I miss my Mum terribly, this last week seems to be another wave of grieving. I hate PSP.
I've just had a 30 second conversation on the phone with her, I know I'm lucky to still be able to do that but its just SO sad .
Now I've got to go and be sparkling, enthusiastic Life Coach for a client and I just don't feel like it!
I just miss my Mum!!! xx
Dear Kate,
I really feel for you as I know how all this is affecting my daughter and two sons, it's so hard and so unfair and cruel! They also have to put on a brave face at work when they've got this constant concern about their Dad.
All I can say is try to keep on being strong for your Dad, he needs you more than ever now, your Mum is still with you, give her all the love and support that you can as I know you're already doing!
Thinking if you dear Kate...
Sending you a big massive hug....Pat xx
Kate my heart feels for you, I agree with Pat, our children are the same, it is such a bad illness.
You must be a lovely daughter you sound so caring, take care Kate.
Sending you a big hug
Yvonne xxxxxxxxxx
Big hug to you Kate. I think it must be hard for you because your mum is being taken away piece by piece and its not fair. I still miss my daily phone calls with my mum and sometimes i get angry because the person i relied on to help and advise me is not there to hold my hand any more. As much as you are grieving for what has been lost rejoice in what she can still contribute to your life. Remember that whatever happens she still loves you as much as you love her. Janexx
Kate, we all all miss our loved ones! I miss my Dad, who died 12 years ago! That, although extremely painful, seems right. Missing S, who is sat opposite me, eating his dinner, a good hour, after I served it, Is WRONG! But what can we do? I don't know how to help, comfort you. I don't suppose, you even want that. All you want is your Mum back. She is still there, hidden deep in the shrouds of PSP, you will have to dig hard, you may be lucky and find a brief glimpse of her. Keep that spade working hard Kate, your Mum needs to be reached.
Lots of love
Heady
OH baby, a hug to you from me .....You will be on my thoughts and in my prayers as you help another deal with their disorder.
Take care I cry thinking how hard it is for my kids to see theri dad and be happy and try to talk to him....daughter cannot do it sons try their best......
God Bless You
AVB
And abig hug from Turkey too.
Though it may not help but I know what you are going through having lost my mum just over a year ago, and watched my wife being robbed of her vitality, mobility, speech at an increasing rate by PSP over the last year. We have to just get back on with the day, wow what a career you have helping improve others lives. Best wishes and hugs Tim
Kate It is so hard, I know my sons really feel that they are loosing the dad the knew and my grandchildren won't be able to enjoy having a grandad to play with. it breaks my heart but as others have said your mum is still somewhere in there and you will get glimpses. It is so unfair that anybody has to suffer this horrible disease but all you can do is your best to support her because she still loves you but can't show it in the same way. Take care. Xxx
Kate,
I know exactly how you feel, although my Dad is still with us I miss him terribly. Visits back home for me were always all about going out with my Dad to the local pub, I've always had more than just a father/son bond with my Dad, we're best mates also. I'd always choose socialising with my Dad over any of my friends. He's funny, witty and very caring. Now as that is all but stripped from him I too feel like I'm grieving for him despite him still being with us.
I also struggle with work, I work with very demanding customers in a very trivial environment so I really struggle to not snap sometimes when I'm being berated because somebody's hifi is still in repair. Also my manager doesn't help as despite him knowing the situation he still gets on my case over the odd 30 seconds I'm late here or there, or that I always have my phone with me in case my Mum needs me. I'm close to jacking it in because of this.
I wish people understood just how bad this illness is instead of assuming it's nothing.
Take care
Dan
i miss my jhon so much the pain is unbarable my thoughts are with you god bless
I lost my wife 7 weeks ago and I know that her suffering is over but I miss her so much it hurts
Sending hugs to you kate I feel your pain , even after losing mum just over a year ago when the phone rings for a split second I thing its my mum phoning , miss my mum and she was my rock so much. Takecare hun xx
I feel the same. Mum is just a shell, I can't find her any more. It's like we have to grieve twice.
Take care
Lindsey xx
I am new here, my mum recently diagnosed with PSP.
Miss you mum xxxx
just lost my mum to PSP 
My mum. 
