Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for August 2015

Post hip-replacement

The surgery was done using a spinal anaesthetic so no adverse neuro reactions and all went well. Thanks to getting everyone on board with time in a rehab...

The surgery was done using a spinal anaesthetic so no adverse neuro reactions an...

•9 years ago

Uncommon perceptions.

I expect we have all heard the same question on numerous occasions; "what is wrong with him/her? What is it they have?" I was even asked by the man who...

I expect we have all heard the same question on numerous occasions; "what is wro...

•9 years ago

help

hi everyone fairly new to the posting lark but not to psp! what i see from the posts is that it appears that patners are not getting the suppost .if it is any...

hi everyone fairly new to the posting lark but not to psp! what i see from the p...

•9 years ago

Want to take advantage of all our features? Just log in!

or

Dry mouth

My mum has late stage psp unable to mobilise, she wakes up regularly throughout the night needing a drink, she says her mouth is that dry it's painful, does...

My mum has late stage psp unable to mobilise, she wakes up regularly throughout ...

•9 years ago

A Genuine Kindness!

Hi, yesterday, spent had a pamper day. Courtesy of a very kind ex carer! Crossroads, run pamper days, we went to this lovely old house, with beautiful...

Hi, yesterday, spent had a pamper day. Courtesy of a very kind ex carer! Cros...

•9 years ago

Back from UCSF

Aunt Bev and I are back from UCSF did more cognitive testing , and had her take a pill to really relax her for her MRI they dont really tell you much only...

Aunt Bev and I are back from UCSF did more cognitive testing , and had her take ...

•9 years ago

Therapy

I am trying to get my husband into a rehab that is requiring him to be inpatient for 7-10 days. Then do out-patient from then on. Has anyone ever had to do...

I am trying to get my husband into a rehab that is requiring him to be inpatient...

•9 years ago

Research

A couple of weeks ago I had a phone call from the the PSPA asking if they could give a research organisation our phone number. I said yes and the call came...

A couple of weeks ago I had a phone call from the the PSPA asking if they could ...

•9 years ago

SORRY FOLKS THIS UIS THE REAL ONE FROM PETER JONES

well thank you nanna we had a good time I only fell on the train twice frightened the life out of some lady she was asleep in her pod as I was walking up the...

well thank you nanna we had a good time I only fell on the train twice frightene...

•9 years ago

NANNA B'S EMAIL FROM PETER JONES

please read nanna b mail mate im all typed out my finger has gone down to a stub the pokies were R.S. the train was great but I could not have mine out...

please read nanna b mail mate im all typed out my finger has gone down to a stub...

•9 years ago

Be the first to reply

Feeling !!!!

I am laying in bed, can't sleep, just so fed up with life, I know I am being silly, I feel lonely and sad, this horrible illness not only destroying George's...

I am laying in bed, can't sleep, just so fed up with life, I know I am being sil...

Yvonneandgeorge

•9 years ago

THEY JUST DON'T GET IT AT THE HOSPITAL

DON IS STILL IN THE HOSPITAL AND THEY ARE STRONGLY RECOMMENDING PALATIVE CARE FROM HOSPICE. THEY JUST DON'T GET IT THAT HE NEEDS PT AND OT WHICH HOSPICE WILL...

DON IS STILL IN THE HOSPITAL AND THEY ARE STRONGLY RECOMMENDING PALATIVE CARE FR...

•9 years ago

Optician

My husband is due his 2 yearly eye test , although he wears glasses his eyes have until recently not been too bad. However he now says his eyes are " much...

My husband is due his 2 yearly eye test , although he wears glasses his eyes hav...

•9 years ago

Definite diagnosis, at last.

Well today we finally got to see our local neurologist and he was quite definite in saying that P has PSP. Two weeks ago we saw a neurosurgeon who was prepared...

Well today we finally got to see our local neurologist and he was quite definite...

•9 years ago

OFF DUTY

Today is the day I have three and a half hours off in the afternoon and where did I go ? You've guessed it the dentist ! Now tell me why is it that...

Today is the day I have three and a half hours off in the afternoon and wh...

•9 years ago

I have received

Some disturbing emails from members of this site. In terms of my language, I am English and we all speak that way - no swearing, of course. In terms of...

Some disturbing emails from members of this site. In terms of my language, I am ...

•9 years ago

Eyes Closing

My husband has been receiving botox on his eyelids to keep his eyes open for several years. It use to be every three months then it went down to 2months, and...

My husband has been receiving botox on his eyelids to keep his eyes open for sev...

•9 years ago

PSP

PSP incurable but not the symptoms. RHP in California has a miracle vitamin supplement that has normalised my life

PSP incurable but not the symptoms. RHP in California has a miracle vitamin supp...

•9 years ago

Message from Peter Jones.

Hi all, Peter would like you all to read a reply he posted to me about his eventful recent trip. It's well worth reading and his vivid descriptions of his...

Hi all, Peter would like you all to read a reply he posted to me about his event...

•9 years ago

Drinking alcohol and PSP

I am interested to know how many people with PSP were alcoholics. My husband drank for 20-25 years really bad. I always wonder if the disease came sooner...

I am interested to know how many people with PSP were alcoholics. My husband dra...

•9 years ago

Eating issues

My husband was put on a puree diet by the speech pathologist. He was a 44 waist 18 months ago. Now he is a 34/36. Are there any good ideas out there that...

My husband was put on a puree diet by the speech pathologist. He was a 44 waist ...

•9 years ago

So pleased for darkness

Oh how i do count my blessings. Sitting in my garden wrapped in my big fluffy dressing gown watching a couple of hedgehogs eating prawn crackers. Snorting and...

Oh how i do count my blessings. Sitting in my garden wrapped in my big fluffy dr...

•9 years ago

handy handle

hi everyone in psp world!!! just found fantastic little gadget, rog was having difficulty getting out of car, it is called the handy bar , slots in side the...

hi everyone in psp world!!! just found fantastic little gadget, rog was having d...

•9 years ago

holiday without internet again!

we are off to n yorkshire again for another week no internet again~ so a restful time for my eyes i hope1 and are hoping for some good weather loll illl

we are off to n yorkshire again for another week no internet again~ so a restfu...

•9 years ago

Does anyone know----?

Does anyone know of anything that works to improve the lack of eye movement in PSP? I think this is the symptom that breaks my heart the most.

Does anyone know of anything that works to improve the lack of eye movement in P...

Greenkerrycounty

•9 years ago

Holiday

Hi everyone hope you are all ok. Well my brother and his wife came for a visit, which was lovely, my brother made me cry, he said I will come and look after...

Hi everyone hope you are all ok. Well my brother and his wife came for a visit,...

Yvonneandgeorge

•9 years ago

Clearway

Just ben given a machine on loan which is a godsend for Steve. He has tremendous trouble coughing and when I mentioned this to the physio she arranged for this...

Just ben given a machine on loan which is a godsend for Steve. He has tremendous...

•9 years ago

Body awareness!

Hi, I have now got S going to see an osteopath. He is very good and had experience of Stroke and Parkingson victims. But is fascinated with PSP and how it...

Hi, I have now got S going to see an osteopath. He is very good and had experi...

•9 years ago

NOW THEY HAVE DECIDED HE HAS GALL STONES

I give up :( Could b worse AUDREY

I give up :( Could b worse AUDREY

•9 years ago

There has to be stuff out there.....

Hello All, I am an advocate of my father who has PSP. I have been reading everything that I have found in relation to PSP. He has done a couple of clinical...

Hello All, I am an advocate of my father who has PSP. I have been reading ever...

•9 years ago

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec