Hi. I'm Roberto from Spain. I was diagnosed with primary APS in 2001 after a massive pulmonary embolism. In 2011 I was diagnosed with Primary or Idiopathic Pulmonary Hypertension.
I would like to meet other people with this condition in the context of Lupus or APS. And the crucial question: Is your pulmonary hypertension diagnosed as primary or idiopathic ( unknown cause ) or chronic thromboembolic pulmonary hypertension ( visible clots in CT scans ). My docs don't see any thrombus in the CT scans but I suspect I suffered another PE in 2011. I'm on warfarin, and taladafil ( cialis ) for the PAH. And my tests are negative!!!!. But after visit Dr Kamastha this is cause I'm on coumadin and there are less odds to be posistive.
I love this community and thanks for your support and information.