Posts - PSP Association | HealthUnlocked

PSP Association

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All posts for December 2022

BBC Article Sept 2021. - https://www.bbc.co.uk/news/uk-england-hampshire-58641372.amp

Afternoon Further to the trial mentioned in the above BBC news link, I was wondering if anybody had heard any brief update on the initial observations or...

Afternoon Further to the trial mentioned in the above BBC news link, I was wond...

Sweenstar

•2 years ago

2 Replies

Loss of Mobility

My husband has PSP and although his mobility was poor, up until this week he could get around our flat using his stick. This week though his mobility just...

My husband has PSP and although his mobility was poor, up until this week he cou...

Redjune1

•2 years ago

11 Replies

hiccups after surgery

hi not sure if this is the rightforum, but my father had an epidural to numb his nerves to get knees operated on. He developed a severe case of hiccups for...

hi not sure if this is the rightforum, but my father had an epidural to numb ...

santiagomark

•2 years ago

6 Replies

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Are we approaching end of life?

My mom was diagnosed with PSP in late 2013 at the age of 58. Over the years she progressed through different stages from walking imbalance, to walker, to wheel...

My mom was diagnosed with PSP in late 2013 at the age of 58. Over the years she ...

Cbui

•2 years ago

12 Replies

Rigidity

I really need to know if anyone else's LO is suffering like my husband with his whole body just going extremely rigid. He was diagnosed in February 2020...

I really need to know if anyone else's LO is suffering like my husband with his ...

Autumnstone

•2 years ago

8 Replies

End of life - day 7

Mum’s challenging journey with CBD is approaching the end. She is now 7 days with no food or fluids. We said goodbye to my stepdad at his funeral on Wednesday....

Mum’s challenging journey with CBD is approaching the end. She is now 7 days wit...

broadie79

•2 years ago

9 Replies

Going through the nightmare

Hi everyone, I’m not sure why I am writing this but feel I need to off load. My dad who’s been diagnosed since 2020 has been through an awful time. Dad has...

Hi everyone, I’m not sure why I am writing this but feel I need to off load. My ...

Kelly2807

•2 years ago

11 Replies

Nela is at peace

It’s been a while since my last post. A week ago, today, Nela fell asleep and is finally rid of this awful disease. After 2 excruciating weeks of...

It’s been a while since my last post. A week ago, today, Nela fell asleep and i...

cayabrewer

•2 years ago

14 Replies

Journey's end

Dear All, I have finally come to the end of my journey being a carer for my mother who passed away whilst I was holding her hand on Tuesday early morning....

Dear All, I have finally come to the end of my journey being a carer for my mot...

Lizzigator

•2 years ago

31 Replies

Covid

Hello, I am looking for a bit of advice. My husband who was diagnosed with PSP 4 years ago and is currently on a respite break, he has contracted COVID and I...

Hello, I am looking for a bit of advice. My husband who was diagnosed with PSP 4...

Purp23

•2 years ago

7 Replies

Fed up and guilty

Hi friends just needed a moan. You must all be sick of me by now. As this disease progresses for mum it's getting so much much harder. She is in her own world...

Hi friends just needed a moan. You must all be sick of me by now. As this diseas...

Cinderella80

•2 years ago

18 Replies

Waiting times in hospital dreadful for mum

Hi friends hope you are all keeping strong and hugs to you all. I know I need a big hug. I just wanted to say that mum is due cataracts surgery now in...

Hi friends hope you are all keeping strong and hugs to you all. I know I need a ...

Cinderella80

•2 years ago

6 Replies

Pill Crusher

Hi.. does anyone have a favorite pill crusher? I have been struggling with a manual crusher purchased at a chemist and it really isn't making my life easier......

Hi.. does anyone have a favorite pill crusher? I have been struggling with a man...

LARWLSN

•2 years ago

8 Replies

carers

hi quick question im mum full time carer im not in best of health i have ra waiting for hip assessments, but i manage with carers coming in washing and...

hi quick question im mum full time carer im not in best of health i have ra wait...

jeannette1964

•2 years ago

2 Replies

TV remote control

Has anyone found a solution to help the person they care for change channels on the TV or found a radio with big easy to press buttons? Mum is in a home so...

Has anyone found a solution to help the person they care for change channels on ...

messier

•2 years ago

7 Replies

Blue fingertips

So my very determined mum is still somehow fighting this very cruel disease. Again more weight lost, even more frail. Swallow still somehow managing to get...

So my very determined mum is still somehow fighting this very cruel disease. Aga...

MRSYafffle

•2 years ago

13 Replies

When communication is pretty much impossible

Does anyone have suggestions regarding what to do when all verbal communication is gone, typing/writing is gone, pointing to stuff isn't working because this...

Does anyone have suggestions regarding what to do when all verbal communication ...

LARWLSN

•2 years ago

25 Replies

Carers Assessment

I’m due to have a carers assessment soon and I just wondered if anyone else has had one and what to expect? I’m in the UK.

I’m due to have a carers assessment soon and I just wondered if anyone else has ...

Redjune1

•2 years ago

3 Replies

Any advice on how to deal with fractures and PSP

Hi , Mum was diagnosed with PSP in December 2020 , she is still able to walk but has many many falls. She is currently in India and had a fall and has a hair...

Hi , Mum was diagnosed with PSP in December 2020 , she is still able to walk but...

Juliana29

•2 years ago

5 Replies

Glad to find this community + some learning about inconsistent bowel movements from an incident today

Hi everyone, I'm new here. My name is Steph and my mom was diagnosed last year with PSP, although her symptoms have been present for around 4 years. We spent...

Hi everyone, I'm new here. My name is Steph and my mom was diagnosed last year w...

seleonore93

•2 years ago

11 Replies

Goodbye to my love

I am sorry to announce that on the 23rd November we sadly said goodbye to my darling husband Ivor. We have been together almost 66 years and married for 64...

I am sorry to announce that on the 23rd November we sadly said goodbye to my dar...

Brenive

•2 years ago

21 Replies

Additional care support & benefits advice

Hi there, my Mum is almost 2 years diagnosed with PSP and definite worsening on mobility and falls plus behaviourally and emotionally it's getting harder for...

Hi there, my Mum is almost 2 years diagnosed with PSP and definite worsening on ...

tangotango69

•2 years ago

17 Replies

Celebration of Life today for my Momma

Today we celebrate and honor the life of my sweet Momma — I have coffee in her honor with a mug she spent many mornings with. This will be a very hard day, but...

Today we celebrate and honor the life of my sweet Momma — I have coffee in her h...

bazooka111

•2 years ago

28 Replies

Messed up bowels

Hi friends just wanted to ask if anyone else has experienced this with their loved one who has PSP. My mum doesn't go for a number 2 for a while the district...

Hi friends just wanted to ask if anyone else has experienced this with their lov...

Cinderella80

•2 years ago

8 Replies

Angel Wings

The best things in life, are the people we love, the places we’ve been, and the memories we’ve made along the way. My Momma has gained her wings, and is...

The best things in life, are the people we love, the places we’ve been, and the ...

bazooka111

•2 years ago

52 Replies

Please read about our trip to NYC.

We just took my “last trip”. It was to New York. Here are our sincere reflections on what could have been a disaster. Kyle (the patient): I’m the patient,...

We just took my “last trip”. It was to New York. Here are our sincere reflectio...

Kayelless

•2 years ago

5 Replies

Hardest journey …

I’m sitting here in disbelief this morning ; this day 12 without nutrition or hydration. She is hanging on and my heart is just broken. She is in no pain,...

I’m sitting here in disbelief this morning ; this day 12 without nutrition or hy...

bazooka111

•2 years ago

48 Replies

listening

mum is getting worse quite quickly, her walking is very bad at moment plus she has got a nasty uti, she goes from wanting to wee evry half hour to the complete...

mum is getting worse quite quickly, her walking is very bad at moment plus she h...

jeannette1964

•2 years ago

4 Replies

Episodes while eating

Has anyone had experiences when they are feeding thier loved ones they they sometimes will cough,sneeze and nose starts running? My love one is on puree foods...

Has anyone had experiences when they are feeding thier loved ones they they some...

Stephanielayell82

•2 years ago

13 Replies

Panic over cataract surgery

Hi friends I'm writing this as mum is on the toilet. She has cataract surgery due at 12.30 today but it is now 10.15 and mum needs a number 2. I'm worried we...

Hi friends I'm writing this as mum is on the toilet. She has cataract surgery du...

Cinderella80

•2 years ago

12 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for December 2022

BBC Article Sept 2021. - https://www.bbc.co.uk/news/uk-england-hampshire-58641372.amp

Loss of Mobility

hiccups after surgery

Are we approaching end of life?

Rigidity

End of life - day 7

Going through the nightmare

Nela is at peace

Journey's end

Covid

Fed up and guilty

Waiting times in hospital dreadful for mum

Pill Crusher

carers

TV remote control

Blue fingertips

When communication is pretty much impossible

Carers Assessment

Any advice on how to deal with fractures and PSP

Glad to find this community + some learning about inconsistent bowel movements from an incident today

Goodbye to my love

Additional care support & benefits advice

Celebration of Life today for my Momma

Messed up bowels

Angel Wings

Please read about our trip to NYC.

Hardest journey …

listening

Episodes while eating

Panic over cataract surgery

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive