A new huges syndrome pacient from spain, we need help

[salva76]

Hi, my english is poor, but i ll try to understznd tou all of you.

We are a group of spanish pacients , with huges syndrome, here many doctors dont know typical syntomp like migrain, loss memory, ache in musles,,,, we need to know which treatment there is for this syntomps, besides warfarine,

Is any one who knows a specialist doctor in spain who knows huges syndrome illness.

Please any information it would be very helpfully for us

[MaryF Administrator]

Hello

The best thing you can do is to read our charity website, perhaps using a translating service or programme, also I provide another idea APS Action, you could contact the doctors on the list. Also they may be able to provide you with some medical papers, there are many published, and probably they can be translated through which ever medical service your local area uses.

We have quite a few members from Spain on this patient forum. Best of luck. MaryF x

Hola

Lo mejor que puedes hacer es leer nuestra página web la caridad, tal vez usando un servicio de traducción o programa, también proporciono otra idea APS Acción, puede ponerse en contacto a los médicos en la lista. También puede ser capaz de ofrecerle algunos artículos médicos, hay muchos publicada, y, probablemente, se pueden traducir a través del cual el servicio médico nunca su área local utiliza.

Tenemos un buen número de miembros procedentes de España en este foro paciente. Lo mejor de la suerte. MaryF x

1. hughes-syndrome.org/

2. apsaction.org/

[Romartsantos]

Hola

Hi. Really interested. How can we meet?