What is the difference between Hughes... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,365 members10,561 posts

What is the difference between Hughes syndrome, APS, and anti-cardiolipin antibodies?

strawberryblonde profile image
9 Replies

My understanding is they are the same just different names.

Written by
strawberryblonde profile image
strawberryblonde
To view profiles and participate in discussions please or .
9 Replies
lucky1 profile image
lucky1

Hughes Syndrome and AntiPhospholipid Syndrome (APS) are one and the same.

Anti-cardiolipin are one part of the blood antibodies that are used as markers that may confirm you have the above if criteria are met

pluto5 profile image
pluto5 in reply to lucky1

I would like to know the difference between Lupus and APS,or are they the same?

My brows are almost constantly red and my legs are always swollen red and extremely itchy,plus very red itchy palms.

I attended the lupus clinic for 4 years but was signed off so I don't know if that means I do not have it any more?

Jane-Martin profile image
Jane-Martin in reply to pluto5

Pluto, you need to ask your doctor. APS and LUPUS do not go away. Some people with Lupus have periods where it isn't active and they are symptom free. During those times they might (I feel incorrectly) be signed off from attending the hospital. But they should be advised to have regular check ups with GP and if symptoms return to come back to clinic. If you were diagnosed with Lupus and you are having symptoms, then you need to go back to the clinic. Good luck, Jane

Renae profile image
Renae

I have anti cardiolipin antibodies aka aps and protein s&c deficiencies.

Hughes syndrome and APS are the same condition. Currently, there is a bewildering array of names for Hughes syndrome including the antiphospholipid syndrome (APS, APLA or APLS); primary antiphospholipid syndrome (PAPS), the antiphospholipid antibody syndrome (AAS); the lupus anticoagulant syndrome (LAS); the antiphospholipid lupus anticoagulant syndrome (APLAS); the anticardiolipin antibody syndrome (ACAS) and ‘sticky blood’. Our charity calls it Hughes syndrome to acknowledge the doctor who was leading the London team who first described it in 1983.

pluto5 profile image
pluto5

Good heavens, what a lot to take in!

CanaryDiamond10 profile image
CanaryDiamond10

I beg to differ that the global medical community can identify APS and Hughes Syndrome. Many doctors I have spoken with immediately understand Antiphospholipid Syndrome, but not sticky blood or Hughes Syndrome and you even need to say the word instead of APS for them to get immediate comprehention. I have noticed all of the UK patients are inclined to call it Hughes syndrome frequently. That's loyalty at it's best; good for them! Frankly, what anyone calls it is so very unimportant. Awareness, funding, better testing, getting young doctors to choose to go into the field of autoimmunity and global sharing of information is higher on my list than what they choose to call it. I have faith in medicine, though. I think, maybe not in my lifetime but certainly my childrens', medicine will find out much more about autoimune disease and how to manage it. Compared to the last 50 years ago meeedicine is now moving at light speed on so many different levels I believe there will be breakthroughs in many fields of medicine. Just a believer I guess.

Smiles, hugs and seasonal sillliness,

Canary

ps: sorry for typos that are probly there. cataracfts really bloking site. Have to sue magnifier. ha=ha.

strawberryblonde profile image
strawberryblonde in reply to CanaryDiamond10

Thanks for all of your responsed they were very helpful, I contacted hemos office today to confirm they knew about APS and I did as you suggested said the words they know about it mad me feel better now I hope I like this new dr.

CanaryDiamond10 profile image
CanaryDiamond10

Sigh!

You may also like...

IGM Anti-Cardiolipin Antibodies

I am no doctor, and I am just sharing my experience which might help others. After several years of...

Hughes Syndrome/APS on the tv tonightI

night in front of the fire tonight with two cats.. Just watching Casualty on BBC1 featuring a...

The Seronegative Hughes Syndrome/APS book idea is back on

exercise about this subject. There will be no naming and shaming of individual staff, this has to...

Hughes Syndrome, APS and recurring Light Headedness

or bouts of light headedness. Its not dizziness, just an uncomfortable sensation of feeling light...

Seronegative Hughes Syndrome/APS A NEW SECTION on the actual charity website.