•4 years ago

Refused food, liquid and medication

My wife was diagnosed with CBD three years ago. Last Tuesday decided that she wished to die and refused food, liquids and medication. I’m her full time...

My wife was diagnosed with CBD three years ago. Last Tuesday decided that she wi...

•4 years ago

Dry eyes

My husband suffers terribly with dry eyes. He uses Hylo Forte and Poly Visc which help, but at the end of the day his eyes are very sore. Our Eye Specialist...

My husband suffers terribly with dry eyes. He uses Hylo Forte and Poly Visc whic...

•4 years ago

Living with PSP

Hello I’m new to this site. My husband was diagnosed with PSP in February 2019. He was initially diagnosed a year earlier with Parkinson’s disease but...

Hello I’m new to this site. My husband was diagnosed with PSP in February 2019. ...

•4 years ago

Living life to the full with PSP

Karen’s husband David was diagnosed with PSP in 2015. Despite the challenges of PSP, her family continued to live life to the full. Karen said: "Early on in...

Karen’s husband David was diagnosed with PSP in 2015. Despite the challenges of ...

Administrator•4 years ago

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Raising's awareness of PSP at Parkinson UK conference

We’re proud to be collaborating with Parkinson's UK to raise more awareness of PSP during the second day of their Online Research Conference, 24 to 25...

We’re proud to be collaborating with Parkinson's UK to raise more awareness of P...

Administrator•4 years ago

A Guide to PSP & CBD for GPs and the Primary Healthcare Team

Our 'Guide to PSP & CBD' booklets can help support your GP and primary healthcare professionals involved in your care. The booklets not only provide an...

Our 'Guide to PSP & CBD' booklets can help support your GP and primary healthcar...

Administrator•4 years ago

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Paranoia

Hi everyone, I recently saw and commented on a post about hallucinations, well since then it has got worse for my poor Mum. Her strong hallucinations and...

Hi everyone, I recently saw and commented on a post about hallucinations, well s...

•4 years ago

Challenges

Because of the nature of Ian's present limitations, we are housebound regardless of Covid rules! So we thought we would add to the daily basic challenges.......

Because of the nature of Ian's present limitations, we are housebound regardless...

•4 years ago

PSPA Summer Raffle closes 31 August

Tickets for our popular Summer Raffle are still available until 31 August. Tickets are just £1 each and every ticket sale goes towards helping more people...

Tickets for our popular Summer Raffle are still available until 31 August. Ticke...

Administrator•4 years ago

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We are all Essential

This photo I snapped of my precious Momma this morning in a new shirt that a friend gifted. These have been some difficult days for us, and my Momma seems to...

This photo I snapped of my precious Momma this morning in a new shirt that a fri...

•4 years ago

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