Hi this is the first time I've written a blog and so forgive me if I ramble!! I just found HSF and have been reading every body's experience's but now feel slightly worried.
I was diagnosed with Hughes when I was 23 after suffering 2 PE's at 21 and then 2 more at 23.I have been on warfarin ever since my current dose 13mg daily INR range 2.5 to 3.5. I am now 41 and have 2 healthy children one 13yrs and a 11yr old.
My general health over the years has been ok but as most of you I have had complications, such as having to inject daily with Fragmin whilst pregnant.The kid's were both born very early (the first 11wks and second 9wks) by emergency c section. Also had a couple of op's which resulted in longer hospital stay's than normal.
In my youth I was very naive about my condition and did a lot of travelling going for weeks without getting my INR checked, drinking too much and just enjoying myself, cant believe Im still here!!! Obviously as i've got older and realised the seriousness of this condition I do look after myself and am the fittest I have ever been.
I do suffer from fatigue and headaches and sometimes sluggishness but have always put that down to work and being a Mum.Reading about other people's experience's and symptom's ect has made me realise I still don't take thing's as seriously as I should but can knowing too much be a bad thing??
I know people will disagree and think I am some kind of crazy woman but I have managed the last 18yrs albeit somewhat up and down in my blissful world of ignorance. I admire people sharing what they are going through and will be a avid reader now but I do feel a bit worried as some of their experience's are ringing alarm bell's.