Hello everyone, my dad has been diagnosed with psp, he is 67. He's early stages i think, no backward falls yet. Just complaints about his eyes. He has been tripping up more often over the last few years. Spoke to my mum and she says he seems to trip when exiting vehicles. But it's only been several times and may just be normal trips and falls. His speech is still ok, but he does the slurred pause before speaking sometimes. He's still able to go out for walks by himself.
My parents run a successful b&b and my dad is still able to cook the breakfasts I've taken on his role as toilet scrubber so I'm at their house everyday. I'll be taking on more roles as this develops and my mum needs to spend more time looking after him.
I've seen some vids, no-one else wants to watch them. I done some light reading on the Indian diet thing, the fecal transplant thing and the nicotine patch thing. Anyone have any thoughts on those in the case of psp? Anyone have any other things for me to have a look at?
If any of you have a list of things I need to know and do I would really appreciate it.
What are the therapies the nhs will provide for us? I'm looking to get a head start on these. I have dug out the wii fit for core muscle/balance. Are there brain exercises we can start on?
I've also read about parkinsons starting in the guts, there's a tear in the gastro lining somewhere which infects something which then Infects the spinal fluid which goes into the brain. Any thoughts?