it might as well rain: It never rains but it... - PSP Association

PSP Association

9,604 members11,541 posts

it might as well rain

myjual profile image
5 Replies

It never rains but it pours. i have finally got to the stage where walking is a problem so a w heelcha ir is is the next step now after my cataracts w ere done last year i am having flashes and floaters in one of my eyes.soon I won't be able to do anything. I know it is hard for carers and did not want it to be mnd but there seems to be no end to it.l Thats myfive minutes o self pity today. at ;least the sun is oout

Written by
myjual profile image
myjual
To view profiles and participate in discussions please or .
Read more about...
5 Replies
NannaB profile image
NannaB

You are allowed more than 5 minutes. With all you have to endure 5 minutes is nothing. I hope you find the wheelchair gives you a new lease of life. I know you will have to rely on someone else to push you (unless you have a self drive electric one) but you will be able to travel a lot further and go to more places while you are still able. When my husband first acquired his wheelchair he would sometimes push it as I wanted to keep him walking as long as possible but as soon as he got tired, he would get in and I would push him. Now we have an electric chair as I was finding it difficult to push him.

I hope you get to see new places in your wheelchair and take advantage of the fact that you can go further afield for longer.

X

myjual profile image
myjual in reply toNannaB

thank you xx

abirke profile image
abirke

Like NannaB said your suffering may take a few more minutes of self pity....But also like NannaB said you can be freed from some of your disability just by using that wheelchair. Don't see it as a problem, but a solution! B and I were at the gym and this little guy, about 6 yrs old, came flying through in his wheel chair swirled around to wait for his mom while she did whatever. He did lil swirls and rocked back and forth like any 6 yr old waitin' for his mama would....he seemed quite happy! I asked him where he got those cool wheels...his wheels would light up as he moved he could n't remember but I asked him if Mr. B should have those on his wheels (just a walker) He stated with confidence "OH sure, these make me happy"......We a ll laughed and agreed and as they left he sped out in his chair just like any 6 year old would do! He was not going to be brought down by his disability.... He had a new normal...and he was/ gonna live it to the fullest.

I'm just telling you this story cuz well I think it was a cute experience, but also obviously I want you to know that your disability doesn't always have to bring you down...find your new normal and live it....scream if you have to cry if you have to get mad....just don't stay there......you are as free as you allow yourself to be.....

AVB

Have a great day

myjual profile image
myjual

when i get a wheelchair things will be easier I am surrrrrrrre

jillannf6 profile image
jillannf6

Yes i ahv e 2 now del inSIDE & 1 FOR OUTSI DE - IOIT WORKS V WELL BUT IT IS A PROBELM FO RME PUHSING MHYSELF ABOUT IDNOORS NOW AAS MU STRENGHT HAS GONE A TTHE MOMENT )9SORYR IF THIS I S A VERY LATE REPLY TO UR PSOT BUT THE FEELEIGN IS THERE I KWNO IGT IS A PROBELMS AACCEPTING THAT YOU NEED A CHAIR BUT AT LEAST HWEN YOU HAVE IT IWLL BE A LOT EASIE RFOR YHOU

LOL JILL

PLZ EXCUSE ALL THE TYPIGN ERRORS\THEY ARE A BI G PROBLEM FOR ME

Not what you're looking for?

You may also like...

Dad, my forever superhero (as well as mum!)

Just thought I'd post a pic of my dad, this is us 5months ago, a few weeks before he got his...
catherine_h profile image

Depression and therapist, does it help?

Hello Everyone! Does anyone take your loved one w/PSP to a psychologist or psychiatrist to help...
Gracie_Girl profile image

Think it might be time to say good night xx

I think my wonderfull MUM is losing her fight with PSP. Mum is in the later stages and has just...
Back profile image

My Neurology Appointment Didn't Go So Well This Week.

But I wasn't surprised, either. My existing symptoms seem to be escalating i.e. loss of balance and...
JudyJ profile image

I think I might have PSP

Hi everyone This is my first post in the forum. I wanted to hear from people with PSP, as I...

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.