Hi all when we went to the hospital the doctor was insisting that George should get CHC , so we spoke to the district nurse again she came in and assessed him, and she he meet the criteria, so she said that we need a social worker, as some of you may remember they closed our file, in February, after insisting they didn't, I was told that if we needed a social worker again, it would not be a problem.
Well the district nurse has tried to sort it out, to be told we are waiting for a social worker to be allocated to us, that was four weeks ag, and we are still waiting, even after many phone calls, from the district nurse and myself.
Also told the by the admin officers that it is done by your needs, I said my husband is terminally Ill he is not going to get better, where are we then, after a 4 week wait? She could not answer and I know it is not her fault she was very polite. Told they were in a meeting then it would be lunch time so to ring after 2 o'clock. I rang back and spoke to
One of the managers she was very nice, I said to her, I think you should read up about PSP, she agreed, and told me where she worked before there was someone with PSP in the system, she said it was very rare, told her people did not know about it , so more reason to get the social workers to read about it, I told her to get in touch with the PSP society they had a lot of information.
She said she there was a meeting today and she would mention George as see where he was on the list, she also said it does not mean you will get the CHC I said I knew that already. Doctor at the hospital was so insistent that George should get it, so will involve him in this as well, he offered the help so I am going to take him up on it. For God sake our partners are terminally I'll.
Well sorry to go on a feel very strongly about all this , how can treat people like this social workers?
Love to you all