Posts - PSP Association | HealthUnlocked

PSP Association

9,178 members11,303 posts

All posts for December 2022

BBC Article Sept 2021. - https://www.bbc.co.uk/news/uk-england-hampshire-58641372.amp

Afternoon Further to the trial mentioned in the above BBC news link, I was wond...
Sweenstar profile image

Loss of Mobility

My husband has PSP and although his mobility was poor, up until this week he cou...
Redjune1 profile image

hiccups after surgery

hi not sure if this is the rightforum, but my father had an epidural to numb ...
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Are we approaching end of life?

My mom was diagnosed with PSP in late 2013 at the age of 58. Over the years she ...
Cbui profile image

Rigidity

I really need to know if anyone else's LO is suffering like my husband with his ...

End of life - day 7

Mum’s challenging journey with CBD is approaching the end. She is now 7 days wit...
broadie79 profile image

Going through the nightmare

Hi everyone, I’m not sure why I am writing this but feel I need to off load. My ...
Kelly2807 profile image

Nela is at peace

It’s been a while since my last post. A week ago, today, Nela fell asleep and i...

Journey's end

Dear All, I have finally come to the end of my journey being a carer for my mot...

Covid

Hello, I am looking for a bit of advice. My husband who was diagnosed with PSP 4...
Purp23 profile image

Fed up and guilty

Hi friends just needed a moan. You must all be sick of me by now. As this diseas...

Waiting times in hospital dreadful for mum

Hi friends hope you are all keeping strong and hugs to you all. I know I need a ...

Pill Crusher

Hi.. does anyone have a favorite pill crusher? I have been struggling with a man...
LARWLSN profile image

carers

hi quick question im mum full time carer im not in best of health i have ra wait...

TV remote control

Has anyone found a solution to help the person they care for change channels on ...
messier profile image

Blue fingertips

So my very determined mum is still somehow fighting this very cruel disease. Aga...

When communication is pretty much impossible

Does anyone have suggestions regarding what to do when all verbal communication ...
LARWLSN profile image

Carers Assessment

I’m due to have a carers assessment soon and I just wondered if anyone else has ...
Redjune1 profile image

Any advice on how to deal with fractures and PSP

Hi , Mum was diagnosed with PSP in December 2020 , she is still able to walk but...
Juliana29 profile image

Glad to find this community + some learning about inconsistent bowel movements from an incident today

Hi everyone, I'm new here. My name is Steph and my mom was diagnosed last year w...

Goodbye to my love

I am sorry to announce that on the 23rd November we sadly said goodbye to my dar...
Brenive profile image

Additional care support & benefits advice

Hi there, my Mum is almost 2 years diagnosed with PSP and definite worsening on ...

Celebration of Life today for my Momma

Today we celebrate and honor the life of my sweet Momma — I have coffee in her h...

Messed up bowels

Hi friends just wanted to ask if anyone else has experienced this with their lov...

Angel Wings

The best things in life, are the people we love, the places we’ve been, and the ...

Please read about our trip to NYC.

We just took my “last trip”. It was to New York. Here are our sincere reflectio...
Kayelless profile image

Hardest journey …

I’m sitting here in disbelief this morning ; this day 12 without nutrition or hy...

listening

mum is getting worse quite quickly, her walking is very bad at moment plus she h...

Episodes while eating

Has anyone had experiences when they are feeding thier loved ones they they some...

Panic over cataract surgery

Hi friends I'm writing this as mum is on the toilet. She has cataract surgery du...

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