Can sticky blood occur just once afte... - Hughes Syndrome A...

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Can sticky blood occur just once after an operation should it be checked by hospital after

Glyn1944 profile image
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Glyn1944 profile image
Glyn1944
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MaryF profile image
MaryFAdministrator

Hi, do you have a diagnosis of Hughes/APS? In answer to your question it is possible to have a clot develop after an operation, but this is not just limited to people with the diagnosis of sticky blood. If you have had an operation and have concerns please go straight back to your original hospital consultant or local GP. MaryF

Glyn1944 profile image
Glyn1944 in reply to MaryF

What happened my granddaughter had a small op and had to stay in hospital she was treated with heperin and told she had sticky blood. She again went in for another small op unfortunately she died age just 29 we have been told she had a reaction to drug was wondering if sticky blood might have played some part

Glyn1944 profile image
Glyn1944 in reply to MaryF

Thanks

MaryF profile image
MaryFAdministrator in reply to Glyn1944

I am so sorry to hear what has happened with your family. If she had a diagnosis of sticky blood, (Hughes/APS), then in the first instance the Heparin would have been a fairly standard drug treatment. With this diagnosis, for the next operation presumably she had similar care? You need to find out exactly which drug she was supposed to have reacted to.

Please if you are trying to get to the bottom of all this, do enlist some support along the way. You need a trusted family friend to be your advocate, also: This charity might be your first port of call: avma.org.uk/ and you need to also contact the Health Ombudsman if you are not satisfied with how your inquiries have been handled. Please feel free to ask us questions, if we can help you we will. MaryF x

Glyn1944 profile image
Glyn1944 in reply to MaryF

We were told that the sticky blood was a one off ,at the moment it's in the hands of the coroner .we have a lot of unanswered questions they seemed to put no importance to the sticky blood ,it was only through the internet that we realize how dangerous this condition is .So I saw health unlocked and thought I would make some inquires .As you might gather we are all shell shocked at moment

MaryF profile image
MaryFAdministrator in reply to Glyn1944

I really feel for you. Here is the full charity website, please have a good luck around it there is lots of information on there from symptoms, through to diagnosis and also specialists, which area of the country are you in, as we may have members in your area. hughes-syndrome.org/ I include also this: lgfellowship.org/index/Home...

Best wishes to you, I am sorry things are so very tough for you. MaryF x

Manofmendip profile image
Manofmendip

Hello

Like my colleagues I feel for you and you should put all available evidence in front of the coroner.

Dave

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