Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for August 2015

PSP

my husband was diagnosed with PSP and is cuurently in a care facility - presently when we visit him he he always in a deep sleep some days and seems to be...

my husband was diagnosed with PSP and is cuurently in a care facility - present...

•9 years ago

it might as well rain

It never rains but it pours. i have finally got to the stage where walking is a problem so a w heelcha ir is is the next step now after my cataracts w ere...

It never rains but it pours. i have finally got to the stage where walking is a...

•9 years ago

BAD NEWS

They told me Don had a UTI and just told me he doesn't but does have double pneumonia and is in AFIB very badly. In addition to that he has a mass in his left...

They told me Don had a UTI and just told me he doesn't but does have double pneu...

•9 years ago

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Swallowing

Vita stim http://www.pattersonmedical.com/app.aspx?cmd=getProduct&key=IF_91221 https://youtu.be/-QwEmXJkFmk ISO-plus device http://www.alternativespeech.com...

Vita stim http://www.pattersonmedical.com/app.aspx?cmd=getProduct&key=IF_91221 h...

•9 years ago

Little Cutie!

I couldn't cope with a bat in my bedroom but couldn't resist taking a photo of this, one of many baby frogs in our garden. The coin is a 5p. X

I couldn't cope with a bat in my bedroom but couldn't resist taking a photo of t...

•9 years ago

Bats in the bedroom!

Just for a laugh. Our beautiful king size bed is now unzipped and F and I are in our respective halves facing each other either side of the room. It works well...

Just for a laugh. Our beautiful king size bed is now unzipped and F and I are in...

•9 years ago

Back to `normal`.

Boy oh boy ! 3 `good` days but tonight ... back to normal with a vengeance. Terrible mobility, awful cognition, falling all over the place, unaware of what...

Boy oh boy ! 3 `good` days but tonight ... back to normal with a vengeance. T...

•9 years ago

We Did it :)

Meeting was a success. Support plan in place and thet have agreed to let Mum come and live with us and let her out of the nursing home. So pleased. Mum is very...

Meeting was a success. Support plan in place and thet have agreed to let Mum com...

•9 years ago

Hopeful

Today John has taken his first dose of Rivastigmine . he was described it to see if it will help his thoughts process .. so my fingers and toes are crossed...

Today John has taken his first dose of Rivastigmine . he was described it to s...

•9 years ago

Wish us luck

Best interest meeting today to find out whether we can have Mum living with us and get her out of the nursing home. After witnessing the level of care in there...

Best interest meeting today to find out whether we can have Mum living with us a...

•9 years ago

To convene or not to convene???

HELP, we have finally found something to help S, with his over active bladder. A convene. Not the normal sort, it's a rubber penis, which is strapped to him...

HELP, we have finally found something to help S, with his over active bladder. ...

•9 years ago

BACK IN THE HOSPITAL

Don was having great difficulty moving again, took him to an urgent are center on Friday, blood and urine test came back negative but by yesterday he was...

Don was having great difficulty moving again, took him to an urgent are center o...

•9 years ago

Nicotine as a neuroprotectant

1. Extensive studies in parkinsonian animals show that nicotine protects against NIGROSTRIATIAL damage, findings that may explain the well-established decline...

1. Extensive studies in parkinsonian animals show that nicotine protects against...

•9 years ago

Carers non-means tested grant NEW

Now how about this - on Friday I went for an assessment for the new carer grant which came in in April . It is non means tested and is there for all...

Now how about this - on Friday I went for an assessment for the new carer g...

•9 years ago

Knowledge.

http://www.smw.ch/content/smw-2011-13293/#REF72

http://www.smw.ch/content/smw-2011-13293/#REF72

•9 years ago

CBD oil

Hello all, thought I'd let you know about something I've been giving my dad for a while now. Cannabidiol or CBD oil....

Hello all, thought I'd let you know about something I've been giving my dad for ...

•9 years ago

I miss my Mum

I miss my Mum terribly, this last week seems to be another wave of grieving. I hate PSP. I've just had a 30 second conversation on the phone with her, I know...

I miss my Mum terribly, this last week seems to be another wave of grieving. I h...

•9 years ago

Hello

Hello everyone, my dad has been diagnosed with psp, he is 67. He's early stages i think, no backward falls yet. Just complaints about his eyes. He has been...

Hello everyone, my dad has been diagnosed with psp, he is 67. He's early stages ...

•9 years ago

are you ready to party yet?

hi all ar eyou ready to party you do not nee dot brign anything apart from YOURSELF and possibly ur spouse or partner if they will come i am getting the...

hi all ar eyou ready to party you do not nee dot brign anything apart from YOU...

•9 years ago

Tauopathies

Hi all, As my wife has CBD I am always searching for support and help. Thank you all for sharing your problems and for the information on the ways you have...

Hi all, As my wife has CBD I am always searching for support and help. Thank yo...

•9 years ago

STRESSFUL DAY

Oh well, everyday can't be perfect but today was stretching it for me and D. He has two accidents, urine which he hasn't had in a long time, his BP is high...

Oh well, everyday can't be perfect but today was stretching it for me and D. He ...

•9 years ago

Eating out

My dad has PSP and he is struggling with swallowing, and is currently on a soft food diet. We really want to go out for my mum's birthday and we were just...

My dad has PSP and he is struggling with swallowing, and is currently on a soft ...

•9 years ago

Shiatsu

Has anyone tried shiatsu for stiff muscles? Brian has just had a session and from what i can see his arm seems to a little bit more loose. Any views on this....

Has anyone tried shiatsu for stiff muscles? Brian has just had a session and fro...

•9 years ago

CHC

Hi all when we went to the hospital the doctor was insisting that George should get CHC , so we spoke to the district nurse again she came in and assessed him,...

Hi all when we went to the hospital the doctor was insisting that George should ...

Yvonneandgeorge

•9 years ago

Wedding Anniversary

Today it is our 43rd wedding anniversary. 43 happy years ( with a few unhappy events) and no regrets. I really can't believe that shy 21 year old, trembling...

Today it is our 43rd wedding anniversary. 43 happy years ( with a few unhappy e...

•9 years ago

News

I am Mexican, mi mother had suffer psp and died en April 2014 . Today I read news about parkinson desease, I recomended read the article with link below, is...

I am Mexican, mi mother had suffer psp and died en April 2014 . Today I read new...

•9 years ago

Cruise or not cruise! That s the question.

Anybody. Got opinions on if a Mediterranean cruise would be a good idea., was worried that the motion of the boat (especially if there is a sea swell) would be...

Anybody. Got opinions on if a Mediterranean cruise would be a good idea., was wo...

•9 years ago

party this thursday 6 th august 6pm uk time ....ok

we shall have a n online party - this Thursday pk for everyone stroke whilst the iron is hot i say`! lol jIll hugs & xxx 2 u all

we shall have a n online party - this Thursday pk for everyone stroke whilst...

•9 years ago

Whoops!

I've just put Colin to bed. I hoisted him to a standing position and put Proshield Plus cream on my fingers ready to cream his bottom. Just in time I realised...

I've just put Colin to bed. I hoisted him to a standing position and put Proshi...

•9 years ago

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