I just wanted to ask if anyone has had the same experience at their first consultant appointment?
Yesterday morning met my haematologist consultant for the first time (Warwick Hospital), and came out after my 20 min consult more confused than when I went in.
So far I have had 2 positive ANA and/or lupus tests (again still confused over whether these are the same tests or different) and have a whole list of other symptoms:
Pain in knees and feet
Feet, toes and fingers are always and purple
1 case of lung blood clot
Numbness in fingers and loss of use in arm
feelings of being drunk when sober
Slurred speech at time
and the list goes on.........
The consultant I saw yesterday was'nt really interested in any of the other symptoms just seemed very cross that my GP had referred me when I hadnt had multiple miscarriages and only the 1 case of known clot, and then told me she was going to write back to my GP for her to refer me to a rheumatologist - another long wait then . In the next breath was then saying about for her to be able to put my case across for long term warfarin medication she would have to do a MRI on my brain to check for small clots.
So needless to say this has left me very worried and not knowing where to turn next, and without any clue of whether I do or do not have Hughes/Lupus.
If anyone can help I would be extremely grateful or have any ideas of where to go next. for such a long post.
P.S. Merry Christmas to everyone x