APS, Lupus and Vasovagal Syncope - An... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,414 members10,623 posts

APS, Lupus and Vasovagal Syncope - Anyone else got all 3?

SammyJ profile image
5 Replies

Hi, just wondered if anyone else has got any links with APS and Lupus and Vasovagal Syncope, I have a pacemaker which I have had for over 13 years due to the Vasovagal Syncope but I am now starting to wonder if there is some sort of llink with all 3 of my medical conditions and have decided to go and see Professor Hughes for some help as I seem to be getting nowhere at the moment, I am just given a cocktail of medication to take and am in chronic pain on a day to day basis.

If anyone has any help, similar experience I would welcome your comments, advice.

Many thanks Samantha.

Written by
SammyJ profile image
SammyJ
To view profiles and participate in discussions please or .
Read more about...
5 Replies
MaryF profile image
MaryFAdministrator

Hi there, and a big welcome, autonomic nervous system disorders do at times crop up with Hughes Syndrome and also other autoimmune diseases... Professor Hughes will indeed be able to shed some light on this for you. Mary F x

SammyJ profile image
SammyJ

Thank you very much, be great to hear from anyone with similar experiences, sometimes Im sure you will understand this you do feel a bit alone with everything that goes on but its nice to know other people understand, thank you x

Salty profile image
Salty

I Sammy. I recently saw Professor Hughes for APS and an autonomic disorder and he felt strongly the autonomic disorder was due to APS.

SammyJ profile image
SammyJ

Hi, thanks for your help, I have had vasovagal syncope for over 15 years so I know of proff Mathias, I saw dr Adam Fitzpatrick who is also specialist in this area, I have only had lupus and anti phospholipid syndrome for a couple of years, well that've as when they diagnosed me, although I think I have had it for longer. I am seeing proff Hughes in feb so am hoping he maybe able to help, in a lot of pain after the pe and fed up of being drugged up with all the medication I have to take, keeping positive he can help. Thank you

JaneFletcher profile image
JaneFletcher

Hi SammyJ I have all three and the chronic pain. It has been a few years since your original post. How are you doing and what have you found to help manage them?

I don't do well with narcotics but have found a shot of Toradol to be effective for all over pain and migraines.

Not what you're looking for?

You may also like...

Pregnancy and APS / Lupus

Hi all, want to provide an update in the hope of giving someone some encouragement around this...
sydney_mrfox profile image

Contraception, APS and Lupus

Morning all! Posting this in Hughes and Lupus forums so apologies if you see it twice! Just had...
jojo-lianne profile image

APS and all the other additions

Hi everyone, I have been a long term APS sufferer. I had my first stroke at 29 (luckily fully...
Rockydog20 profile image

APS and Lupus Genetic link?

Hi, I have APS, MS. Pernicious Anaemia. My Uncle who died aged 50 about 20 years ago had...
anniesensi profile image

Aps and mild lupus

Been on hydrocloxaquine for 2 to 3 yrs now due to extremely painful cramp like pains all over my...
Tim_Thorpe profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator
HollyHeski profile image
HollyHeskiAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.