Posts - PSP Association | HealthUnlocked

PSP Association

9,251 members • 11,347 posts

All posts for December 2021

Pins and needles

My wife has PSP for over a year now and has stinging pins and needles in her legs. What to do?

My wife has PSP for over a year now and has stinging pins and needles in her leg...

•2 years ago

Covid related question

Can anyone help? I can’t get a straight answer from anywhere, so much conflicting information on line. I got Covid just before Xmas, I have been in isolation...

Can anyone help? I can’t get a straight answer from anywhere, so much conflictin...

•2 years ago

Moribund Digestive system

Hi All, Hope you had as good a Christmas as was possible. I have a question that relates to the digestive system of PSP sufferers. My dear wife is in late...

Hi All, Hope you had as good a Christmas as was possible. I have a question t...

•2 years ago

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Overwhelmed

My son , who’s 34 , is having his aortic valve replaced on Wednesday . It’s a 5 hour surgery but his conditioner went from severe to critical in a few weeks ....

My son , who’s 34 , is having his aortic valve replaced on Wednesday . It’s a 5 ...

•2 years ago

Christmas is difficult

Just me and my mum today, she is late stage PSP. Finding it hard to keep motivated today for the both of us. sending lots of love and strength to everyone who...

Just me and my mum today, she is late stage PSP. Finding it hard to keep motivat...

•2 years ago

PSPA Christmas opening times

As Christmas fast approaches, we wanted to let you know what our opening hours will be over the festive period. Friday 24 December Office and...

As Christmas fast approaches, we wanted to let you know what our opening hours w...

Administrator•2 years ago

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My FIL has just been diagnosed with ALM. Does anybody have any information on the effects of chemo, leukemia on CBD?

Leukemia and CBD

Leukemia and CBD

•2 years ago

A carer's diary of CBD

"As Mary picked up a tomato with her faulty hand, she inadvertently crushed it, squirting pips and juice at me. A laugh, at least." Caring for a loved one...

"As Mary picked up a tomato with her faulty hand, she inadvertently crushed it, ...

Administrator•2 years ago

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Beloved brother

I have not posted much here but have so appreciated this site and getting to know others who share the distress of this dire condition. It has been an...

I have not posted much here but have so appreciated this site and getting to kno...

•2 years ago

My dad has parkinson CBD and improvement with ayurvedic treatment

Hi guys, this group helped me to understand the disease when my dad got diagnosed with CBD 2 years back. His condition was becoming worst day by day. His...

Hi guys, this group helped me to understand the disease when my dad got diagnos...

•2 years ago

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CBD

My Hubby passed away on Sunday from the hateful CBD after 6 weeks in hospital They were unable to control the seizures and he was put on palliative care a few...

My Hubby passed away on Sunday from the hateful CBD after 6 weeks in hospital T...

•2 years ago

Home Sweet Home

Oh how sweet it is to be home! Update … it’s been a few days now … Monday and Tuesday were 15-18 hours of sleep. I actually had to wake her up to toilet, eat...

Oh how sweet it is to be home! Update … it’s been a few days now … Monday and T...

•2 years ago

Age specific

Hi to all. When to write about your dear ones, could you pls specify their age? It’s important to me, to orient me on the road we are walking thru. I know each...

Hi to all. When to write about your dear ones, could you pls specify their age? ...

•2 years ago

Any advice about Clonazepam?

Hi everyone, My mum had a visit at her care home and has been prescribed Clonazepam, apparently to help with restlessness and ‘agitation’. They gave a first...

Hi everyone, My mum had a visit at her care home and has been prescribed Clonaz...

•2 years ago

Oral/Dental Hygiene for PSP Patients

My mom has PSP and we haven't been able to brush mom's teeth for the last 8 months. Due to lack of brushing, there is foul smell, cavities, bacteria, etc. She...

My mom has PSP and we haven't been able to brush mom's teeth for the last 8 mont...

•2 years ago

Homeopathy for PSP: Side Effects???

My mom has PSP and we've been trying alternative medicine for the last three years. We're very well aware that there is no cure for PSP yet but someone...

My mom has PSP and we've been trying alternative medicine for the last three yea...

•2 years ago

Kidney Stones - Herbal Alternatives for PSP Patients

Mom was diagnosed with PSP in 2015. Recently, we got her ultrasound done with great difficulty and found that she has kidney stones. Not sure if...

Mom was diagnosed with PSP in 2015. Recently, we got her ultrasound done with g...

•2 years ago

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Explaining PSP & CBD to family and friends

Like many, Sue and her husband Mike hadn't heard of PSP before Mike received his diagnosis. In the latest edition of PSPA Matters, Sue shares the challenges...

Like many, Sue and her husband Mike hadn't heard of PSP before Mike received his...

Administrator•2 years ago

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7 Day Difference

For the first time in almost 3 years, I made the decision to accept some speaking engagements and used a local respite center. The decision was hard for me,...

For the first time in almost 3 years, I made the decision to accept some speakin...

•2 years ago

When you don't have the words

Sometimes, I find it difficult how to encapsulate the breadth and depth of my loss of my forever love–Trish. I found them in a post someone shared. These are...

Sometimes, I find it difficult how to encapsulate the breadth and depth of my lo...

•2 years ago

PSP and painful legs at night

My mum has PSP and is up 6-7 times during the night going to the toilet . She is complaining of sore legs and says it is painful with covers on her legs . Does...

My mum has PSP and is up 6-7 times during the night going to the toilet . She is...

•2 years ago

PSP seizures?

Hi all, I’ve not posted for a while but things have changed recently with my Mum and I was wondering if others had experienced anything similar. Mum goes into...

Hi all, I’ve not posted for a while but things have changed recently with my Mum...

•2 years ago

Question RE Antipsychotic drugs

Hello, My mother is somewhere in an advanced stage of CBD or PSP. She's been separately diagnosed with each by 2 different neuros. She is struggling...

Hello, My mother is somewhere in an advanced stage of CBD or PSP. She's been sep...

•2 years ago

How to get a good night's sleep

Experiencing problems sleeping? Good sleep hygiene can often make a difference and enable sleep to come more easily. This may take time and determination. It...

Experiencing problems sleeping? Good sleep hygiene can often make a difference a...

Administrator•2 years ago

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I’m new to this site

Hello I’m the main carer for my husband who was diagnosed with Corticobasal degeneration a year ago. His condition has deteriorated rapidly, with disability...

Hello I’m the main carer for my husband who was diagnosed with Corticobasal dege...

•2 years ago

My Neuro Survey

Have you shared your experience of neuro services with The Neurological Alliance yet? The information collected via #MyNeuroSurvey will be given to...

Have you shared your experience of neuro services with The Neurological Alliance...

Administrator•2 years ago

Latest PSPA Matters now available

The latest edition of PSPA Matters is now out! In this edition, you will find updates on the PROSPECT study as well as information about the research taking...

The latest edition of PSPA Matters is now out! In this edition, you will find up...

Administrator•2 years ago

CurePSP #Giving Tuesday

For those of you who don't use Facebook... Our eighth #GivingTuesday story comes from Tim Brown. “I'm Tim Brown – Author of The PSP Chronicles Volumes I,...

For those of you who don't use Facebook... Our eighth #GivingTuesday story comes...

•2 years ago

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