Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,362 members • 10,549 posts

All posts for December 2012

Lupus

I have just been told I also have Lupus as well as APLS. I just wondered if anyone else has both and if so any advise would be welcome but mainly I wanted to...

I have just been told I also have Lupus as well as APLS. I just wondered if anyo...

margaretjo

•11 years ago

7 Replies

Call to Action

The DSM codifies psychiatric conditions and is used worldwide as a key guide for diagnosing disorders. Because APS is difficult to diagnose We are very at risk...

The DSM codifies psychiatric conditions and is used worldwide as a key guide for...

1fnd

•11 years ago

3 Replies

Has anyone tried the plasma exchange treatment, with steriods for 6 months followed with rheumatoid medication. designer 16

designer16

•11 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Anyone get earache at night?

For as long as I can remember if I lie on my right side at night I wake up with excrutiating earache, but never on the other side. I mentioned this when I had...

For as long as I can remember if I lie on my right side at night I wake up with ...

panda60

•11 years ago

7 Replies

does anyone else wander why are memories are still affected despite being on warfarin & in range?

Hi guys i cant help but think my short term memory, especially, has got worse - i had a series of TIA's but with no evidence on mri but opthalmology evidence...

Hi guys i cant help but think my short term memory, especially, has got worse - ...

kathyD64

•11 years ago

16 Replies

Weird sensation!

Hi all - has anybody had this sensation that im having today - if you ever cut off your circulation when you put a plaster on too tight in your fingers you'll...

Hi all - has anybody had this sensation that im having today - if you ever cut o...

emmaj

•11 years ago

7 Replies

huge stabbing pain on the left side of my head????anyone???why?????

not a headache pain... only last a couple of seconds??? feels like someone is taking an icepick to my head in between my eyes and my nose...and then gone......

not a headache pain... only last a couple of seconds??? feels like someone is ta...

jean1234

•11 years ago

17 Replies

Frustrated

18 y ago I was told I tested positive for antiphospholipid antibody. This was after 3 miscarriages. Put on heparin during pregnancy. A neurologist told me was...

18 y ago I was told I tested positive for antiphospholipid antibody. This was af...

designer16

•11 years ago

6 Replies

If you are taking aspirin will it affect the anticardiolipen blood test? If so how long do you need to avoid aspirin. Designer16

designer16

•11 years ago

2 Replies

I lately feel every day tired.

I lately feel every day tired. Is like having a hang over but without the pleasure of drinking alcohol. Feel afraid even to drive because I don't trust my...

I lately feel every day tired. Is like having a hang over but without the pleasu...

Danimgw

•11 years ago

3 Replies

Does exercise affect your inr levels?

Hi everyone, I was just curious if anyone here has experienced their inr ratios changing when they start/stop an exercise program. I have heard that exercise...

Hi everyone, I was just curious if anyone here has experienced their inr ratios...

pinkpink

•11 years ago

5 Replies

Working?

Has anyone got any advice on what to tell employers? Having tested positive recently and advised my boss I'm not sure if I should have a meeting with him to...

Has anyone got any advice on what to tell employers? Having tested positive rece...

MJLS

•11 years ago

4 Replies

Confused after first Haematology Consultant Appointment, please Help

Hi, I just wanted to ask if anyone has had the same experience at their first consultant appointment? Yesterday morning met my haematologist consultant...

Hi, I just wanted to ask if anyone has had the same experience at their first...

dragtalav

•11 years ago

11 Replies

plz help

im not toletrating warfrin as tests show it my blood bt has no effect on my inr.....im injectin 15.000 units of fragmin daily.......... i was on the wrong dose...

im not toletrating warfrin as tests show it my blood bt has no effect on my inr....

rach1081985

•11 years ago

13 Replies

Professor Graham Hughes' October blog

October was a busy month. The national arthritis charity 'Arthritis Research UK' held a patients' meeting on lupus at the Royal College of Physicians - a...

October was a busy month. The national arthritis charity 'Arthritis Research...

Hidden

•11 years ago

5 Replies

WHAT IS apl positive.

daisy11

•11 years ago

1 Reply

It's finally here! LOVENOX in PILL form! XARELTO

Better than COUMADIN and made for people like us! They have an assistance program too for those who can't afford it. TELL YOUR DOCTORS!!

Better than COUMADIN and made for people like us! They have an assistance progra...

hasmoxie2

•11 years ago

4 Replies

What is the difference between Hughes syndrome, APS, and anti-cardiolipin antibodies?

My understanding is they are the same just different names.

strawberryblonde

•11 years ago

9 Replies

Pleurisy? Anyone dealt with it, what was used to control it?

What caused it for you?

Skyllark

•11 years ago

3 Replies

Haematologists knowledgeable about APS in Ireland (Dublin/Louth/Meath region)?

I've found the information on this forum extremely helpful and am wondering if there are any forum members from Ireland who could let me know how/who helped...

I've found the information on this forum extremely helpful and am wondering if t...

owall

•11 years ago

10 Replies

So pleased I'm not alone!

So pleased to hear I'm not the only one who has problems with shopping. Going to stick with local shops until after Christmas and then try the supermarket...

So pleased to hear I'm not the only one who has problems with shopping. Going to...

panda60

•11 years ago

3 Replies

My Daughter

My beautiful 21 year old daughter has been diagnosed with APS aftger a few years of clots and pain. I want to help her control her demon and give her all the...

My beautiful 21 year old daughter has been diagnosed with APS aftger a few years...

Hidden

•11 years ago

4 Replies

My 23 year old granddaughter has 'Hypermobility Syndrome' does anyone know if there is a connection with this condition and Hughes Syndrome?

JoyceyMee33

•11 years ago

10 Replies

thank you all

i can't think in my life that i have so confused--- i would like all to think i'm always in control??????????????????? but now i think i'm in a state of just...

i can't think in my life that i have so confused--- i would like all to think i...

jetjetjet

•11 years ago

5 Replies

Why when you are on warfarin can't you be tested for Lupus Anticoagulant?

strawberryblonde

•11 years ago

10 Replies

No longer sero-negative

Went to St Thomas on Friday and found out I have tested positive for Hughes. I finally feel that people will start to listen to me more now I have 'a label'....

Went to St Thomas on Friday and found out I have tested positive for Hughes. I f...

MJLS

•11 years ago

9 Replies

Cause of APS

Does anyone know the real cause of APS?

tAigers

•11 years ago

2 Replies

help needed in hawaii fast

Hello everyone- I am a 31-year-old female high school teacher on the Island of Maui in Hawaii. In the past ten months I have developed serious symptoms that...

Hello everyone- I am a 31-year-old female high school teacher on the Island o...

jojohorn2

•11 years ago

20 Replies

Is anyone else exoeriencing thinning hair as a result of aps?

I'm quite worried, my hair has never been the thickest but now it is so thin I have hardly any hair! My pony tail is non existent and I'm sure it is thinner on...

I'm quite worried, my hair has never been the thickest but now it is so thin I h...

louise78

•11 years ago

21 Replies

APS, Lupus and Vasovagal Syncope - Anyone else got all 3?

Hi, just wondered if anyone else has got any links with APS and Lupus and Vasovagal Syncope, I have a pacemaker which I have had for over 13 years due to the...

Hi, just wondered if anyone else has got any links with APS and Lupus and Vasova...

SammyJ

•11 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2012

Lupus

Call to Action

Has anyone tried the plasma exchange treatment, with steriods for 6 months followed with rheumatoid medication. designer 16

Anyone get earache at night?

does anyone else wander why are memories are still affected despite being on warfarin & in range?

Weird sensation!

huge stabbing pain on the left side of my head????anyone???why?????

Frustrated

If you are taking aspirin will it affect the anticardiolipen blood test? If so how long do you need to avoid aspirin. Designer16

I lately feel every day tired.

Does exercise affect your inr levels?

Working?

Confused after first Haematology Consultant Appointment, please Help

plz help

Professor Graham Hughes' October blog

WHAT IS apl positive.

It's finally here! LOVENOX in PILL form! XARELTO

What is the difference between Hughes syndrome, APS, and anti-cardiolipin antibodies?

Pleurisy? Anyone dealt with it, what was used to control it?

Haematologists knowledgeable about APS in Ireland (Dublin/Louth/Meath region)?

So pleased I'm not alone!

My Daughter

My 23 year old granddaughter has 'Hypermobility Syndrome' does anyone know if there is a connection with this condition and Hughes Syndrome?

thank you all

Why when you are on warfarin can't you be tested for Lupus Anticoagulant?

No longer sero-negative

Cause of APS

help needed in hawaii fast

Is anyone else exoeriencing thinning hair as a result of aps?

APS, Lupus and Vasovagal Syncope - Anyone else got all 3?

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