A new in-depth article has just been published: hughes-syndrome.org/publici...
FYI - this article was written by our friendly health journalists, Judy Hobson (http://judy.rodneyhobson.co.uk/index.shtml) who I hope will be able to make it to the Patients' Day.
Choice magazine is subscription only but has a circulation of 268,000 so is widely read.
Thanks to Teresa Hunter for agreeing to share her story with us so we could put her in touch with Judy.
This highlights how important it is for the HSF charity to have as many of your stories on our database. Kudos to everyone who has been brave and is helping others by letting us have their stories - we have almost 110 now but we always need them on file.
If you want to share your story, please email me at firstname.lastname@example.org and I will send you the questionnaire