My spouse and I have had BC/BS for 28 years. When we need them the most they are not there. I requested a bedside commode for him. They told me since we got a walker, he could walk to the bathroom with it. We have tried. His legs are so weak at night, he has fell 2 times since we got it. He is dead weight and I can not pick him up. I hate to call ambulance. I get up with him 2 & 3 times in the night to walk with him to the toilet. He cannot sit up from the bed, or stand up from a chair.
Outpatient PT, OT, and ST would cost $380 a month, and home health care is $460 a month. This is with the insurance paying 80%. Where do they expect us to come up with this kind of money. The VA and Medicare pay more that BC/BS of Alabama. We have always had good insurance until now. I feel like a little pea in a huge bucket of peas and no one can see what I am going through. They say we have rules. They can put their rules where only the devil can see because God knows we need more at the end of our lives. Medicare will pay 100% of the therapies. What is this world coming to when greed is running a company like health insurance companies. He has not had any therapy for 2-3 months, he desperately needs it. It is so hard to keep faith and a happy face when we are so alone in the fight for a cure for PSP.