Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for September 2015

Turning the corner

Hi PSP sufferers and carers, well I have done my six chemo sessions and the scan looks good so now I can give more time and energy to Des.Each time I had chemo...

Hi PSP sufferers and carers, well I have done my six chemo sessions and the scan...

•9 years ago

Nothing short of a miracle

Got Mum out of the nursing home 2 weeks ago to live with us. Hard work but so rewarding. Last week Mum got a urine infection but I think it was a 're flare up...

Got Mum out of the nursing home 2 weeks ago to live with us. Hard work but so re...

•9 years ago

A Snapshot

Today we walked or rather pushed along our favourite path the Goatwalk which runs along side the Exe Estuary . T o Veronica's delight the curlews...

Today we walked or rather pushed along our favourite path the Goatwalk wh...

•9 years ago

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Neef an advice.

Hello sir i m diljeet i want to purchase fake bra for my grandmother...she has gone through a breast surgery last month, please help me to advice from where i...

Hello sir i m diljeet i want to purchase fake bra for my grandmother...she has g...

•9 years ago

Drinking cup - Provale 10cc

Hi. My Mum has PSP and we've been told to get her a Provale 10cc cup to limit her drinking as she gulps large amounts and this creates choking. I've looked at...

Hi. My Mum has PSP and we've been told to get her a Provale 10cc cup to limit h...

•9 years ago

Late stage relief?

I read a lot here about the later stages of psp and it breaks my heart. I think some of the rigidity/pain issues and night terrors/anxiety can be eased (to an...

I read a lot here about the later stages of psp and it breaks my heart. I think ...

•9 years ago

Deleted post

Hi, Apologies for the post that I deleted last night. I was editing the post and messing about with it for a long time before I posted it. Then I decided I...

Hi, Apologies for the post that I deleted last night. I was editing the post an...

•9 years ago

Social services!!!

Had a big row today with some silly little jumped up jobs worth, from social services!!! I need extra help with S! Let's face it folks, when you admit that,...

Had a big row today with some silly little jumped up jobs worth, from social ser...

•9 years ago

Legs

For the last few days my husband has not been able to straighten himself out his legs have been drawn up to near his stomach and twisted to left. I rang the...

For the last few days my husband has not been able to straighten himself out his...

•9 years ago

Hospitalized for a urinary tract infection?

My husband was admitted to the hospital today after spending the day in the emergency room.Yesterday his physical therapist told me his mid back was sensitive....

My husband was admitted to the hospital today after spending the day in the emer...

•9 years ago

CHC again.

Can anyone tell me what are the guidelines for the CHC procedure ? Our Community Matron says it was not expected that I or a family representative should have...

Can anyone tell me what are the guidelines for the CHC procedure ? Our Community...

•9 years ago

Back from cruising

Have just returned from cruise to France, Italy and Montenegro and thankfully all went well. We both thoroughly enjoyed ourselves. It is the first holiday that...

Have just returned from cruise to France, Italy and Montenegro and thankfully al...

•9 years ago

Leg arched back, lower jaw withdrawn

Hi My dad is suffering from advanced dementia / PSP and has a PEG tube now He lies in bed all day and has a hard time sitting up also His back is arched...

Hi My dad is suffering from advanced dementia / PSP and has a PEG tube now H...

•9 years ago

Keeping noise, mouth and ears clean

Hi My dad is in advanced dementia stage and he has a PEG tube If someone is or has been in the same situation, can you please suggest how to keep his...

Hi My dad is in advanced dementia stage and he has a PEG tube If someone is or...

•9 years ago

Mucus/saliva reduced

Hi (I am posting a few of these tips since they may help someone quickly looking for such tips) My dad is in advanced PSP and has a PEG tube He had a lot of...

Hi (I am posting a few of these tips since they may help someone quickly lookin...

•9 years ago

Tip for leg cramps

Hi Today there was a successful experiment so I thought I'd share My dad is in advanced stage of PSP and bed bound Today he was in great distress and kept...

Hi Today there was a successful experiment so I thought I'd share My dad is in...

•9 years ago

Just a good old saturday night.

We went out to dinner. Simple cafe, nice lighting, good food. I had an amazing glass of wine (only one as we had strolled and I had to push the wheelchair...

We went out to dinner. Simple cafe, nice lighting, good food. I had an amazing g...

•9 years ago

Proms In The Park

So, when I was growing up, each year when Last Night of the Proms was on, my Mum, Dad and I would make an evening of it, volume turned up on the television,...

So, when I was growing up, each year when Last Night of the Proms was on, my Mum...

•9 years ago

My Saturday

It seems to me that the only moan and groan i have these days is the poor knowledge the carers have. We have had to have different carers in the morning for a...

It seems to me that the only moan and groan i have these days is the poor knowle...

•9 years ago

Along the canal

This afternoon I took Veronica for a push along the towpath of the Tiverton Canal .No grand vistas - no cascades of tumbling water just dark still...

This afternoon I took Veronica for a push along the towpath of the Tivert...

•9 years ago

Help for PSP Sufferers

Is it true that people suffering from PSP are entitled to a 25% reduction in their council tax? If this is true how should they go about applying for this?...

Is it true that people suffering from PSP are entitled to a 25% reduction in the...

•9 years ago

Extreme Tremers

Has anyone had any experience with extreme tremers? Jim will hold a cup to his lips for 10 to 15 minutes without drinking seemingly unable to get the fluid to...

Has anyone had any experience with extreme tremers? Jim will hold a cup to his l...

•9 years ago

Dentist!

OK! I admit it straight away, I hate them, especially the hygienist! Never come out feeling great, the only good thing, it's the longest time, until I have to...

OK! I admit it straight away, I hate them, especially the hygienist! Never come...

•9 years ago

Going on holiday

I'm sorry I have so many questions......my heart broke last year when my father told me My Mum with PSP and him would never come over to see us again in...

I'm sorry I have so many questions......my heart broke last year when my father ...

•9 years ago

humour

morning everyone as i now have my mojo back i had a thought the other day, now this may offend some of you sensitive souls but be gentle with me! now like all...

morning everyone as i now have my mojo back i had a thought the other day, now t...

•9 years ago

How to talk and treat them.

My Mum has PSP I belong to the association, I read up on research and follow this horrid disease. But when it come to how do I talk to and treat Mum.....family...

My Mum has PSP I belong to the association, I read up on research and follow thi...

•9 years ago

Health Insurance: fighting a giant

My spouse and I have had BC/BS for 28 years. When we need them the most they are not there. I requested a bedside commode for him. They told me since we got a...

My spouse and I have had BC/BS for 28 years. When we need them the most they are...

•9 years ago

Turned down for CHC !!!

It is our 48th wedding anniversary today and through the post with the cards, came the letter we have been waiting for since December 2014 ... and guess what -...

It is our 48th wedding anniversary today and through the post with the cards, ca...

•9 years ago

Suction Pump

Today the missing piece of the pump arrived and I had instructions on how to use it. The tube goes in front of Cs teeth and I can direct it into his cheek...

Today the missing piece of the pump arrived and I had instructions on how to use...

•9 years ago

A carers role

Just had to share this because it seems to be our lives. Janexx

Just had to share this because it seems to be our lives. Janexx

•9 years ago

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