Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for September 2015

I'm new to this please be gentle with me

I have kept all your helpful advice thank u everyone. I changed my profile for identity reasons. I have a family member suffering PSP. 😭😭

I have kept all your helpful advice thank u everyone. I changed my profile for i...

Troubles

•9 years ago

7 Replies

George

George has been having a lot of water issues, I thought it was the PSP , called in the doctor today, George is diabetic and when the doctor checked his sugar...

George has been having a lot of water issues, I thought it was the PSP , called ...

Yvonneandgeorge

•9 years ago

34 Replies

Better off dead

What is the best response to my husbands frequent outbursts that he's fed up with this illness and he'd be better off dead. It leaves me depressed to the...

What is the best response to my husbands frequent outbursts that he's fed up wit...

gypsywoman1947

•9 years ago

19 Replies

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How can I help her?

Hi I have joined the PSP Association as my sister has PSP and I want to know what to expect in the future.

Hi I have joined the PSP Association as my sister has PSP and I want to know wha...

Schuey

•9 years ago

6 Replies

Prism glasses for PSP

My husband has been diagnosed recently with PSP. His eyesight is impaired because of it. Has anyone used prism glasses? The neuro ophthalmologist said my...

My husband has been diagnosed recently with PSP. His eyesight is impaired becau...

Greenkerrycounty

•9 years ago

21 Replies

CBD

Is there anyone caring for someone with CBD that would be willing to chat to me about it? The consultant thinks that my husband has it but has not said more...

Is there anyone caring for someone with CBD that would be willing to chat to me ...

Kathie48

•9 years ago

23 Replies

life

hi everyone despite various blips this week i feel i have my mojo back!!!!! so everyone out there this is a vile vile illness but remember you are a person and...

hi everyone despite various blips this week i feel i have my mojo back!!!!! so e...

Julieandrog

•9 years ago

44 Replies

Something for all the Nanna's!

This made me smile, so true! Love Pat xx

Patriciapmr

•9 years ago

6 Replies

Caring for the carers

On 1st April this year the "carers bill" became law. So far I have not seen any improvement in how carers are treated but I have been "assessed". Nowhere on...

On 1st April this year the "carers bill" became law. So far I have not seen any ...

Kathie48

•9 years ago

6 Replies

Exmoor

After a particularly bad night 1.15 am 2.30am 2.45am 3.00 am 6.15 am 6.30 am (fall) and 6.45 (Fall) gave up and got up . Got my protesting wife ready...

After a particularly bad night 1.15 am 2.30am 2.45am 3.00 am 6.15 am 6.30 a...

Georgepa

•9 years ago

19 Replies

Hurt my shoulder

Well George fell over at 4 o'clock in the morning, tried for ages to get him up, in the end I got him up, went back to bed, woke up with a bad pain in my neck,...

Well George fell over at 4 o'clock in the morning, tried for ages to get him up,...

Yvonneandgeorge

•9 years ago

48 Replies

Easy-to-Use TV Remote Control - Free to a Good Home

I have a TV remote control with simplified buttons like this one,...

AmandaF

•9 years ago

1 Reply

A Carer's Story

This really explains what it feels like to care for a frail, deteriorating parent. In this case Alzheimer's rather than PSP, but the principles are the same....

This really explains what it feels like to care for a frail, deteriorating paren...

AmandaF

•9 years ago

2 Replies

CHC - Cont.....

Hi, things can move fast! Got a phone call this morning from the assessment team." Can I come and see you? how about now?"!!!!!!!!!!!!! So this very nice...

Hi, things can move fast! Got a phone call this morning from the assessment tea...

Heady

•9 years ago

19 Replies

spitting when brushing teeth

Dear all I am posting this on behalf of mum . She is my dad's carer. He has been diagnosed with PSP about 4 years ago now and need help for feeding and...

Dear all I am posting this on behalf of mum . She is my dad's carer. He has be...

gwend

•9 years ago

14 Replies

Feeling sad......

Dear All I don't post very often but I do read all of your posts and am amazed by your continued resilience and humour. My mum passed in March this year and...

Dear All I don't post very often but I do read all of your posts and am amazed b...

Hidden

•9 years ago

14 Replies

Chc

Well, we have started down this route. The Hospice community nurse, said it was time we tried and she would contact the district nurse. The same one that last...

Well, we have started down this route. The Hospice community nurse, said it was...

Heady

•9 years ago

7 Replies

Another Stage.

Tonight for the first time my husband has wet the bed. As my husband has always been in denial I have found it very hard to discuss different stages with him....

Tonight for the first time my husband has wet the bed. As my husband has always ...

PUTLAND

•9 years ago

27 Replies

At last she gets it

Why oh why are some people a little bit thick. We have been haveing a young carer doing (double carer) visit in the evening to get Brian ready and into bed. At...

Why oh why are some people a little bit thick. We have been haveing a young care...

jzygirl

•9 years ago

34 Replies

jhon

hi all hope you are all well not been on for a while as still trying to come to terms loosing jhon still fighting the good fight

hi all hope you are all well not been on for a while as still trying to come to ...

laila123

•9 years ago

10 Replies

Choking

Has anyone any advice as to what to do when a PSP patient chokes? I have managed to get my husband to swallow some wet bread which seems to have forced...

Has anyone any advice as to what to do when a PSP patient chokes? I have managed...

Robbo1

•9 years ago

9 Replies

Obsessions

Hi Does anyone one have problems with obsessive behaviour B has been using an electronic cigarette for a couple of years but he now has an obsession for...

Hi Does anyone one have problems with obsessive behaviour B has been using an el...

nellienoonoo

•9 years ago

5 Replies

Relaxed and ready to continue

I've just had a great 5 days of being waited on and spoilt. My brother and sister in law have just left after staying with us since last Thursday and it has...

I've just had a great 5 days of being waited on and spoilt. My brother and sist...

NannaB

•9 years ago

27 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for September 2015

I'm new to this please be gentle with me

George

Better off dead

How can I help her?

Prism glasses for PSP

CBD

life

Something for all the Nanna's!

Caring for the carers

Exmoor

Hurt my shoulder

Easy-to-Use TV Remote Control - Free to a Good Home

A Carer's Story

CHC - Cont.....

spitting when brushing teeth

Feeling sad......

Chc

Another Stage.

At last she gets it

jhon

Choking

Obsessions

Relaxed and ready to continue

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive