My Daughter

My beautiful 21 year old daughter has been diagnosed with APS aftger a few years of clots and pain. I want to help her control her demon and give her all the support she needs. Any help or advice would be appreciated

Lisajane

[MaryF Administrator]

Hi there, and welcome, firstly you may have had a technical error or some muddling - as you have already seem to not have a live profile. Hoping you do log back in again. In answer to your question, firstly well done in landing here, and also for your daughter actually receiving a concrete diagnosis as believe me, this is over half the battle. Let us know, i fyou re join, where you are located and also to reassure you that you have landed in the right place arriving on here. All the best, hope we hear from you again. Mary F x

[daisyd]

Hi what medication is she on, who does she see for it eg Haematologist, Rheumatologist, or neurologist and which hospital.

What a lovely mother you are. It must be really awful having a member of the family having it, bet you would rather have it yourself.

karen

[daisy11]

my daughter who is 17 has AP and is just on Aspirin, Hydroxy but it is so confusing. She is down lately and it is difficult. We are due to go to ST T in January - it is our 4th visit as both of us suffer from this. The doctor where we live said she wasn't positive and then ST T said she was. It gets confusing.

[noodlesrita123]

hi havent been on here for a while but so young 21 and even 17 im 26 an have been on warafrin since may as had PE. it is very hard and worrying im not at st thomas' im at UCL in london just tell your daughter to take things easy