After a year of limping and pain! I may have it! I've been in PT (again) and the therapist (again) says I have a "Trendelenberg Gait." I've been seeing him on and off for years and I have tried very hard to make the gait modifications he recommends. Problem is -- when I am in the midst of a "flare" I CAN NOT walk normally. Every time I put weight on my left hip the pelvis dips into this Trendelenberg Gait pattern. Last week was a good week. The exercises worked, my gait was improved. Not perfect but better. My INR turned out to be 3.1. My hematologist was quite upset and reduced my warfarin dose so I would be closer to 2. This week (on lower dose) my gait was again, horrible. The warfarin was lowered on Friday. On Monday it was bad, worse Tuesday, worser still Wednesday and by yesterday (Friday) it was horrid! Its as if I haven't been in therapy at all! I stand up, run down the checklist: (stand erect, find neutral pelvis, tighten abs, do a Kegel or 2, do glute squeezes and . . . step. ) Doesn't work. Of course the therapist thinks I am just not motivated enough to pay close enough attention to my gait to fix it (and sometimes I do get distracted and do something stupid.) But there is Something Else Going On. And this Something Else usually happens in the winter, when I'm not outside getting Vitamin D, and when my INR dips a bit before returning to a higher stable number in the summer.
Then day before yesterday it hit me! What if my INR is not at a therapeutic level and the hip problems are caused by those dastardly antiphospholipid antibodies? (The current heme lowered INR range -- and that lower range coincides with my first round of therapy years ago) I ate a lot of ginger with my sushi for lunch yesterday and returned to the previous, higher warfarin dose. And today? I"m walking like a dream. I order the left pelvis to remain stable when bearing weight and THE LEFT PELVIS LISTENS TO ME!!!!
So now -- how to I go about convincing my hematologist that his English major housewife from St. Albans has a good reason for wanting to hold a higher INR level?
Anybody have any specific study/references I can allude to? A good brownie recipe? Any other suggestions?