Nothing short of a miracle

Got Mum out of the nursing home 2 weeks ago to live with us. Hard work but so rewarding. Last week Mum got a urine infection but I think it was a 're flare up from the infection she had in th nursing home, and was not responding to antibiotics. Delirium set in and on Friday Mum got admitted to Cambridge hospital where she still is. Mum has also been treated for low haemoglobin and has had 2 units of blood and units of iron. Yesterday I went to visit and I could not believe it; Mum can speak again and she can smile. I asked the doctor why and he did not know other than maybe something to do with having a blood transfusion. The family are so happy and Mum said it is amazing to talk again. Can't stop smiling.

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  • That's great. Bet your doctors don't pass on this knowledge on to the people who are doing the research. Who knows what tiny bit of information, will trigger an advancement in their quest for a cure!

    Hope your Mum is well enough to come home very soon.

    Lots of love

    Heady

  • TJIIS IS THE 7TH TIME I HAVD TRIE,D TO LEAVEE A`POST SO I WILL JUST SAY THA TIAGREE WITH WHA T H EADY HASSSAID AND HOPE YORU MU,M IS HJOME, V SOON

    ;LOL JILL

    (PSP PERSON INTTHE UK

    SORRY FRO ALL THE TYPOS

  • Wow. I'm very glad for you and your mother, what a splendid gift! and it is very interesting. It certainly would be good to know now that she can speak, more about how she experiences her disease, if she is able to consider and convey it. Being locked in causes such suffering. But perhaps the most important thing is for you to enjoy this miracle, long may it last. Hugs to you both, Easterncedar

  • Lot's of good factors to help with your mum:

    1 She is no longer in a ward where she may have been depressed and stressed.

    2 she no longer is sick with infection

    3 she no longer is using antibiotics

    4 she has been infused with blood with all sorts of good vitamins and minerals

    a immune system strengthened B vitamins and mitochondria flowing around stimulating 'old' parts of the brain

    b Iron units by themselves have got to be worth all sorts of points on the "i feel fit as a fiddle " scale

    c You and family feel restored a bit which helps everyones mood

    5 Is there more to this ....lets hope so .

    And do try to keep a log of when this started happening and if there are other "break throughs" and how long she displays regular behavior ...I wonder if they can do a blood count to see how her B's are etc!

    At any rate congratulations on your mums positive health

    AVB

  • Well done for getting her out of the "nursing" home. I know how tough it is, but I also understand how deeply satisfying it is to know you are doing the right thing.

    I hope she will be well enough to get out of hospital soon. Record her voice! Now could be a good time to organise power of attorney? Time is precious and her condition is progressive. Today could be as good as it gets. Enjoy it! Love and best wishes to you both.

  • Brilliant news. Long may it last.

    X

  • Lovely to have a happy ending for a change x

  • Great news for both of you, enjoy it while you can,

    Why not ask your mum's Dr to pass on information to the PSP Study group (Prospectmuk) at Royal Free Hispital, it is run by Dr J Woodside, j.woodside@ucl.ac.uk under Prof Huw Morris. There may be something with combination of antibiotics, iron and blood units as Abirke suggests.

    Best wishes and hope it lasts for both of you.

    Tim

  • Really pleased and happy for you. Hope you have a lot of pleasure from this golden time, long may it last. xx

  • How nice to have some good news ! Long may it last.

    x

  • Hi, So glad to hear the good news.

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