Posts - PSP Association | HealthUnlocked

PSP Association

9,252 members • 11,349 posts

All posts for May 2014

Hi. Just joined here as my husband now diagnosed with CBD not PD as first thought.

He is now in a care home but to be honest they have little experience of his condition so I would like to be able to keep them informed.

He is now in a care home but to be honest they have little experience of his con...

FeeBee

•10 years ago

6 Replies

We've been informed today that my partner may well have psp, further tests will be undertaken soon.

My question is, is there such a thing as assisted or adaptive living properties that one is able to rent. We are currently renting from a private landlord as...

My question is, is there such a thing as assisted or adaptive living properties ...

Gadgetgeek

•10 years ago

18 Replies

My wife experiences a feeling like she is walking on air,no dizziness but a feeling like she will fall because there is no floor HELP

Sera1956

•10 years ago

12 Replies

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Can anyone help with advice or anything on this one, my husband is going through another dementia episode at the moment, and it has been

going on for nearly 3 hours. He is refusing to eat, drink or anything, he will not let me help him, he is just trying to wheel himself around the flat,...

going on for nearly 3 hours. He is refusing to eat, drink or anything, he will...

dorothy-thompson

•10 years ago

8 Replies

THE PARTY IS FINISHED BUT THE NEXT ONE WILL BE ON.

When would suit you all? a Sunday lunchtime for all the folks in the UK? that would be about 7am in the USA and CANADA? too early or what ....and in AUSTRALIA...

When would suit you all? a Sunday lunchtime for all the folks in the UK? that w...

jillannf6

•10 years ago

4 Replies

Who put that brick wall there?

Having a really bad day today! Been going along nicely for quite a while. S seems fairly stable at the moment( touch wood!), but I turned around today, and...

Having a really bad day today! Been going along nicely for quite a while. S se...

Heady

•10 years ago

45 Replies

Another hurdle

Seems to be another hurdle every day mum in bed till midday as finding the hoisting about very wearing , syringe drive put in place yesterday , no bowel...

Seems to be another hurdle every day mum in bed till midday as finding the hoist...

blackcushion

•10 years ago

7 Replies

New Diagnosis

Hello, I have just recieved the news my father has PSP. We thought he had stage 05 parkinson's, as he has hunched gait, mild dementia, drooling, difficulty...

Hello, I have just recieved the news my father has PSP. We thought he had stage ...

AJJG76

•10 years ago

14 Replies

Do you use the "pull-up" pant style incontinence pads?

We have a quantity of these products which are now surplus to our requirements and the provider won't take them back. They are still in their original unopened...

We have a quantity of these products which are now surplus to our requirements a...

Kathy

•10 years ago

9 Replies

At a loss as to how to support and protect my parents without hurting them

My siblings and I have recently been made power of attorney over my father's affairs. We instigated this after discovering he had made some very irrational...

My siblings and I have recently been made power of attorney over my father's aff...

Didalju

•10 years ago

14 Replies

Is there anything to help with the explosive cough my husband has. We thought it was a cold but the cough is not going away it is constant

My husband has PSP and since he had a UTI things seem to be progressing faster.

Hidden

•10 years ago

11 Replies

Help for my Mum - Parkinsons, PSP or MSA? Help and advice please

I'm hoping someone can help with advice in respect of my Mother. She was diagnosed as having Parkinsons in 2008 but her condition has deteriorated...

I'm hoping someone can help with advice in respect of my Mother. She was diagno...

YipYapStaam

•10 years ago

21 Replies

Firstly, I must say thank you to this community for all the advise and words of wisdom. My dad was diagnosed with psp for seven years and I

Have a feeling we are reaching the end. His salvia has thickened that he is now choking on it . Last week he slept for straight 40 hours and actually sleeps...

Have a feeling we are reaching the end. His salvia has thickened that he is now ...

emmaapanah

•10 years ago

17 Replies

THE PARTY IS STARTING

AR EYOU READY/IT SI COOL IN THE UK THIS EVENIGN SO NO BBQ I SHALLS TA RTWITH A GLASS OF COLD WHIT EWINE AND PUT ON THE BEATLES I THIMK LEOMAR DCOHEN IS THE...

AR EYOU READY/IT SI COOL IN THE UK THIS EVENIGN SO NO BBQ I SHALLS TA RTWITH A G...

jillannf6

•10 years ago

33 Replies

To Think I Tell My Boys To Never HATE !

Google this: /give.psp.org/i-hate-psp-t-shirt-donation-page

edkor

•10 years ago

3 Replies

Someone May Have Already Posted This : Bristo Myers Squibb Acquires iPierian, inc.

GOODLE THIS ; IPN007

edkor

•10 years ago

1 Reply

Does anyone have any idea of the incubation period of PSP?

My first wife had CJD which is another rare brain disease. The neurologist and other doctors told me "Don't try to figure out where she go it because the...

My first wife had CJD which is another rare brain disease. The neurologist and ...

jimandsharynp

•10 years ago

24 Replies

Please can anyone help. What is the difference between Psp and MSA ... Is it possible to have both as my mum has the symptom s of both...

Brighteyesxxx

•10 years ago

2 Replies

Infection

My mum has urine infection she hasn't past urine for nearly three days.

blackcushion

•10 years ago

2 Replies

online party tonight sunday 25 may 6pm UK time SO PLEAS E BE THERE!

hi all do not forget the party tonight no particular protocol wear what you want to choose some music u would like (Beatles for me and the Canadian singer...

hi all do not forget the party tonight no particular protocol wear what you wa...

jillannf6

•10 years ago

19 Replies

Are sweats common in the more advance stages of PSP?

My dad has been getting sweats day and night with or without fever. How normal is this?

My dad has been getting sweats day and night with or without fever. How normal i...

jessybx19

•10 years ago

4 Replies

TPI-287 20 mg/m2 SOMETHING BETTER HELP!!!!!!

Something better help I cant hang on much longer. Please!!!!

edkor

•10 years ago

40 Replies

DRUG TRIALS PHASEII

TPI-287 20 mg/m2

edkor

•10 years ago

5 Replies

Can anyone on this blog tell me anything about MSA-P? My husband was just diagnosed with this disease by the doctors at Mayo's.

My husband now has been diagnosed with MSA-P. First it was PSP then CBD now the Doc's are saying MSA-P. What is the difference? What should we expect that...

My husband now has been diagnosed with MSA-P. First it was PSP then CBD now the...

Hidden

•10 years ago

5 Replies

Will this poem help? I hope so. I couldn't say what I'm feeling better having lost my dear wife May 4, 2014

This is for all those who have lost loved ones to PSP recently Fingerprints Not long ago God called you home, my loss was Heaven’s gain, Though gone from...

This is for all those who have lost loved ones to PSP recently Fingerprints Not...

jimandsharynp

•10 years ago

23 Replies

Does anybody know what medication a PSP patient should be getting in the final stages? thanks

llangton

•10 years ago

17 Replies

Mum

This morning at 9am Mum breathed her last in the arms of the man she loved and who loved her devotedly. Mum's health had worsened quite a bit since Christmas...

This morning at 9am Mum breathed her last in the arms of the man she loved and w...

hmfsli

•10 years ago

28 Replies

Hi My husband diagnosed with psp recently. He is going to Walton centre next week. We haven't had much info so far,( told to check Internet)

Does anyone else suffer pins and needles in hands and arms? Also loud,sharp sounds "hurt" his head

Does anyone else suffer pins and needles in hands and arms? Also loud,sharp soun...

knitter13

•10 years ago

12 Replies

Possible confusing antidepressant medication implications for PSP?

We all know that gait and postural instability problems are major symptoms of PSP. Some sufferers are also diagnosed with depression as a symptom and treated...

We all know that gait and postural instability problems are major symptoms of PS...

Hidden

•10 years ago

15 Replies

At this moment....

I am scared. My dad is not looking good. He is slowly slipping away (due to PSP). The fear of losing him and perhaps a piece of my mom is right about now...

I am scared. My dad is not looking good. He is slowly slipping away (due to PSP)...

jessybx19

•10 years ago

9 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for May 2014

Hi. Just joined here as my husband now diagnosed with CBD not PD as first thought.

We've been informed today that my partner may well have psp, further tests will be undertaken soon.

My wife experiences a feeling like she is walking on air,no dizziness but a feeling like she will fall because there is no floor HELP

Can anyone help with advice or anything on this one, my husband is going through another dementia episode at the moment, and it has been

THE PARTY IS FINISHED BUT THE NEXT ONE WILL BE ON.

Who put that brick wall there?

Another hurdle

New Diagnosis

Do you use the "pull-up" pant style incontinence pads?

At a loss as to how to support and protect my parents without hurting them

Is there anything to help with the explosive cough my husband has. We thought it was a cold but the cough is not going away it is constant

Help for my Mum - Parkinsons, PSP or MSA? Help and advice please

Firstly, I must say thank you to this community for all the advise and words of wisdom. My dad was diagnosed with psp for seven years and I

THE PARTY IS STARTING

To Think I Tell My Boys To Never HATE !

Someone May Have Already Posted This : Bristo Myers Squibb Acquires iPierian, inc.

Does anyone have any idea of the incubation period of PSP?

Please can anyone help. What is the difference between Psp and MSA ... Is it possible to have both as my mum has the symptom s of both...

Infection

online party tonight sunday 25 may 6pm UK time SO PLEAS E BE THERE!

Are sweats common in the more advance stages of PSP?

TPI-287 20 mg/m2 SOMETHING BETTER HELP!!!!!!

DRUG TRIALS PHASEII

Can anyone on this blog tell me anything about MSA-P? My husband was just diagnosed with this disease by the doctors at Mayo's.

Will this poem help? I hope so. I couldn't say what I'm feeling better having lost my dear wife May 4, 2014

Does anybody know what medication a PSP patient should be getting in the final stages? thanks

Mum

Hi My husband diagnosed with psp recently. He is going to Walton centre next week. We haven't had much info so far,( told to check Internet)

Possible confusing antidepressant medication implications for PSP?

At this moment....

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Latest poll

What are your main concerns as a carer?

Topics

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