Posts - PSP Association | HealthUnlocked

PSP Association

9,383 members • 11,414 posts

All posts for June 2024

clonazepam lethargy

has anyone experienced extreme fatigue since taking Clonazepam. My husband has been taking this now for around 10 days. He seems to be sleeping better at night...

has anyone experienced extreme fatigue since taking Clonazepam. My husband has b...

Licquoricelover

•3 days ago

2 Replies

Carbocisteine - possible side effect for CBD

My husband is in hospital recovering from silent aspiration pneumonia. He is now nil by mouth and PEG fed. His blood tests show he has no infection, his oxygen...

My husband is in hospital recovering from silent aspiration pneumonia. He is now...

SunriseLegend

•3 days ago

4 Replies

Navina Smart irrigation system for constipation

Hi My husband is chronically constipated due to PSP. It’s been a major issue for about 2 years but it’s getting worse… he was averaging once every 5 to 8...

Hi My husband is chronically constipated due to PSP. It’s been a major issue f...

Sun-flowerwearer

•3 days ago

4 Replies

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spending lote of money

Hello everybody. My father, who has a PSP, still maintains some independence. He undergoes physiotherapy twice a week and is taking levodopa. Lately he has...

Hello everybody. My father, who has a PSP, still maintains some independence. He...

angy24

•4 days ago

18 Replies

More Ice Cream On The Way

Next week is PSP-CBD awareness week. Tim

daddyt

•5 days ago

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Raising PSP Awareness in the Land Down Under

Great article....

daddyt

•5 days ago

2 Replies

Tim Brown's 3rd PSP Chronicles Beyond ..

I was going to mail Tim privately but have decided to post openly to 'daddyt' as what I want to say is relevant to us all. I bought Tim's 3rd book in Kindle...

I was going to mail Tim privately but have decided to post openly to 'daddyt' as...

AliBee1

•5 days ago

5 Replies

cannabidioids in treatment

Good morning, I read about a case report of a patient diagnosed with PSP who had considerable improvement after using cannabidiol, is anyone using...

Good morning, I read about a case report of a patient diagnosed with PSP who had...

FeemDeus

•6 days ago

5 Replies

PSP Research

My husband died in hospital earlier this year (2024). He was diagnosed with PSP just before Christmas. Like a lot of people, his outpatient care was blighted...

My husband died in hospital earlier this year (2024). He was diagnosed with PSP...

Hidden

•6 days ago

5 Replies

Ulcers

Unfortunately my mum does just not have PSP at the age of 87 she also has the worst ulcer you can have and she is allergic to the antibiotics that can treat it...

Unfortunately my mum does just not have PSP at the age of 87 she also has the wo...

Blitzford72

•7 days ago

4 Replies

Late stage cbd information

My mum Stella is 82 and has CBD I think she is in the later stages of the disease. But I’m not really sure what late stages are! She was finally diagnosed...

My mum Stella is 82 and has CBD I think she is in the later stages of the dise...

Jiggyjo

•7 days ago

12 Replies

Recent PSP diagnosis

Hello everyone. My dad is 75 and for the last 4 years we have been on the understanding that he had gait apraxia. We saw a neurologist today who had been...

Hello everyone. My dad is 75 and for the last 4 years we have been on the unders...

Pickle28

•7 days ago

2 Replies

US Representative Wexton

https://www.youtube.com/watch?v=ywWVZeMdX8U I hope this link works. It’s a story from CNN about the representative who was diagnosed with PSP a year ago....

https://www.youtube.com/watch?v=ywWVZeMdX8U I hope this link works. It’s a sto...

easterncedar

•8 days ago

5 Replies

I have been recently diagnosed with PSP

I was recently diagnosed with PSP which explains the many falls I have been having. I have had problems with imbalance/falls for around 2/3 years, and have...

I was recently diagnosed with PSP which explains the many falls I have been havi...

MullerRice

•9 days ago

9 Replies

Beyond... The PSP Chronicles

Yeah, so I've been a little busy the last little while with The PSP-CBD Ice Cream Challenge, getting the manuscript ready for publication earlier this week and...

Yeah, so I've been a little busy the last little while with The PSP-CBD Ice Crea...

pspchronicles

•10 days ago

8 Replies

Tim Brown did it again 🌻

I found out today that the fourth installment of the PSP Chronicles is available on Amazon so I've ordered my copy Beyond... The PSP Chronicles...

I found out today that the fourth installment of the PSP Chronicles is available...

Bergenser

•10 days ago

7 Replies

Entering the final stage of PSP

We went to see mum's consultant on wed He didn't tell me anything I didn't already see in mum 😔 Her speech is unrecognizable and very difficult to hear what...

We went to see mum's consultant on wed He didn't tell me anything I didn't alrea...

Blitzford72

•11 days ago

4 Replies

Dad in hospital

My dad has sp and is I'm hospital with pneumonia which they are treating. He has to be on level 4 for food yet the hospital offerhom food he can't eat ,...

My dad has sp and is I'm hospital with pneumonia which they are treating. He has...

MyDad1

•12 days ago

13 Replies

Any advice please!

Hi everyone, I’m new to this forum so just wondered whether anyone could offer any words of wisdom. My dad was diagnosed with PSP at the beginning of the...

Hi everyone, I’m new to this forum so just wondered whether anyone could offer...

Sunshine1005

•14 days ago

15 Replies

Sounding off

Well, I've been reading posts here for the last few years and, although informative, I didn't think I'd want / need to post myself ... How things change! My...

Well, I've been reading posts here for the last few years and, although informat...

Leygonie

•15 days ago

28 Replies

Speakunique

Has anyone any experience with Speakunique, please? My wife has just banked her voice and is waiting for the PSPA funding. On the Speakunique website it...

Has anyone any experience with Speakunique, please? My wife has just banked her...

Pspuser

•17 days ago

8 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2024

clonazepam lethargy

Carbocisteine - possible side effect for CBD

Navina Smart irrigation system for constipation

spending lote of money

More Ice Cream On The Way

Raising PSP Awareness in the Land Down Under

Tim Brown's 3rd PSP Chronicles Beyond ..

cannabidioids in treatment

PSP Research

Ulcers

Late stage cbd information

Recent PSP diagnosis

US Representative Wexton

I have been recently diagnosed with PSP

Beyond... The PSP Chronicles

Tim Brown did it again 🌻

Entering the final stage of PSP

Dad in hospital

Any advice please!

Sounding off

Speakunique

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive