Posts - PSP Association | HealthUnlocked

PSP Association

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All posts for April 2019

Refusing Laxido

My Mum is refusing to take her laxido As it tastes disgusting. We have heard that you can get this in liquid form which does not have much taste to it. Does...

My Mum is refusing to take her laxido As it tastes disgusting. We have heard tha...

Wardy01

•6 years ago

13 Replies

PSP PAGF

Is there anybody on the site suffering from psp pagf. It appears that the only form of psp that neurologists can diagnose is Richardson's. My friend has...

Is there anybody on the site suffering from psp pagf. It appears that the only ...

Fashionable

•6 years ago

8 Replies

Anti-Body Treatment For PSP

I read an article about a new anti-body being developed for AD and PSP, has anyone heard of or know about TBL-100? I have attached the link to the article...

I read an article about a new anti-body being developed for AD and PSP, has anyo...

YoungPSP

•6 years ago

8 Replies

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CBD Revision

Hi again Sorry to all -- I had posted that my husband was diagnosed in 1995. I meant to say 2015. That's what happens with little sleep. Sorry

Hi again Sorry to all -- I had posted that my husband was diagnosed in 1995. I ...

Kahia

•6 years ago

6 Replies

its PSP curable ?

I am new here and in New Zealand . I haven't had a diagnosis but a specialist at the eye clinic said I probably had some form of it . I have lost the ability...

I am new here and in New Zealand . I haven't had a diagnosis but a specialist at...

pthalo

•6 years ago

20 Replies

Exploring a Bladder issue.

Afraid of a decline after a scheduled cystoscopy😑How have your loved ones fared with what should be simple (exploratory procedure)- well, not that simple -...

Afraid of a decline after a scheduled cystoscopy😑How have your loved ones fared...

aliciamq

•6 years ago

9 Replies

Corticobasal Degeneration

I would like to communicate with others who have been diagnosed with Corticobasal Degeneration. My husband was diagnosed in 1995 but had signs of this for a...

I would like to communicate with others who have been diagnosed with Corticobasa...

Kahia

•6 years ago

9 Replies

Sad news

Dear All My hubby died “unexpectedly “ on Friday. Can hardly believe that I am writing those words doesn’t seem real. I clearly understood he had a life...

Dear All My hubby died “unexpectedly “ on Friday. Can hardly believe that I am ...

Tippyleaf

•6 years ago

75 Replies

Which foods

Should I avoid to prevent choking? And, should I let first responders in my area know that I may choke?

Should I avoid to prevent choking? And, should I let first responders in my area...

Bellaismydog

•6 years ago

18 Replies

Pain relief

Hi all Mum is starting to complain of pain more regularly and we have doctor coming to reassess meds care home suggest patches wondered what people think and...

Hi all Mum is starting to complain of pain more regularly and we have doctor com...

Greens

•6 years ago

9 Replies

Everest Base Camp

Hello all, I have just spent the last few weeks in Nepal and have trekked to Everest Base Camp in memory of my wonderful husband Steve. I was with a lovely...

Hello all, I have just spent the last few weeks in Nepal and have trekked to Eve...

Hiking13

•6 years ago

13 Replies

Psp

Thanjs to everyone for your lovely posts, free from this dreadful illness, its not really hit me yet i think.

Thanjs to everyone for your lovely posts, free from this dreadful illness, its n...

Trillo

•6 years ago

8 Replies

Conveen

I put conveen for my husband when we go out but by reading some of your messages can some one please tell me what is difference between conveen and sheath...

I put conveen for my husband when we go out but by reading some of your messages...

kiwitaramerlin

•6 years ago

9 Replies

PSP : More complications : After stroke and peg tube

Dad went to hospital with lots of hallucinations. He was also diagnosed with stroke couple of weeks back. He had Pneumonia after that. We got the peg tube as...

Dad went to hospital with lots of hallucinations. He was also diagnosed with str...

vikasmahajan24

•6 years ago

6 Replies

Psp

My husband Mick sadly passed away on Easter Sunday from this terrible ilness, he fought to stay with us till the end but it won in the end . Not quite 3yrs...

My husband Mick sadly passed away on Easter Sunday from this terrible ilness, h...

Trillo

•6 years ago

60 Replies

OMG scopolamine 1.5 mg comes with many side effects

Put the patch on Tuesday and Thursday 4:00 am it started.this is the guy who has not been able to get himself out of bed for well over a year,he got himself...

Put the patch on Tuesday and Thursday 4:00 am it started.this is the guy who ha...

Hidden

•6 years ago

16 Replies

Ready for Sunday

I’ve been meaning as an occasional runner, to go and watch the London Marathon for quite a few years, so this year I’m going to watch it on a Tower Bridge as...

I’ve been meaning as an occasional runner, to go and watch the London Marathon f...

Ratcliffe

•6 years ago

8 Replies

which adjustable bed do i need?

I'm thinking of buying an adjustable bed which also helps me to get into and out of bed easily. I now have problems getting my legs into bed ---any advice on...

I'm thinking of buying an adjustable bed which also helps me to get into and out...

jamesmoffat

•6 years ago

18 Replies

PSP and knee pain

About 2 weeks ago my hubby, about 3 yrs with PSP, started complaining of constant right knee pain. Any one else or a family member has had same and what...

About 2 weeks ago my hubby, about 3 yrs with PSP, started complaining of constan...

mjtogether

•6 years ago

12 Replies

Share experiences of CBD or PSP

Anyone who knows someone with CBD or PSP please get in touch. In particular someone who lives in Colchester. If you are in Essex or Suffolk please kindly get...

Anyone who knows someone with CBD or PSP please get in touch. In particular some...

Sapphire1001

•6 years ago

15 Replies

Inclined Bed Therapy (IBT)& Turmeric relating to Tau protein and the glymphatic system with PSP (Progressive supranuclear palsy)

Hello all. I hope today finds you as well as possible. Someone close to me, my mother-in-law is likely going to be receiving a diagnosis of PSP, and our minds...

Hello all. I hope today finds you as well as possible. Someone close to me, my m...

MrWhippy123

•6 years ago

5 Replies

is it the end? (CBD)

hello, my mom (60 years old) was finally diagnosed with CBD earlier this year, after a year of worsening symptoms. the last 6 months have been brutal, everyday...

hello, my mom (60 years old) was finally diagnosed with CBD earlier this year, a...

Cecefrance

•6 years ago

9 Replies

Why am I posting this?

Why am I posting a photo of a new hosepipe head? Well after 3 attempts to water the garden in the hot weather over Easter I flung the hose pipe down in...

Why am I posting a photo of a new hosepipe head? Well after 3 attempts to water ...

AliBee1

•6 years ago

30 Replies

Thanks

Many thanks to everyone who has replied to my latest posting.We don't live near to friends or relatives so everything is down to me.We have a doctors...

Many thanks to everyone who has replied to my latest posting.We don't live near ...

acorneater

•6 years ago

4 Replies

is this all part of PSP?

My wife is still in the first stage of the disease but there are things going on which I'm not sure about.She has lost all pride in her appearance and despite...

My wife is still in the first stage of the disease but there are things going on...

acorneater

•6 years ago

20 Replies

Why can't people keep their noses out!

Normally I am very happy with the sheltered housing where my Mum lives. The flat is lovely, she can have some pots on the walkway outside her front door and...

Normally I am very happy with the sheltered housing where my Mum lives. The flat...

AJK2001

•6 years ago

6 Replies

Won’t he pull a PEG out?

Hi, my father is having difficulty swallowing even the smoothest food and has had 2 bouts of respiratory infection. We are considering a peg. However he picks...

Hi, my father is having difficulty swallowing even the smoothest food and has ha...

PDDJED

•6 years ago

7 Replies

Swallowing and psp

My friend who has being diagnosed with atypical parkinsonism but from what I have read I think it's a form of psp doesn't have difficulty swallowing but finds...

My friend who has being diagnosed with atypical parkinsonism but from what I hav...

Fashionable

•6 years ago

8 Replies

PSP, Stroke and Pneumonia. Is Peg tube an option?

Dad went to hospital with lots of hallucinations. He was also diagnosed with stroke. He also has pneumonia. I am considering getting peg tube in his situation....

Dad went to hospital with lots of hallucinations. He was also diagnosed with str...

vikasmahajan24

•6 years ago

8 Replies

Do I have psp?

I am Canadian. I need the name of a doc with experience with psp to confirm the diagnosis. Anyone know a doc in Canada?

I am Canadian. I need the name of a doc with experience with psp to confirm the ...

Bellaismydog

•6 years ago

30 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for April 2019

Refusing Laxido

PSP PAGF

Anti-Body Treatment For PSP

CBD Revision

its PSP curable ?

Exploring a Bladder issue.

Corticobasal Degeneration

Sad news

Which foods

Pain relief

Everest Base Camp

Psp

Conveen

PSP : More complications : After stroke and peg tube

Psp

OMG scopolamine 1.5 mg comes with many side effects

Ready for Sunday

which adjustable bed do i need?

PSP and knee pain

Share experiences of CBD or PSP

Inclined Bed Therapy (IBT)& Turmeric relating to Tau protein and the glymphatic system with PSP (Progressive supranuclear palsy)

is it the end? (CBD)

Why am I posting this?

Thanks

is this all part of PSP?

Why can't people keep their noses out!

Won’t he pull a PEG out?

Swallowing and psp

PSP, Stroke and Pneumonia. Is Peg tube an option?

Do I have psp?

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive