Sticky Blood-Hughes Syndrome Support
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Another rough patch

My liver biopsy showed several anomolies including rare plasma cells. I was told to see a Hepatologist due to the fact that I have some form of a rare autoimmune liver disease. I suppose having APS makes this occur. I am going start the process of getting an appointment with some specialists I have located. I live in Tennesse but will be traveling out of state for this. I have researched several of the possibilites I was given and the survival time frame is anywhere from 2 to 10 years without transplant. I knew that with having APS for so long and being close to death twice that eventually this time would come round again but finding that this timing is horrible. I am supposed to finish my graduate degree this summer and I am determined not to let this get in the way. I stay very ill all the time now, contant pain also making me fall far behind on my graduate work. I am remaining positive. As I have said in the past.. I will never let this disease win, never. We can and will overcome. I am truly thankful for this site and the inspiration we can all draw from one another!

6 Replies

sorry you are having a rough time. I live in TN as well. I had a stroke 5 weeks ago. I did not know that APS caused liver issues. I have had 7 clots in my lungs, neck, arm, groin, spleen and now my brain, I also have a clot currently in my ca-rotted artery! I try to remain positive, I am very blessed to have 4 healthy boys ages 6 and under! I am still recovering from this stroke , sometimes I get scared but have to cherish each day and do all I can do to be as healthy as I can. Keep up the positive attitude, you will be in my prayers!


hoping your situation improves also! Be safe and keep hanging in there.


Lori, what a great positive attitude :) and Grovet, you have had a tough time but have the right attitude too, be positive, for :

today is the tomorrow you worried about yesterday and all is still well




Lesley I love that! I am going to use that little saying if you don't mind and every time I do I will think of you!

Lori you just keep hanging in there, you have such a strong mental attitude and thats half the battle.

Grovet29 - Sorry to hear about the Stroke. You too hang in there. I had one a year ago last January and I know it takes time to recover but it does happen. The brain has a remarkable capacity to remap and find ways to do what it did before. Keep doing the PT!! Hydrotherapy helps too.


Hi Lori,

Lovin your attitude hon, hope you find hepatologist that can help you. Aps knows how to kick ass, guess we all need some of suzipawz boots and kick it back!!! :-)

Grovet, sorry to hear about your stroke, O my goodness 4 boys under 6, :-) thats a handful and 4 fantastic reasons to get well and keep fighting!!

Lesley love the saying too. :-)

Take care gentle hugs love sheena xxxxxxx :-) :-) :-)


Hi lori and Grovet

I am sorry to hear you both having a rough time and you know you have the support on here if you want to ask any questions.



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