Working?

[MJLS]

Has anyone got any advice on what to tell employers? Having tested positive recently and advised my boss I'm not sure if I should have a meeting with him to discuss my feelings?

MJx

[olleberj]

I informed my employer when it came time for business trips and I needed to fly in a day early in order to adjust to the time change due to my tremendous need for sleep. I also informed them as an explanation as to why I don't share alcoholic drinks with them during business dinners.

I do think that informing them had a negative effect on my career as last year they decided to put a younger, more energetic person into my position, and they transferred me to a "less demanding role."

I would think carefully before divulging any private medical information to anyone who might make judgments/decisions that could affect your lifestyle.

[Renae]

Just curious as to why you don't have a drink on business trips?

I agree why would you need to tell your employer about having APS? If there does come a time where it affects your job, just get paperwork from your doctor so safe guard your job.

[Hidden]

I agree that this is a personal one. I decided to tell my employers when i was referred to London, at thr suggestion of my local hospital. I found it difficult because they didnt know anything about APS and those who knew the term "sticky blood" didnt get the other aspects such as memory loss and my unexplained fatigue. In fact, when i tried to explain about the memory loss, typically the response was "oh everyone gets that!". I felt as though i was being a little dismissed because i have a history of gynae probs that have resulted in a hysterectomy where ironically i kept my ovaries because i didnt want to go on to HRT and have warfarin for the rest of my life! That changed in July when i had the right tube and ovary removed so had only just come back to work when i declared this "new" issue to them.

Of course, it hasnt helped my cause that some doctors have not supported the APS diagnosis but i am incredibly fortunate that the nurse who works part time on campus knows EVERYTHING about Sjogrens and APS herself so has been a massive support. I dont know if she is a member of this forum but without her i would have really struggled.

So. A difficult question to answer!

[k7pbx]

Don't tell. It is private medical information. I was forced into a medical retirement at 49.