I've found the information on this forum extremely helpful and am wondering if there are any forum members from Ireland who could let me know how/who helped them get a diagnosis in Ireland.
I'm 43 years old and had a bilateral pulmonary embolism completely out of the blue on July 31 this year (no obvious cause or risk factors). I had a smattering of clots in both lungs and spent 11 days in hospital. A number of blood samples were taken before I was put on warfarin. I was told they would take several weeks to come back as my local hospital was sending the samples to another hospital and that some samples may go to England for testing. The test for APS is the one I was most interested in as from reading up on Hughes Syndrome I appear to have some of the symptoms e.g. visual disturbances.
After several phonecalls and months of chasing the results of the APS test, I was informed last week that although they took a sample to test for APS, some-one decided it was not needed and therefore the sample was destroyed and the test was not done! I am really upset that they did not run this test at the time I was having the clots.
I will probably be coming off warfarin at the end of January so that all of the tests can be repeated. I'm concerned that if my APS test is not positive in January that my consultant will want to leave it at that and will not want to pursue further testing. So I would be interested if anyone in Ireland has dealt with any haematologists who are knowledgable about APS. If necessary, I would consider travelling to London to see someone. But I would like to pursue any possible specialists in Ireland first. Thanks in advance for anyone who can help.